When rights are not enough: What is? Moving towards new pedagogy for inclusive education within UK universities

There is confusion surrounding ‘Inclusion’. The aims and drivers of inclusive education (IE) as experienced in the 1990s to early 2000s, in the UK and globally, emerged from a ‘successful’ disability rights movement with its depiction of the medical model as pejorative and promotion of the social model. In education, what we currently experience are messy attempts at IE alongside growing collective anxiety and confusion, as some governments take reactionary policy steps. This paper engages with the ubiquitous and complex question of ‘IE' in the UK with specific reference to the intersectionality of ‘disability’ and its location within the University. It will problematise the UK rights agenda of the 1980s–1990s, locate and reflect on the complexities and conflicts of Inclusion and consider the need for new pedagogic developments. Such developments, it will be argued, emerge when one applies a critical eye to the impact of hegemony and ‘silence’ on the experiences of those with ‘disability’. This approach has been developed in other areas of social justice and diversity, that is, class, gender and ‘race', and it is argued that such an approach is needed with regard to ‘disability’. It is proposed that post-rights pedagogic developments linked to this may provide a sturdier basis from which UK inclusionists, in particular university educators, can locate their future work.     

Moving to inclusion: a socio‐cultural analysis of practice

Difference, like nature, calls forth possibilities for developing transformative relationships. According to Keller in 1985, ‘Difference thus invites a form of engagement and understanding that allows for the preservation of the individual. Self and other survive in a structural integrity?’ Moving towards inclusion requires that we consider teaching as relational where resources for joint actions emerge, promoting an awareness of possibility rather than an adherence to limitation. In this paper, I will argue that disability is a way of seeing the world via the social and cultural constructions that prioritise values and bias actions. My intent is that it furthers the on‐going inclusion debate, which at times has polarised positions into the non‐inclusion/inclusion camps. A social constructionist lens will be used to examine the underlying assumptions, beliefs, and resultant practices that describe how educators and students negotiate inclusive practices. As a complimentary focus, the medical and social models will highlight the discourses that inform teaching and learning. Finally, a social–relational model will be introduced as an alternative for conceptualising inclusion.     

Social acceptance of students with Down syndrome and students without disability

We investigated the influence of teacher feedback on the social acceptance of peers with intellectual disabilities and peers without disabilities. A computer task was administered to 601 students in grades 3 and 4. Twenty-six per cent of the students attend an inclusive school; the others are in regular schools without students with special educational needs. Participants are introduced to ‘new’ virtual classmates, one student with Down syndrome (DS), and one control student with no obvious disability. Additionally, teacher feedback and feedback about fun playing with the new classmates is given. Social acceptance is evaluated by asking if one would like to sit next to him/her. Both feedbacks showed a strong effect. The child with DS was less socially accepted than the child without disability. No difference regarding the social acceptance of the students with DS was found between students from inclusive and regular classes. Students from regular classes rate the social acceptance of the student without disabilities significantly higher than students from inclusive classrooms.     

Len Barton,inclusion and critical disability studies: theorising disabled childhoods

Len Barton has pioneered the sociological study of education in the areas of disability studies and inclusive education. This paper addresses an argument developed by Len Barton that social exclusion, of which disablism is one element, (1) has many compounding forms of differing exclusions, (2) is not a natural but a socially constructed process, (3) has no single factor that can remove it and (4) is in constant need of conceptual analysis. Our paper aims to address each of these four challenging themes in relation to the contemporary societal position of disabled children, their families and key professionals that work around them, with a specific focus on schools. First, we explore the ways in which disabled childhoods are imbricated with other forms of exclusion. Second, we consider the ways in which ‘disability’, ‘impairment’ and ‘child’ are consistently being reproduced in particular and often contradictory ways by disability discourses. Third, we consider the need to work with numerous forms of educational intervention that address the exclusion of disabled children. Fourth, we conclude with an appeal to develop disability studies in ways that build on the shoulders of (social model) greats – such as Len Barton – whilst being receptive to other transformative perspectives from queer, feminist and postcolonial studies.     

