Development in Children With Down Syndrome: facts,findings, the future

This broad overview of progress in our understanding of Down syndrome and of the problems it presents for children affected by it was prompted by the occasion of the 20th Anniversary of the Down Syndrome Research Program at the Fred and Eleanor Schonell Special Education Research Centre, The University of Queensland. This internationally‐acclaimed program has focused on many aspects of development in Down syndrome and on how Down syndrome impacts on the lives of children and their families. Some of the many contributions the Schonell team have made to our knowledge of Down syndrome are covered in other papers in this special issue and will also be mentioned below. In evaluating the role of this work, however, it is important to put it into context. This paper therefore provides a brief‐‐and necessarily selective‐‐ account of some past and present findings from research into Down syndrome and makes some tentative suggestions as to what may be important avenues of investigation for the next generation of researchers.     

Stress in Families of Young Children with Down Syndrome,Williams Syndrome,and Smith-Magenis Syndrome

This study examined whether stress levels differ in families of young children with three different genetic etiologies of mental retardation, and whether child characteristics associated with those genetic etiologies may help explain these differences. Participants were sixty families of young children with Down syndrome, Williams syndrome, and Smith-Magenis syndrome. All children were between the ages of 3 and 10 years. Parents completed Achenbach's Child Behavior Checklist, the Questionnaire on Resources and Stress-Friedrich edition, and a demographic questionnaire. Families of children with Down syndrome experienced significantly less Pessimism than the other two etiology groups and significantly less Parent and Family Problems than families of children with Smith-Magenis syndrome. The strongest predictor of Parent and Family Problems was maladaptive behavior in Smith-Magenis syndrome, younger age in Down syndrome, and both maladaptive behavior and younger age in Williams syndrome. Maladaptive behavior predicted Pessimism in families of children with Smith-Magenis syndrome, but none of the variables examined significantly predicted Pessimism in the other two syndromes. The importance of behavioral phenotype research is discussed for practitioners working with young children with mental retardation and their families.     

Stress in Families of Young Children with Down Syndrome, Williams Syndrome, and Smith-Magenis Syndrome

This study examined whether stress levels differ in families of young children with three different genetic etiologies of mental retardation, and whether child characteristics associated with those genetic etiologies may help explain these differences. Participants were sixty families of young children with Down syndrome, Williams syndrome, and Smith-Magenis syndrome. All children were between the ages of 3 and 10 years. Parents completed Achenbach's Child Behavior Checklist, the Questionnaire on Resources and Stress-Friedrich edition, and a demographic questionnaire. Families of children with Down syndrome experienced significantly less Pessimism than the other two etiology groups and significantly less Parent and Family Problems than families of children with Smith-Magenis syndrome. The strongest predictor of Parent and Family Problems was maladaptive behavior in Smith-Magenis syndrome, younger age in Down syndrome, and both maladaptive behavior and younger age in Williams syndrome. Maladaptive behavior predicted Pessimism in families of children with Smith-Magenis syndrome, but none of the variables examined significantly predicted Pessimism in the other two syndromes. The importance of behavioral phenotype research is discussed for practitioners working with young children with mental retardation and their families.     

Predictors of Spelling Ability in Children With Down Syndrome

This study examined whether there are processing differences between children with Down syndrome (DS; n = 22; 7 years 8 months to 13 years 10 months) and typically developing children (TD; n = 22; 6 years 6 months to 10 years 10 months), matched for receptive vocabulary. The TD children performed better on tests of nonverbal intelligence (matrices), phonological awareness (sound deletion), and phonological short-term memory (digit span), as well as spelling accuracy (30 single words). Separate regression analyses revealed that nonverbal intelligence and phonological awareness were the best predictors of spelling accuracy for TD children, whereas receptive vocabulary and phonological short-term memory were the best predictors for children with DS. An examination of spelling errors suggested that although children with DS do use some phonological awareness during spelling, deficits in short-term memory appear to limit success. The implications of these results for intervention studies are briefly discussed.     

