Respecting and fulfilling the right of post-primary pupils to consent to participate in trials and evaluative research: a discussion paper

This paper provides an introduction to issues surrounding the participation rights of young people in research and the implications of their growing involvement in research as well as providing a discourse on the ethical implications related to consent. The unique contribution of this paper is that it considers children’s rights in respect to the increasing opportunities for young people to take part in evaluation research. The aim of this paper, therefore, is to acknowledge the growing involvement for young people in research and the implications of ensuring that their rights of participation are respected. Secondly, we will consider the children’s rights legislation and our obligations as researchers to implement this. Finally, we will explore consent as an issue in its own right as well as the practicalities of accessing participants. This paper will postulate that any research about young people should involve and prioritize at all stages of the research process; including participation in decision-making. We conclude by identifying five key principles, which we believe can help to facilitate the fulfilment of post-primary pupils’ ability to consent to participate in trials and evaluative research.     

Reflecting on three creative approaches to informed consent with children under six

In an era when children’s rights are paramount, there are still few practical examples to guide us when seeking informed consent from children. This article therefore makes a significant contribution to the field by examining three practical approaches to negotiating informed consent with young children under 6 years old. We draw on researcher field notes, images and observations from four research projects that employed creative methods for seeking informed consent from young children. We take a reflexive approach, considering how successful the three techniques have been in facilitating young children’s decision-making around research participation. Our findings suggest that innovative approaches to informed consent create spaces for children to engage in dialogue and questioning about the research project. However, in order for the approaches to be meaningful, they need to be pedagogically appropriate to the maturity and capabilities of the children. We also demonstrate that, irrespective of the approach devised, researchers have a responsibility to ensure consent is continuously negotiated throughout the project through reflexive questioning.     

Gendered divisions on classed routes to vocational education

In this article our focus is on the persistent gendered divisions in educational routes of young people who choose a vocational path after compulsory education in Finland. We analyse how gendered subjectivities are constructed within the practices of educational and vocational guidance and within student cultures in the comprehensive school, as well as the way in which young people process understandings of themselves and their expectations during and after vocational education. In addition, we explore young people's ways to negotiate with disciplinary practices of the educational system. The paper draws on three ethnographic studies, and on feminist post-structural and materialist theories, intertwined with contextualised ethnographic perspectives. Our analysis reveals some patterns that might work as obstacles in the process towards reducing gender segregation in education and the labour market. We suggest that whilst gendered choices are sometimes taken for granted, gender dichotomy is often emphasised even if young people choose ‘differently’.     

Wellbeing in schools: what do students tell us?

Until recently, children and young people’s perspectives have been largely overlooked in considering optimal approaches to supporting their wellbeing at school. This article reports student views on the meaning of ‘wellbeing’ and how this is best facilitated, gathered as part of a large, national research project aimed at understanding and improving approaches to wellbeing in schools. The data reported here were gathered through 67 focus groups, involving 606 primary and secondary school students, across three Catholic school regions in different Australian states. Students provided rich accounts of how they view their wellbeing, conceptualised across three interconnected themes of ‘being’, ‘having’ and ‘doing’. They identified relationships with self, teachers, friends, peers and significant others, as central to their wellbeing. The findings point to immense potential in accessing and utilising children and young people’s views for change and reform in schools in the area of student wellbeing.     

Picturing global educational inclusion? Looking and thinking across students’ photographs from the UK,Zambia and Indonesia

Over the last few years we have engaged children and young people in participatory photography projects in a diverse range of international contexts. The projects, diverse as they are, have been school-based and primarily focused on students' experiences of educational inclusion/exclusion. Photographs taken by students can stimulate conversations in which different perspectives are shared and considered. Whilst this process is meaningful within a local context, it is also compelling to reflect more widely on what children and young people's photographs and commentary (and through these their interpretations of their educational experiences) have to tell and, indeed, show us about educational inclusion globally. In this paper, we begin by explaining what we mean by the term 'educational inclusion', and consider what methodological relevance the participatory photography has for engaging in research with children and young people about their educational experiences. We then briefly describe the contexts of the projects this paper draws on, which took place in the UK, Zambia and Indonesia. In the main body of the paper, we will look across these international projects and consider a selection of students' photographs and interpretations in relation to several broad themes about educational inclusion which they suggest.     