‘Neurodivergent literacies’: exploring autistic adults' ‘ruling passions’ and embracing neurodiversity through classroom literacies

The concept of neurodiversity has fuelled a social justice movement advocating for the rights of those whose lives diverge from a socially-constructed default. However, deficit understandings of disability persist in educational settings and neurodivergent people continue to face disadvantage and discrimination in organisations constructed on normative understandings of the world. Although New Literacy Studies is concerned with ideas of power, dominance and worth, there is a notable lack of work that connects NLS with issues of neurodiversity. In this paper, I introduce the term ‘neurodivergent literacies’ to propose a field of study that links the ideological model of literacy with the neurodiversity paradigm. From this starting point, I outline a project that examined literacies around what are often referred to as the ‘special interests’ of autistic people. Presenting data from interviews with 13 neurodivergent adults, related to school experiences and the literacies they engage with around their self-defined ‘ruling passions’, I make recommendations for literacies practitioners, arguing that schools need to do more to take account of difference and disability. By describing how ‘neurodivergent literacies’ can help teachers harness their own critical literacy skills to challenge deficit models of difference in the classroom, this paper illuminates how an understanding of neurodiversity is essential for anyone teaching and researching literacies with a commitment to social justice.     

Special educational needs: a public issue

This article explores the contribution of sociological scholarship to understanding and analysing the notions of ‘special educational needs’ and ‘disability’ and the ways in which the two notions have been reconfigured and theorised as ‘public issues’ rather than ‘personal troubles’. Barton's contribution is signified both in terms of his contribution to the evolution of the ‘sociological imagination’ – as a powerful theoretical tool for unravelling the highly political and contested nature of disability and special educational needs – and also in terms of his analysis of the emergence and development of sociological theorising in the field. The parochial obsession with deficit and medical‐oriented approaches to dealing with ‘difference’ and ‘need’ have been significantly challenged through the ‘sociological imagination’ aimed at pointing up the highly political and complex nature of disability and ‘special educational needs’. Times have changed and sociological theorising has evolved, but presumed ‘personal troubles’ are still not unequivocally conceptualised as being intertwined with, resting upon and emanating from ‘public issues’ embedded in the social, cultural and political edifice of educational, social and national communities. The ‘sociological imagination’ should be constantly invoked and deployed in order to expose and challenge the sophisticated ways in which individual pathology accounts and special educational imperatives re‐invent themselves through more inclusive linguistic veneers.     

Agency in the darkness: ‘fear of the unknown’, learning disability and teacher education for inclusion

This paper proposes inclusion phobia as a sharper and more operative definition of the ‘fear of the unknown’ often cited as an explanation for resistance to inclusive education. Using ‘severe and profound learning disability’ as the paradigm case, we situate the phobia surrounding this label in its social and historical context. Our hypothesis is that resistance to inclusion for this group is not rational but amounts to a thought disorder in a psychiatric sense. Using qualitative case studies of pre-service teachers on practicum and headteachers engaged in decisions about admissions, we demonstrate the workings and impact of inclusion phobia. We illustrate its trajectory from a general social dysfunction, to the systems that channel it to the individuals caught up in it. Our aim is to expose inclusion phobia so that, teacher educators, teachers and pre-service teachers might, in knowing it, find new ways to remedy it. In doing so, long standing resistance to inclusive education is made more tractable. We conclude with our own proposals for an anti-phobic curriculum for teacher education.     

Towards new understandings of learning disability

Abstract

This article highlights inherent difficulties in defining learning disability, particularly in South Africa. It traces the evolution of the category from ‘minimal brain damage’ through to the more current ‘learners with special educational needs’ and ‘learners with barriers to learning.’ Different definitions or attempts to describe the phenomenon ‘learning disability’ are reviewed. An overview of the current international research in the field is provided with particular reference to research that attempts to define learning disability. Much of this research is framed within the medical model, which has as its foundation positivism and empiricism. This results in research which is deficit-focused; in other words the focus is on pathology. A second reductionist model fragments the phenomenon of learning disability into discrete units, each of which is researched. It is suggested that, in re-thinking learning disability, the focus shifts away from the deficit, pathology based, reductionist focus currently held across disciplines.

The problem inherent in including the notion of ‘discrepancy between potential and performance’ in any definition is discussed, with particular reference to the measurement of ‘potential in South Africa's multicultural and multilingual learner population. The article ends with a proposal that there be a shift in focus to a panoptic view of the child: a view that takes in his strengths and talents. In so doing, the country may be better able to serve this growing population.

