Increasing the Involvement of People with an Intellectual Disability in Choice Making Situations: A Practical Approach

This paper describes a participant observation approach to exploring choice making by people with an intellectual disability in three different home settings‐‐a private family home, a community group home and an independent living situation. It identifies some of the factors which affect choice making, including experience at making choices, routines, the role of support people, and communication. The paper illustrates these factors with examples from the different settings. Finally, it provides practical suggestions for service providers to increase the involvement of people with an intellectual disability in choice making situations.     

An Initial Evaluation of the Comprehensive Quality of Life Scale‐‐Intellectual Disability

This paper introduces a new scale to measure the life quality of people with an intellectual disability. The Comprehensive Quality of Life Scale‐‐Intellectual Disability incorporates features that reflect contemporary understanding of the quality of life construct and exists in a parallel form for the general population. Psychometric data are presented and comparisons are made between data collected from 59 people with an intellectual disability, the vicarious responses of each respondent's primary caregiver, and 69 university students. It is concluded that the scale represents a useful instrument to measure comparative life quality.     

Special Education Policy for Learners with Mild Intellectual Disability in New Zealand: Problems and Issues

Current policy developments are intended to broaden the group of children receiving special education provisions traditionally reserved for those with mild intellectual disability. A definite policy has been formulated to close special classes and the use of individualized intelligence testing has been largely discontinued as a basis for establishing special educational need‐‐thus ostensibly providing greater flexibility for service allocation. The term “backward” (the traditional term for mild intellectual disability in New Zealand) has been rejected, and children with mild intellectual disability are now included in a new category “children with educational and social difficulties"‐‐a category which also includes children with specific learning difficulties, those with mild sensory disabilities, and those with mild emotional/behavioural difficulties. It is argued that available resources are grossly insufficient to provide high quality special educational services for all “children with educational and social difficulties,” that the decision to close special classes represents a premature and unsound reduction in the range of options available to children with mild intellectual disability, and that research into the effects of current policies on the lives of learners with mild intellectual disability and their families is urgently required but will now be very difficult to undertake.     

Parent stress and satisfaction with early intervention services for children with disabilities – a longitudinal study from Germany

This study assessed parent–child and family-related stress at two points of time and analysed relationships between stress, child and family characteristics and parent satisfaction with early intervention services. In Germany, 125 parents of young children with intellectual disabilities, hearing impairment or visual impairment responded to a questionnaire. Eighty-seven parents agreed to participate in the second survey. Results indicated that (a) perceived parenting competence is associated with general self-efficacy and satisfaction with professional support, (b) parent–child interactional stress increased with time, specifically in families with children with intellectual disability or visual impairment, (c) the level of satisfaction with amount and quality of family support was low in a considerable subgroup of parents, (d) regression analyses support predictive relationships among parent–child stress, family-related stress, perceived parenting competence and satisfaction with early intervention services.     

Living with Children with an Intellectual Disability: Parents Construct their Reality

This paper reports a study that adopted an interpretivist paradigm as a basis for parents and researchers to co‐create a discourse that outlines life experiences as they relate to parenting a child with an intellectual disability. Repertory grid methodology was employed to inform the process of discourse development. A model of the five interrelated systems of events or issues that impinge upon the perceptions of parents of children with an intellectual disability is proposed. In addition, details about the group's perceptions of those environmental events or issues that are pertinent to living with and caring for a child with an intellectual disability are reported.     

The Origins of Parenting Stress During the Transition to Parenthood: A New Family Model

This paper describes the origins of parenting stress, defined both as tensions in the parent–child relationship and as broader changes in five family domains as men and women make the transition from couple to family life. Despite significant change in their average level of functioning, parents show continuity in their level of adaptation from pregnancy through the first five years of parenthood. Parenting stress emerges from the context of parents' individual and marital adaptation before the child is born. It is possible to identify expectant parents who are at risk for later parenting stress and lower well-being across employment and family domains. Path analyses show that men's and women's prior well-being and their involvement in paid work during pregnancy are associated with higher parenting stress—and lower self-esteem, marital satisfaction, family work satisfaction, and job satisfaction—two years later when their babies are 18months old. Stress in the parent–child relationship at 18 months postpartum compounds preexisting stress in other family domains to reduce well-being in other aspects of family life. Links among parenting stress, parenting quality, and children's adaptation to school lead to suggestions for preventive interventions early in the family life cycle.     