Using Total Communication With Young Children With Down Syndrome: A Literature Review and Case Study

This paper presents a literature review regarding language abilities of children with Down syndrome and presents a case study concerning the effectiveness of using Total Communication with a young child with Down syndrome. The prevalence of expressive language delays in children with Down syndrome highlights the need to develop early interventions to promote language development. The existing literature on the usefulness of Total Communication as an intervention method with children and adults with special needs is documented and a rationale for the use of Total Communication with children with Down syndrome is presented. In the case study, a single subject simultaneous treatment design was used which involved introducing 20 words during free play (10 oral and 10 Total Communication), which were matched on phonetic complexity and reinforcement value. Results indicated that comprehension was not differentially affected by the type of communication approach used. However, expressively the child was able to use manual signs many months before any understandable words were produced. The use of manual signs did not inhibit use of speech. The results of this case study suggest that the early use of Total Communication can be an effective transitional mode of communication for at least some children with Down syndrome. Further research is needed to explore individual differences between children with Down syndrome and to identify factors that predict those children who benefit most from the use of Total Communication.     

Using Total Communication With Young Children With Down Syndrome: A Literature Review and Case Study

This paper presents a literature review regarding language abilities of children with Down syndrome and presents a case study concerning the effectiveness of using Total Communication with a young child with Down syndrome. The prevalence of expressive language delays in children with Down syndrome highlights the need to develop early interventions to promote language development. The existing literature on the usefulness of Total Communication as an intervention method with children and adults with special needs is documented and a rationale for the use of Total Communication with children with Down syndrome is presented. In the case study, a single subject simultaneous treatment design was used which involved introducing 20 words during free play (10 oral and 10 Total Communication), which were matched on phonetic complexity and reinforcement value. Results indicated that comprehension was not differentially affected by the type of communication approach used. However, expressively the child was able to use manual signs many months before any understandable words were produced. The use of manual signs did not inhibit use of speech. The results of this case study suggest that the early use of Total Communication can be an effective transitional mode of communication for at least some children with Down syndrome. Further research is needed to explore individual differences between children with Down syndrome and to identify factors that predict those children who benefit most from the use of Total Communication.     

Early Intervention,Families, and Adolescents With Down Syndrome

Developmental assessments are reported for two cohorts of Brisbane children with Down syndrome at chronological ages from 11 to 14 years. Cohort 1 was born during 1973 to 1974 while Cohort 2 was born from May 1976 to December 1978. These cohorts provided an opportunity of studying the long‐term effects of early intervention as a history‐graded influence on development; one cohort was born before early intervention became widely available whereas by the time the other children were born, a variety of programs were being offered children with disabilities. No significant cohort differences were found in MA at 11 years, 12 years and 14 years CA, in non‐verbal scores at 11 years and 12 years CA, or in adaptive behaviour scores near 13 years CA. There was no evidence of a final plateau in MA. When the cohorts were divided on the basis of early intervention commencement age, frequency and duration of attendance, there were again no group differences. SES, mothers’ education, and gender were significant predictors of MA but gender did not add significantly to non‐verbal scores. Cognitive function was strongly associated with adaptive behaviours. It was concluded that early intervention studies need to investigate social disadvantage and biological impairment not only as separate issues, but as a combination of the two. There is also a continuing need to identify the specific elements associated with SES and maternal education that influence development in children.     

Change in Family Income-to-Needs Matters More for Children with Less

Hierarchical linear modeling was used to model the dynamics of family income-to-needs for participants of the National Institute of Child Health and Human Development Study of Early Child Care (N = 1,364) from the time that children were 1 through 36 months of age. Associations between change in income-to-needs and 36-month child outcomes (i.e., school readiness, receptive language, expressive language, positive social behavior, and behavior problems) were examined. Although change in income-to-needs proved to be of little importance for children from nonpoor families, it proved to be of great importance for children from poor families. For children in poverty, decreases in income-to-needs were associated with worse outcomes and increases were associated with better outcomes. In fact, when children from poor families experienced increases in income-to-needs that were at least 1 SD above the mean change for poor families, they displayed outcomes similar to their nonpoor peers. The practical importance and policy implications of these findings are discussed.     