With the national shift towards inclusive education, there is a renewed focus on learners euphemistically called learners with special educational needs or the more ‘in vogue’ learners with barriers to learning. Yet what we mean when we bandy these terms about, how well we understand these learners, is questionable. The focus of this article is that sub-group of learners that educators and parents think are just not achieving as they should be achieving, despite themselves, that sub-group we identify as having ‘potential’ but not ‘performance’; that sub-group that we just cannot quite explain, we just cannot quite understand; that sub-group for whom support ranges from placement to pills to punishment!

This article critically evaluates the current understanding of the phenomenon of learning disability as it is understood in the South African context. It begins with an overview of the international research, with particular reference to the notion of definition. Thereafter, it makes comments on the term as it is used in South Africa. In conclusion, the article proposes the need for an alternative understanding of this group of learners.     

Breaking containment – the power of narrative knowing: countering silences within traditional special education research

Special education has been critiqued for not adequately acknowledging and therefore addressing the overrepresentation of students of colour assigned disability labels. To counter the paucity of information about the largest group of disabled students in urban settings, eight young adults labelled learning disabled (LD) co‐created ‘portraits in progress’. These social, cultural, and historical based narratives act as counter stories to traditional special education research located within a medical‐model paradigm that casts students as deficit‐based. Excerpts from these highly personal narratives reveal nuanced understandings of power dynamics pertaining to disability, race, and social class as each one shapes the experience of the others. Participants perceive their lives as a series of interlocking containments; for some, special education is one example.     

‘It's like being in a zoo.’ Researching with people with intellectual disability

This paper introduces key debates in the contemporary practice of disability research and examines how these apply to conceptualising, designing and conducting research with people with intellectual disability. Specifically, it describes a collaborative action‐oriented reflexive approach to researching the lived experience of people with intellectual disability in self‐advocacy, offering a ‘reflective reprocessing’ of the methodological traditions, decisions, complexities and inadequacies of approaches to researching with such people. Emphasis on mutuality and the co‐construction of research agendas, interpretative frames and meanings is a method that has rarely been seen in research practice in intellectual disability. The approach described enables a merging of the skills of the ‘researcher’ and the ‘researched’ to create a process of integrated inquiry and reflection. It promises the possibility of new forms of co‐produced social knowledge about intellectual disability and self‐advocacy, with explicitly emancipatory values and assumptions.     

The DisHuman child

ABSTRACT

In this paper, we consider the relationship between the human and disability; with specific focus on the lives of disabled children and young people. We begin with an analysis of the close relationship between ‘the disabled’ and ‘the freak’. We demonstrate that the historical markings of disability as object of curiosity and register of fear serve to render disabled children as non-human and monstrous. We then consider how the human has been constituted, particularly in the periods of modernity and the rise of capitalism, reliant upon the naming of disability as antithetical to all that counts as human. In order to find a place for disabled children in a social and cultural context that has historically denied their humanity and cast them as monstrous others, we develop the theoretical notion of the DisHuman: a bifurcated complex that allows us recognise their humanity whilst also celebrating the ways in which disabled children reframe what it means to be human. We suggest that the lives of disabled children and young people demand us to think in ways that affirm the inherent humanness in their lives but also allow us to consider their disruptive potential: this is our DisHuman child. We draw on our research projects to explore three sites where the DisHuman child emerges in moments where sameness and difference, monstrosity/disability and humanity are invoked simultaneously. We explore three locations – (i) DisDevelopment; (ii) DisFamily and (iii) DisSexuality – illuminating the ways in which the DisHuman child seeks nuanced, politicized and complicating forms of humanity.     