Evaluating Circle Time as a support to social skills development – reflections on a journey in school-based research

The authors of this article argue that deficit in socially skilled behaviour is often one of the distinguishing characteristics that sets people with intellectual disability apart from their non-disabled peers. The need for social skills training to take place within the context of real life daily situations has been emphasised in more recent literature as essential in enabling people with an intellectual disability to generalise new skills. The researchers involved in this study, Catherine Canney, a senior educational psychologist, and Alison Byrne, a senior speech and language therapist, both work in a school for children with mild intellectual disability in Ireland as part of a multidisciplinary team. Analysis of teachers' referrals to the team indicated a significant and ongoing need for supporting social skills development among the students.
The purpose of this study was to investigate the merits of Circle Time as a classroom intervention aimed at improving the social skills of students with a mild intellectual disability. The research is presented here as an evaluative case study reflecting this experience. Organisational and interactional issues arising are presented and discussed with the intention of supporting those involved in facilitating Circle Time with children who have special educational needs. The authors also identify avenues for future research.     

Effects of Video Feedback on Social Behaviour of Young People with Mild Intellectual Disability and Staff Responses

The present study evaluates the effects of a multifaceted training procedure on the inappropriate and appropriate social behaviour of young people with mild intellectual disability and on staff responses. The training package included youth training with video feedback and self-management procedures and staff training with video and graphic feedback. The data were collected using a reversal baseline design. The results showed an increase in the occurrence of appropriate behaviour on the part of young people with mild intellectual disability. Inconsistent changes were found for inappropriate social behaviour. The provision of video and graphic feedback successfully modified the performance of direct-care staff members. Recommendations are made for further research on factors related to behaviour change in staff and young people with intellectual disability.     

Early Years Parenting Mediates Early Adversity Effects on Problem Behaviors in Intellectual Disability

A family developmental framework was applied to data from families of children with intellectual disabilities to understand the role of parenting in the path from early adversity to problem behaviors in mid-childhood. Data from 9 months to 11 years tested the Family Stress Model in families of 555 children. Adversarial parenting between 3 and 5 years mediated the path from early adversity (family poverty and maternal psychological distress at nine months) to problem behaviors at 7 and 11 years. Positive parent–child relationship only mediated the path to conduct problems. Multiple mediation was not present. Early adversity impacts both positive parent–child relationship and adversarial parenting between three and five, but the latter is crucial for problem behaviors in mid-childhood.     

学习障碍的教育学意义探讨

正确认识学习障碍,不仅是教育学理论的需要,同时也是现代教育现实的需要,更是学习障碍者的需要。只有在教育领域正确认识学习障碍,推广和普及学习障碍的相关知识,对教师进行专业训练,才能促进和改善学习障碍者的学习和生活现状,帮助他们解决实际问题,真正实现教育的根本目标。     

Relationship between Africentric Worldview and Psychological Distress among Ghanaian Mothers of Children with Intellectual Disability

This study examined the relationship between an Africentric worldview and psychological distress among 55 Ghanaian mothers of children with intellectual disability. The study hypothesized the protective effects of an Africentric worldview on psychological distress, and their association with parenting stress. Results showed that an Africentric worldview was negatively associated with psychological distress and parenting stress, and that parenting stress was positively related to psychological distress. Further hierarchical regression analysis showed that an Africentric worldview did not moderate the relationship between parenting stress and psychological distress. However, parenting stress mediated the relationship between an Africentric worldview and psychological distress. These findings reveal the positive influence of an Africentric worldview on psychological functioning of mothers of children with intellectual disability. Additionally, the findings underscore the need to develop culturally relevant interventions to help improve the well-being of mothers of children with intellectual disability. Implications for clinical and counselling practice are discussed.     

Intellectual Disability and Developmental Risk: Promoting Intervention to Improve Child and Family Well‐Being

Initial intervention processes for children with intellectual disabilities (IDs) largely focused on direct efforts to impact core cognitive and academic deficits associated with the diagnosis. Recent research on risk processes in families of children with ID, however, has influenced new developmental system approaches to early intervention. Recent risk and resilience processes are reviewed that connect stress, family process, and the high rates of behavioral problems in children with ID that have substantial influence on child and family outcomes. These models are linked to emerging evidence‐based intervention processes that focus on strategic parent skill training and mindfulness interventions that reduce parental stress and create indirect benefits for children's behavioral competencies. A family‐focused developmental systems approach (M. J. Guralnick, 2011) is emphasized.     

The role of mental health factors and program engagement in the effectiveness of a preventive parenting program for Head Start mothers

Head Start centers were randomly assigned to intervention (parent training) or control conditions, and the role of maternal mental health risk factors on participation in and benefit from parent training was examined. Parenting was measured by parent report and independent observation in 3 domains: harsh/negative, supportive/positive, inconsistent/ineffective parenting. Structural equation modeling showed that parent engagement training was associated with improved parenting in a dose-response fashion. Mothers with mental health risk factors (i.e., depression, anger, history of abuse as a child, and substance abuse) exhibited poorer parenting than mothers without these risk factors. However, mothers with risk factors were engaged in and benefited from the parenting training program at levels that were comparable to mothers without these risk factors.     