Teaching Traumatic History to Young Children: The Case of Holocaust Studies in Israeli Kindergartens

Recently, the Israeli Ministry of Education initiated a mandatory nationwide curriculum for Jewish kindergarten children focusing on the study of the Holocaust. This initiative raises general questions regarding the inclusion of sensitive historical issues in curricula for young children. In this article, we use the new Holocaust curriculum as an instructive case through which to address the broader questions about what might constitute an appropriate and acceptable curriculum in early childhood. We discuss the initiative from three disciplinary perspectives: a developmental sciences perspective, an anthropological/cultural perspective, and a learning sciences perspective. As we demonstrate, these three perspectives not only represent different disciplines but also highlight different aspects of this issue, thus exposing the complexities of this discussion. We show that understanding these perspectives separately and then trying to combine them may enable a richer and more complex look on the broader questions that this specific curriculum raises. We conclude with an endeavor to integrate the three perspectives, all of which should be taken into account when constructing a curriculum for young children.     

Free choice and free play in early childhood education: troubling the discourse

This article troubles the established discourse of free choice and free play in early childhood education, and develops post-structural approaches to theorising children's agency in the context of institutional and relational power structures. It is widely accepted that planning a curriculum based on children's needs, interests and patterns of learning promotes agency, self-regulation and control. However, contemporary research extends this discourse through critical examination of child-centred and developmental perspectives, and by theorising children's agency as a means of enacting power relationships in play. Using naturalistic, interpretive methods for documenting children's choices of play activities, this small-scale study focuses on 10 children in an Early Years Foundation Stage setting in England. Combining contemporary sociocultural and post-structural theories, the findings indicate that children's choices are situated within shifting power structures and relationships, involving conflict, negotiation, resistance and subversion. These activities create opportunities for exercising and affirming group and individual agency. The study raises critical questions about how children make and manage their choices, and examines the implications for policy and practice in light of restrictive curriculum frameworks.     

Informed consent,gatekeepers and go‐betweens: negotiating consent in child and youth‐orientated institutions

Gaining informed consent from research participants is widely regarded as central to ethical research practice. This article reports on research which sought to identify contemporary practice in this area amongst researchers working in fields where research participants are often constructed as vulnerable within the research process, and where their potential involvement tends to be mediated by institutional gatekeepers. Drawing on telephone interview and focus group data, the article focuses specifically on the experiences of researchers working with children and young people. It highlights the tensions experienced by many researchers between a personal commitment to an ethical framework which seeks to prioritise the agency and competency of children and young people, and the conditions imposed upon them by working within institutional settings where these principles may be undermined. This research suggests that the consent practices of child‐ and youth‐orientated institutions, however much frowned upon, tend to go largely unchallenged by researchers, to the detriment of the rights of children and young people to opt in and out of research on their own behalf.     

Using working agreements in participatory action research: working through moral problems with Malaysian students

In this paper we propose that taking time before the work begins to develop agreements about how to work together in participatory action research enables researchers to directly address several ethical issues that can be problematic in this type of research: gaining fully informed consent; in-group confidentiality; cultural misconceptions; and protecting participants from risky self-disclosures. We begin by discussing some of these ethical challenges that can arise in participatory work, especially with young people. We argue that these issues are magnified and politicised in certain politico-cultural settings, and therefore are all the more important when working cross-culturally. Drawing on the findings of the lead writer’s doctoral thesis, which sought to find a more relevant way of teaching moral education in a Malaysian setting by including the voices of young people, we show how participants responded to attempts to address these issues by creating a safe space in which to discuss sensitive topics through the use of a working agreement. Responses indicate that when such an agreement was in place, the young people in this Malaysian study experienced a greater sense of safety, greater encouragement to participate, and were more confident in their ability to solve ethical problems than in situations where there was no working agreement. Furthermore, the agreement enabled the researcher to be more aware of, and responsive to, the cultural context of the participants.     

Child refugees,trauma and education: interactionist considerations on social and emotional needs and development

This paper focuses on the social and emotional needs of children and young people who are refugees. It was inspired by casework undertaken by the author involving a 13‐year‐old boy who was a refugee from Montenegro. A vignette of the case is presented in addition to a review of relevant literature to illustrate and discuss the various sources of trauma experienced by children and young people who are refugees, and the potential impact of these on psychological functioning and emotional wellbeing. Child refugees’ experiences of trauma are seldom restricted to experiences of loss, violence or persecution in their country of origin. Rather, there are multiple experiences in the country of origin, during migration and on arrival in a country of “refuge” that are potentially traumatic, and can have adverse effects on a child or young person’s development. Drawing on research with children and adults who are refugees, as well as research into post‐traumatic stress disorder and into the educational effects of trauma, the paper advocates interactionist and ecosystemic perspectives for understanding the difficulties encountered by refugee children, and considers possibilities for therapeutic intervention.     