Sleep Disturbance and Expressive Language Development in Preschool‐Age Children With Down Syndrome

Recent evidence has suggested that sleep may facilitate language learning. This study examined variation in language ability in 29 toddlers with Down syndrome (DS) in relation to levels of sleep disruption. Toddlers with DS and poor sleep (66%, n = 19) showed greater deficits on parent‐reported and objective measures of language, including vocabulary and syntax. Correlations between sleep and language were found in groups with equivalent medical and social backgrounds and after control for relevant behavioral comorbidities, including autism symptoms. These results emphasize the important role of quality sleep in all children's expressive language development, and may help increase our understanding of the etiology of language deficits in developmental disorders, potentially leading to new treatment approaches.     

Behaviour Problems in the Siblings of Children With Down Syndrome: associations with family responsibilities and parental stress

Forty‐five families with a child with Down syndrome and 88 comparison families provided information about their children's behaviour problems and their involvement in household tasks. In addition, parental stress was measured using the Parenting domain of the Parenting Stress Index (Abidin, 1990). There were no differences between the siblings of a child with Down syndrome and comparison children on mothers’ or fathers’ reports of problem behaviour. Siblings of a child with Down syndrome also did not differ in their contribution to family tasks, however, for the brothers of a child with Down syndrome there were significant negative correlations between household tasks and behaviour problems on fathers’ report. Parents of a child with Down syndrome reported more stress than comparison parents and stress was related to reports of problem behaviour for some parent groups.     

Subitisation in Number Tasks in Children with Down Syndrome

ABSTRACT

This paper presents results from the development of a sequence for teaching/learning number concepts for children with Down syndrome that is adapted to their cognitive characteristics and to certain traits of their executive functioning. The mathematical objective is to promote subitising during the initial number learning in order to develop cardinality, composition-decomposition and number facts. We outline activities with different materials and resources, supported by the use of augmentative communication. We present the results of a case study involving two children with Down syndrome (7 and 8 years of age) who followed the proposed intervention for one academic year. The results indicated a different tendency when using the subitising strategy in both children and also depended on the physical arrangement of the objects to be counted. The benefits found were the children’s flexibility in using subitising and counting in numerical activities and the spontaneous use of augmentative communication.     

欲速则不达--浅谈近代中西文化交流的超前现象

在近代,先进的中国人为了振兴中华,从西方引进了大量的思想武器.其间,在文化思潮上形成了超前现象,此种情况令人深思.笔者欲对此作一初步探讨,探讨其出现的原因,兼与文化上的保守现象相比照,从而对文化交流进行简单的反思.     

学前残疾儿童父母亲职压力现状、特点及影响因素

采用《学前残疾儿童父母亲职压力反应问卷》、《学前残疾儿童父母亲职压力源问卷》对北京市152名学前残疾儿童家长、152名学前普通儿童家长进行测评。研究结果表明,学前残疾儿童父母亲职压力反应处于较高水平并显著高于学前普通儿童父母(t=17.348,P<0.001);学前残疾儿童父母亲职压力水平在性别、户籍地和户籍性质、儿童残疾类型因素上存在显著差异;亲职压力源中儿童问题(β=0.215,P<0.001)、父母特质(β=0.479,P<0.001)、和家庭情境(β=0.148,P<0.05)能够显著预测亲职反应压力的变异,解释率为45.9%。     

Developmental Attainment of Infants and Young Children with Down Syndrome

INFANTS and young children with Down syndrome who were living at home and attending exemplary early intervention programs were assessed by trained examiners in the five domains of the Battelle Developmental Inventory. Data was compared to the 50th percentile attainment and found that infants and young children with Down syndrome are more similar to other children in Personal Social and Adaptive Domains and less similar in Communication and Cognitive Domains. These differences begin to show more dramatically as the child reaches the age of 36 months. The older the child the greater the measured differences. Documenting and understanding this uneven developmental path is significant in program planning.     