How students with intellectual disabilities experience learning in one Irish university

Over the last number of years, opportunities to learn in higher education for people with intellectual disabilities have increased. Consequently, this subgroup of students is gradually becoming part of an increasingly diverse college community. Because learning varies across different individual cultures and systems of higher education, our current understandings of how students with intellectual disabilities learn are inadequate. This study set out to explore how people with intellectual disabilities learn in one Irish college. Eighteen students with intellectual disabilities were asked to make a drawing of how they understood learning and were interviewed by six of their peers who trained as co-researchers. The findings indicate that the learning experiences of these students are as complex and as multifaceted as any other college student. A model that captures this learning is presented using four categories: the Cognitive Stages of Learning, Self-regulation of Learning, Learning as Collective Meaning Making and the Supportive Environment and Learning. The learning potential for people with intellectual disabilities presented in this paper goes some way to addressing preconceived notions associated with the label of intellectual disability.     

Inclusive education and intellectual disability: a sociological engagement with Martha Nussbaum

As a result of exclusionary tactics, social, cultural or economic disadvantage or disability, vast numbers of pupils have poor educational experiences and are either marginalised or demonised due to ‘difficult differences’. In the context of Martha Nussbaum's capabilities approach, where she suggests that we ought to be who we want to be, this paper addresses intellectual disability, inclusion and inclusive education. It proposes that care, compassion, creativity and ethics are critical in understanding the education for all children and young people, rather than necessarily pedagogical process. In addition, it suggests that learning should take place within and through relationships and that these relationships are important in developing a healthy sense of self. Therefore politically, rather than following a path of blame whether it is the dysfunctional family, the deficit child or the economically deprived nation, this paper says that we require socially just practices, compassion and care as fundamental to human development, social inclusion and inclusive education. Ultimately, education is failing a large sum of children and young people and therefore needs to be radically reconsidered.     

The role of parental expectations in understanding social and academic well-being among children with disabilities in Ireland

This paper draws on longitudinal data to examine the extent to which parents’ educational expectations shape academic development and changes in self-concept among young people with different types of disability. The analysis is based on the Growing Up in Ireland longitudinal study, which tracked 7423 children between the primary to secondary school years, 21% of whom were identified with one of four main disability types. Our conceptual framework assumes that parental expectations at age 9 will be influenced by both the child’s disability and child’s academic achievement at that stage, as well as being influenced by other factors such as parent’s own education, family economic vulnerability, family relationships and family structure. Therefore, we take these factors into account in tracing the consequences of parental expectations at age 9, on academic and social outcomes at age 13 after the transition to secondary education. Among young people with a disability, poorer self-concept at age 13 is partly explained by lower parental expectations, particularly for those with general learning and emotional/behavioural disabilities. Similarly, parental expectations are a significant influence on children’s academic outcomes and partly explain the effects of disability status on academic development. Parents’ beliefs about their children’s abilities have a strong influence on achievement and self-concept, raising important issues around the need to promote equality of opportunity, raising awareness of the educational opportunities available, promoting positive expectations and engagement with school and the importance of promoting a range of opportunities for achievement.     

Systematic reading training in the family: Development,implementation, and initial evaluation of the Berlin Parent–Child Reading Program

Drawing on knowledge about the development of reading comprehension, and empirical insights into the effects of training on students' learning strategies and reading-related metacognition, we developed a parent–child reading program for implementation in the home environment. The results of this first quasi-experimental evaluation study indicate that it is generally possible to implement a program of this kind within the family setting, but that participation is low and selective based on family background and children's achievement level. Nevertheless, participation in the program was found to have substantial effects on the development of vocabulary and on reading-related metacognition, indicating that family-based reading programs have considerable potential. The issues of selective participation and the lack of a program effect on text comprehension are discussed, and prospects for future research on systematic reading training in the family context are considered.     

Assessing the Occurrence of Learning in Children with Profound Intellectual Disability: A Conditioning Approach

Although children with the most profound forms of intellectual disability are clearly capable of learning, they are frequently unable to acquire skills and knowledge through the familiar social learning processes of modelling and verbal instruction. Instead, they rely on more basic learning processes, such as habituation, classical conditioning, and operant conditioning. This paper defines these basic processes and indicates their importance in allowing behaviour to adapt flexibly to changing environmental circumstances. Research on basic learning processes in which children and young adults with profound intellectual disability have acted as participants is then evaluated. The literature indicates that work of this kind is of clear relevance to those involved in facilitating the development and education of children with intellectual disability. This is because research and theory in the area of learning suggests effective ways of assessing non‐verbal children's cognitive capabilities and preferences and indicates ways of changing behaviour to produce educational outcomes and remediation of problem behaviours. Work of this kind thus provides the basis for intervention programs that can enhance the quality of life for this most disadvantaged group of children.