‘Drawing and playing are not the same’: children’s views on their activities in Icelandic preschools

Play is an important part of early childhood education and has been defined from different perspectives and paradigms. However, definitions of play have been studied more from adults’ perspectives than from those of children themselves. This ethnographic research, with children aged three to five years and built on sociological constructs, will explore children’s views on play in two preschool settings in Iceland. Video-stimulated recordings were used to support children’s conversations about their different activities in the settings, to explore which activities they considered play. Most of the children said that they were playing when they took on roles and could decide what to do with the material. When the children were preparing the play or were drawing, they usually said they were not playing. These findings add to the understanding of play from children’s perspectives and are valuable to the research field and for educators working with young children.     

The lived ethics of abstinence: Christian young men’s experiences of romantic relationships

Relationships and sex education (RSE), as set out in the recent Bill making RSE compulsory for all English schools, should be appropriate to the religious background of pupils. This paper suggests that this appropriateness is best found by gaining the best understanding about religious young people’s lived experiences of relationships and sexuality. Our in-depth qualitative research with three Christian young men aged 17–18 from a large charismatic evangelical church in the Midlands region of England investigated experiences of romantic relationships, focusing on the ‘ethical moments’ in which Christian ethical principles of sexual abstinence are negotiated. By attending closely to both the theological and the non-religious discursive resources that these negotiations draw upon, we demonstrate the different ways in which abstinence becomes meaningful in study participants' lifeworlds. We conclude that a sex education based on ethics in practice might engage best with religious young people.     

Promoting the participation of children and young people in care

OBJECTIVE: There are particular reasons why it is important for children and young people in care to have some say in the decisions that are made about their lives. The aim of this paper is to outline these and to review the developments and the research concerning the participation of children in care in processes and decisions that affect them. METHOD: This paper reviews the research literature from the UK, North America, Australia and New Zealand. It explores the perceptions of children and young people in care concerning the extent to which they have been able to participate in decisions that affect them, the reasons they want to do so, and what is required to make it effective. RESULTS: Children and young people in care clearly wish to have some say in the way decisions are made about their lives and generally do not believe that they have adequate appropriate opportunities to do so. CONCLUSIONS: Genuine and effective participation depends on several conditions: opportunity and choice in ways to participate, access to relevant information, the availability of a trusted advocate, proper resourcing, and supportive policy and legislation. Feedback from children and young people is also required to indicate whether it is happening.     

Researching marginalised young people

Young people not in employment, education or training (NEET) are not a static, homogenous group. For most, being NEET is a temporary state as they move between different forms of participation and non-participation. This paper explores how the complexities of defining NEET, the re-structuring of the careers service and the nature of post-16 provision shape the way young people are identified, accessed and participate in ethnographies. Data drawn from a study exploring the experiences of being NEET are used to investigate the complexities involved when doing ethnography with ‘hard-to-reach’ young people. Challenges include gaining and maintaining access; conducting multiple site ethnography; and taking account of the socio-political context. Working with NEET young people across multiple sites and using various data collection techniques compound the issue of consent. This paper reveals how ethics, power and consent were experienced by the ethnographer and the young people. There is a need to understand how ethnographies are done in order to clarify how specific issues can be avoided and overcome.     

“We’re not just sat at home in our pyjamas!”: a thematic analysis of the social lives of home educated adolescents in the UK

A common perception of home education is that despite potential beneficial educational outcomes, children who are home educated lack social experiences and therefore show poor social development. However, previous research in this area suggests that home educated children demonstrate a range of age-appropriate social skills. This research has mainly focused on children younger than 12; thus, we have much less of an understanding of the social impacts of home education on adolescents. Furthermore, previous research has often used social skills questionnaires and has not explored the experiences of home educating families from their own perspectives. The current study addresses these gaps in the literature by interviewing three home educated adolescents and their mothers about their social experiences and development with the research question of ‘how do home educated adolescents and their parents experience and understand socialisation?’. In one-to-one interviews, young people (aged 11–14) were asked about their experiences and perceptions of their social lives. In a separate interview, mothers were asked about how they facilitated these social experiences and their perceptions of the impact this had on their child’s development. Data from the interviews was thematically analysed. Results suggested that adolescents participated in a range of social experiences that promoted their social skills, happiness and confidence. Participants felt that this created a positive social environment and sense of community, and encouraged the adolescents to interact with a diverse range of people. However, further research is needed to explore whether this finding is generalisable to the broader community of home educated adolescents.