Critical psychologies of disability: boundaries,borders and bodies in the lives of disabled children

Attending to the ways in which bodies and subjectivities are constituted in social environments is not simply a concern of social geographers but an emerging interest in critical psychology, childhood and disability studies. Boundaries and borders are nothing if not the different relational and durational articulations of bodies and spaces. These entangled boundaries include borders between parent and child; culture and body; school, family and child. Through analysing the ways in which these borderlines are continually re-composed and re-constituted, we are able to reveal their relational and embodied articulations. In previous works, we have explored the ways in which disabled children disrupt normative orders associated with school, family and community. In this paper, we take up the concepts of boundaries and borders to explore their relational and embodied articulations with specific reference to stories collected as part of an ESRC project entitled ‘Does every child matter, Post-Blair: the interconnections of disabled childhoods’. We ask, how do disabled children negotiate space in their lives? In what ways do they challenge space through their borders and boundaries with others? How can we re-imagine, re-think and differently practice – that is revolutionise – key borders and boundaries of education in ways that affirm the lives of disabled children? We address these questions through reference to the narrative from the Derbyshire family, with particular focus on Hannah and her mother Linda, which we argue allow us to consider the ways in which disabled childhoods can be understood and reimagined. We explore two analytical considerations; ‘Being disabled: being mugged’ and ‘Becoming enabled: teacups, saucers and communities’.     

对Michael Olive的社会模式残疾观的解读与反思

残疾观对残疾的定义、残疾人应获得的资源以及残疾人的自我认同等方面均起到了重要的作用,它深刻影响了残疾人的生活及社会对他们的态度和反应。随着20世纪80年代残疾人运动的开展,社会模式残疾观受到相关专业人员的广泛关注,并使得学术界对此展开了热烈的讨论。文章阐述了社会模式残疾观的缘起及核心观点,对该模式下的残疾观进行解读和反思,以期为残疾观的研究提供一点思考,促进更多学者对残疾观进行深入系统的研究。     

The (be)comings and goings of ‘developmental disabilities’: the cultural politics of ‘impairment’

Disability should be a concern for those interested in analysing and subverting the cultural politics of education. In this paper we address this concern through connecting critical analyses of ‘developmental disabilities’ (formerly ‘mental retardation’), disability studies and poststructuralism. We target normative constructions of ‘developmental disabilities’ – and we propose alternative dynamic possibilities – through reference to narratives from our political and personal work with people with the label of ‘developmental disabilities’. Our aim is to unveil the ways in which we might understand the cultural formations of ‘impairment’ – as they relate to ‘developmental disabilities’ – in order to propel scholars, activists and practitioners towards a cultural politics of inclusion. First, we summarise some key debates from disability studies that have engaged with ‘impairment’: social model, relational and psychosocial models. We suggest that these debates benefit from a more grounded engagement with poststructuralist ideas. Second, we bring in the work of the poststructuralist thinkers Gilles Deleuze and Félix Guattari and the poststructuralist feminist Rosi Braidotti to tackle the social, historical, cultural and political conditions of ‘developmental disabilities’ through experimentation with rhizomes and nomads. In conclusion, we appeal for the development of a cultural politics of ‘impairment’ and ‘developmental disabilities’ that draws upon a vocabulary applicable to the post-modern subject of the contemporary world: as uncertain, productive and moveable.     

Extending the Ally Model of Social Justice to Social Work Pedagogy

Social work students, regardless of their multiple social identities in oppressed and oppressor groups, are called upon to take action against social injustice. This conceptual article introduces the Ally Model of social justice and its alignment with social work values and goals and recommends it to social work educators as a pedagogical tool to use when teaching about oppression, differentness, and privilege. It presents the literature on the model and its characteristics through the social work lens of awareness/knowledge, attitudes/beliefs/feelings, and actions/skills. It also provides limitations of the model and observations of students’ responses, based on their identities, that may act as barriers when learning about oppression and privilege. Finally, recommendations for the implementation of the model across the curriculum are offered.     

Impact of Mainstreaming and Disability Visibility on Social Representations of Disability and Otherness Held by Junior High School Pupils

The present study sought to gauge the impact of integrating pupils with disabilities in ordinary schools on the social representations of disability and otherness held by their classmates. In particular, we studied the effects of the disability’s visibility—a visible disability (i.e., cerebral palsy) versus a non-visible disability (i.e., severe learning difficulties)—and of “integration experience” (belonging to a class that may or may not include a pupil with a disability). Results showed that pupils shared the same representation of disability, made up mainly of pathological features. Disability also lay at the core of their representation of otherness, which was both rich and diversified. The peripheral components of these representations varied according to the participants’ experiences in the classroom and the visibility of the disability.     