Family Influences on Adaptive Development in Young Children with Down Syndrome

In this study we investigated the extent to which the family environment predicted differences in trajectories of adaptive development in young children with Down syndrome. The sample was comprised of 54 children with Down syndrome and their families who were studied from infancy through the age of 5 years as part of a longitudinal study of children with disabilities. Hierarchical linear modeling (HLM) was used to estimate the parameters of hierarchical growth models in domains of adaptive development. Results indicated that growth in communication, daily living skills, and socialization domains were predicted by measures of the family environment (i.e., family cohesion and mother-child interaction) above and beyond that predicted by maternal education. Further, Bayley MDI measures during infancy did not predict changes in adaptive development in any of the domains. The results are discussed in terms of implications for service provision and for expanding theoretical frameworks to include the development of children with disabilities.     

Discriminating Quantity: New Points for Teaching Children with Down Syndrome About Number?

ABSTRACT

The focus of much mathematics teaching has been on the acquisition of counting, an area where children with Down syndrome can experience particular difficulties. Research with typically developing children has highlighted how early awareness of quantity provides a strong platform for the acquisition of later mathematical skills and programmes of early intervention have been introduced. Many of these studies are embedded in the work and traditions of developmental and cognitive psychology and can be difficult to access. Consequently, this is an area that has been largely ignored in the curricula of children with Down syndrome. This paper seeks to make this literature more available. It systematically reviews previous research with children with Down Syndrome on these early foundations. It considers seemingly contradictory findings in the light of differences in tasks, their presentation and instructions, and the responses required, in order to draw conclusions and reflect on the implications for teaching and learning. Some of these propositions are in contrast to existing practices and call for further research to test their effectiveness.     

Goal-Directed Behavior in Children with Down Syndrome: The Role of Joint Play Situations

Children's goal-directed behaviors were examined in independent play sessions before and after a joint-play interaction with their mothers for a group of children with Down syndrome (n = 22) and a control group of mental and language age matched typically developing children (n = 24). While both groups showed comparable amounts of time spent in independent goal-directed play during the pre session and similar play responses with their mothers during the joint play session, only the control children significantly increased their goal-directed behavior from the pre to the post session. Maternal behaviors that provided information about how to use the toy predicted increases from the pre to post sessions in independent goal-directed play but only for the control children. These findings suggest that children with Down syndrome may have more difficulty transferring the goal-directed play behaviors they can use with support from their mothers to an independent play situation. Findings are discussed in relation to early education program design for children with Down syndrome.     

Goal-Directed Behavior in Children with Down Syndrome: The Role of Joint Play Situations

Children's goal-directed behaviors were examined in independent play sessions before and after a joint-play interaction with their mothers for a group of children with Down syndrome (n = 22) and a control group of mental and language age matched typically developing children (n = 24). While both groups showed comparable amounts of time spent in independent goal-directed play during the pre session and similar play responses with their mothers during the joint play session, only the control children significantly increased their goal-directed behavior from the pre to the post session. Maternal behaviors that provided information about how to use the toy predicted increases from the pre to post sessions in independent goal-directed play but only for the control children. These findings suggest that children with Down syndrome may have more difficulty transferring the goal-directed play behaviors they can use with support from their mothers to an independent play situation. Findings are discussed in relation to early education program design for children with Down syndrome.     

Write More,Grade Less: Five Practices for Effectively Grading Writing

This article describes five practices for effectively grading writing that demystify the grading process and focus on students, writing more and faculty grading less.     

Critical Race Parenting: Understanding Scholarship/Activism in Parenting Our Children

Parenting is often discussed in the field of education, but frequently in terms of family or community deficiency, rather than strengths (Bonilla Silva, 2006; Few, 2007), particularly when communities of color are being examined. In this conceptual article, we advocate for the use of critical race theory (CRT) in discussions of parenting and utilize counterstorytelling to validate the lived experiences of parents like ourselves, who are critical race scholars as well as mothers of children of color. Our counterstories will be embedded throughout the discussion as a way to highlight the relationships between academic research and lived experience. Through reviews of academic research and counterstorytelling, we explain the relevance of critical race parenting and the ways in which the inclusion of CRT can support more historically situated, contextual, and complex engagements with the interplay between race and parenting of children of color.