     

Perspectives on and conceptualizations of compliance and compliance‐gaining 1

Scholars have offered a number of different conceptualizations of compliance and compliance‐gaining which reflect broader competing perspectives. While there have been attempts to synthesize and clarify the empirical literature on compliance‐gaining, there has been little attention devoted to reviewing critically perspectives and conceptualizations focusing on persuaders attempting to get persuadees to do what they want. A review of the theoretical literature reveals that scholars have frequently developed their conceptualizations of compliance and compliance‐gaining from a social exchange or power perspective. It is shown how these two perspectives are manifested in the empirical research, especially those studies focusing on factors affecting strategy selection. The argument is made that conceptualizations and empirical studies reflecting these perspectives typically push communication into the background and reward/cost and power principles into the foreground of the compliance‐gaining process. Studies on teacher power in the classroom are provided as examples of how it is possible to adopt a power perspective and not undercut the role of communication in the gaining of compliance.     

Using interactive nonfiction narrative to enhance competence in the informed consent process with 3-year-old children

ABSTRACT

Ensuring young children’s competence to participate meaningfully in the informed consent process is a troublesome ethical issue. Evolving recognition of the influence of context and relationship, researcher perspective, and researcher responsibility to provide adequate support has advanced understanding of how this might be achieved. Here, we report the findings of the pilot trial of a new approach that used an ‘interactive nonfiction narrative’ to enhance young children’s capacity to provide meaningful informed consent. This innovative approach employs (re)telling strategies and technology (interactive) to convey factual information about the research (nonfiction) via a story (narrative) to promote participant understanding. Case studies of two 3-year-old boys and their mothers captured participants’ understanding of the informing and consent process. Data collection in the child’s home took place over 11 weeks and included conversations with children and semi-structured interviews with parents on three occasions, together with videos of children interacting with the informing story. We found that children understood many of the key concepts, including the research problem and how they could ‘help’ (participate). Children also understood that they could cease their participation, with one boy exercising his right to opt out towards the end of the study.     

Transgender young people’s narratives of intimacy and sexual health: implications for sexuality education

Abstract

Sexuality education as pedagogy is often fraught by the perceived requirement to balance the informational needs of young people with an investment in notions of childhood ‘innocence’. Nowhere is this perhaps more evident than in sexuality education that seeks to be inclusive of transgender young people, often resulting in the failure of such education to address the needs of such students. In an attempt at addressing the relative dearth of information about what transgender young people would like to see covered in sexuality education, in this paper we explore transgender young people’s accounts of intimacy and sexual health and consider what this means for school-based sexuality education. To do this, we analyse discussions of intimacy from the perspectives of transgender young people as narrated in a sample of YouTube videos. We conclude by advocating for an approach to sexuality education that largely eschews the gendering of body parts and gametes, and which instead focuses on function, so as to not only address the needs of transgender young people (who may find normative discussions of genitals distressing), but to also provide cisgender young people with a more inclusive understanding of their own and other people’s bodies and desires.     

You Can Ask Me If You Really Want to Know What I Think

Abstract

Recent social policy discourses in Aotearoa New Zealand focus on vulnerable children’s well-being and the detrimental, long-term and costly impacts of child poverty. The discourse pervading much of the policy labels children and young people as ‘vulnerable’ or ‘at risk’ or ‘in crisis’, a view, which we argue, is both disempowering and marginalising. We propose a shift in focus which views children and young people as agentic, capable and competent. Drawing on several small-scale research projects and reports we demonstrate how, when asked, children and young people can participate effectively in discussions about policy matters that concern them (Article 12, United Nations Convention on the Rights of the Child, 1989 [UNCROC]). We have much to learn from the insights children share with us when asked, but very often existing structures, at both government and community level, do not include adequate processes to hear their voices, let alone act on what has been communicated.     

‘There was never really any question of anything else': young people's agency,institutional habitus and the transition to higher education

International research into educational decision-making has been extensive, focusing on the way in which young people and their families assess the different options open to them. However, to what extent can we assume that different groups of young people have equal access to the information needed to make such an assessment? And what role, if any, do schools play in this process? Using in-depth qualitative interviews from two schools with very different student intakes, this paper examines the key influences that shape young people's choices. Decisions about whether to go on to higher education are found to reflect three sets of processes: individual habitus; the institutional habitus of the school, as reflected in the amount and type of guidance provided; and young people's own agency – namely, the conscious process whereby students seek out information on different options and evaluate these alternatives.