An interview study of why parents conduct intensive ABA home training for their child with autism spectrum disorder. An analysis from the lens of the dialectical disability model

The number of parents undertaking an intensive home training programme of children with disabilities (e.g. Applied Behavioural Analysis) has increased. It reveals a paradox in current disability research and policies. On the one hand, policies in general are aimed at inclusion through movement of social barriers for participation, grounded in the social model of disability. On the other hand, intensive home training is based on the aim of rehabilitation through intensive training of individual cognitive and social skills, an approach grounded in a bio-medical model. Intensive home training programmes are supported by political legislation that enables parents to partake the training and hire the necessary helpers. How is this paradox viewed from the perspective of the parents? From the departure of the dialectical model of disability – and its central concepts of developmental incongruence, developmental time and social agency – two mothers practising home training with their children with autism disorder were interviewed about their motives for home training and subsequent experience with their child. Results showed that the motive to home training was to create a local congruence that allowed the child to thrive. Intensive home training also restored the mothers’ sense of agency vis-à-vis their child’s development. However, home training might not abolish the need for adaptations of the child’s social practices outside the family. It is discussed how societal support to home training risks to hinder higher order reorganisation of developmental opportunities that are necessary to actualise policy statements of inclusion.     

Higher education experiences of elite student-para-athletes in the UK

This article presents the narrative accounts of six elite student-para-athletes attending higher education full time in the UK. Whilst literature concerning the student-athlete population in the UK is growing, there is no research at present that brings to the fore the voices of student-athletes who represent their country in Paralympic sports. In addition, research concerning the experiences of higher education students with disabilities in the UK is heavily concerned with the experience of learning as opposed to the more nuanced experiences of ‘being’ a university student. Accounts concerning the lived experience of higher education were gathered via semi-structured interviews and analysed through a process of interpretative phenomenological analysis producing an intricate, intimate and personal theme for each participant. Analysed and presented as individual case studies, the research demonstrates the uniqueness of experience despite the existence of common and shared life environments. The accounts explore three life-worlds – university, elite sport and disability – and expose the difference in meaning-making by each participant to the identities of ‘athlete’, ‘student’ and ‘disabled’, specifically within the context of higher education. The accounts are presented as three themes that illuminate the contrast in experience: (1) university as a normative and positive experience; (2) university as a disappointing and hindering experience; and (3) university as an experience of personal salvation and purpose. Findings are mapped to the social-relational model of disability to better understand the relationship between individual perception, impairment and environment.     

Parental Explanatory Models of Child’s Intellectual Disability: a Q Methodology Study

This study with families caring for an individual with an intellectual disability in a mid-sized Indian city explored the diverse explanatory models that parents constructed of causes, preferred treatment approaches and perceived social effects of their child’s intellectual disability. Seventeen mothers and three fathers rank ordered 48 disability related statements and participated in a qualitative interview. The intercorrelations and factor analysis of participant sorts helped to generate three parental explanatory models which were named religious resilience, in search of treatment and social change, and it is a burden to bear. The three models extracted 23%, 20% and 9% variance respectively. Interpretations based on factor arrays, consensus and differentiating statements, and qualitative interviews indicated that the first explanatory model utilised religion and spirituality to positively frame their child’s intellectual disability. The second explanatory model rejected religious notions and did not dwell on the cause of disability, but rather focused on optimal rehabilitation of individuals with an intellectual disability. The third model was characterised by maladaptive religious attributions and rehabilitation approaches.     

Social Competence and Temperament in Children with Chronic Orthopaedic Disability

The aim of the study was to investigate social competence in children with orthopaedic disability and its concurrent relations to child’s temperament, health condition, and maternal warmth. Participants were 68 Turkish children (mean = 5.94 years) with chronic orthopaedic disability and their mothers coming from disadvantaged backgrounds. Mother ratings were used to measure social competence, temperament, general health condition, and parental warmth. The attending physician rated the severity of orthopaedic disability. Attentional focusing, emotional reactivity, and child’s sex significantly predicted social competence. Age at first operation was slightly negatively associated with reactivity. The findings revealed the importance of emotional and attentional regulation for social functioning in children with orthopaedic disability, and pointed to the susceptibility of reactivity to environmental conditions. The study suggested that social functioning of youth with orthopaedic disability might benefit from temperament-based intervention and prevention programmes.