Role of Indian public libraries to increase the awareness of the community on HIV/AIDS

Abstract

Today Indian society is at high risk. AIDS, the most devastating disease humankind has ever faced, has become a conflagration on the Indian subcontinent and nearly 5.134 million people in the country are estimated to be HIV-positive. There is a perceived need for public libraries to provide necessary information to make the community aware of the threat of HIV/AIDS. Today's challenge is to reinvent the public libraries to respond to community needs. This paper explores the avenues created by ICT-enabled networking processes in providing HIV/AIDS information to the unprivileged population in India. It concludes with a number of recommendations that are intended to address the core problems and thereby improve the overall situation.     

The information experience and learning needs of couples living with HIV in Malawi

In this feature, guest writer Kondwani Wella presents an overview of his PhD – a study which investigated the information experience of serodiscordant couples with HIV and AIDS in Malawi. In particular, for this article, he considers the information behaviour of people who need HIV‐ and AIDS‐specific information and the role of the librarian in helping to deliver what is needed to support engagement in relevant learning. H.S.     

Insights into the diffusion of HIV/AIDS information in higher education institutions in South Africa

According to the UNAIDS [(1999). Young people and HIV/AIDS. UNAIDS Briefing Paper. Geneva: UNAIDS] report it is widely agreed that in the absence of a cure, only preventative measures brought about by education and customized information exchanges can mitigate the impacts of the disease. The purpose of the study was to review the framework, nature and scope of HIV/AIDS information communication strategies employed by higher education institutions in South Africa. Both qualitative and quantitative research design and methodologies were employed largely through survey, observation and document analysis. The findings reveal that firstly, HIV/AIDS information is provided through a variety of communication tools, channels and strategies. Secondly, in most instances, HIV/AIDS messages are not context appropriate and are unsuitable for academic constituencies most of whom are knowledgeable about the disease. Thirdly, there is a lack of synergy in dealing with HIV/AIDS in the higher education sector in South Africa. Other hidden issues involved in the communication of HIV/AIDS information have been highlighted. Lastly, an institutional framework appropriate for inter-institutional exchanges of HIV/AIDS information is suggested.     

HIV/AIDS and nutrition: a bibliometric analysis

Diet and nutrition are directly involved in patient care protocols that reflect a shift in the treatment of HIV/AIDS as a chronic disease, with an emphasis on quality of life and expanded life trajectory. Research concerning HIV/AIDS and nutrition is multidisciplinary, yielding study results that appear in a wide variety of scholarly journals. The purpose of this research was to employ bibliometric techniques to evaluate the body of literature specific to HIV/AIDS and nutrition as well as to determine content overlap among major bibliographic citation databases.     

“You Have to be Positive.” Social Support Processes of an Online Support Group for Men Living with HIV

Over the past decade, improved treatments have helped people with AIDS enjoy a state of restored health and greater hope for long-term survival. Because of these changes, social support is an even more important resource for those battling HIV/AIDS. One source for social support is a support group, which offers social and emotional resources to meet the needs of its members. The online support group investigated in this study serves gay men with HIV/AIDS and requires that they talk only about positive aspects of life. To understand the implications this rule has for support processes, a thematic analysis was conducted to determine how this group constructs social support. Rules and resources aimed at the group goal of positivity help develop a unique speech community. Implications for social support, support groups, and the Internet are discussed.     

The Ethics of Keeping HIV/AIDS Newsworthy in Tanzania

This study focuses on the negotiation of ethical challenges when reporting HIV/AIDS in Tanzania by investigating how two newspapers, the Daily News and the Guardian, operate in an environment with marked limitations on resources. Interviews with journalists reveal how economic concerns and reluctance to invest money in reporting a disease, now perceived as “old news,” has opened up space for official news sources to gain privileged access to disseminate their messages, shaping the discourse on HIV/AIDS. Organizational news sources use many strategies, including providing a “transport allowance” and offering all-expenses paid trips to the field in order to gain media attention, raising ethical dilemmas for journalists and concerns about the quality of the news that gets published.     

Complementary and alternative medicine as represented in the HIV/AIDS body of knowledge: a bibliometric analysis

Although the HIV/AIDS epidemic began more than twenty years ago, there still is no cure for the disease and no vaccine to prevent infection. As with the general population, individuals with HIV/AIDS have sought care using a variety of traditional and nontraditional approaches. The popularity of complementary and alternative interventions among the HIV/AIDS community continues. To understand better the distribution of the HIV/AIDS body of knowledge concerning complementary and alternative medicine (CAM), this study sought to (1) examine the literature specific to the use of complementary and alternative medicine where HIV/AIDS is concerned to determine publication patterns; (2) determine the degree of overlap among bibliographic citation databases that index the literature concerning the use of CAM practices in treating HIV/AIDS; and (3) facilitate access to this body of literature.     

Exposure to HIV/AIDS-Related Media Content and HIV Testing Intention: Applying the Integrative Model of Behavioral Prediction

Despite considerable evidence of an association between mass communication efforts and HIV testing behavior, the mechanisms through which this association may be established have been less extensively studied. Drawing on the integrative model of behavioral prediction, this study assessed the relationship between exposure to HIV/AIDS-related media content, individual intention to be tested for HIV, and the psychosocial variables mediating the relationship among 986 urban and rural residents of northwest Ethiopia. Structural equation modeling revealed that the relationship between exposure to HIV/AIDS-related media content and HIV testing intention was partially mediated by the three psychosocial variables associated with the integrative model (attitude, normative, and self-efficacy beliefs). However, whereas exposure to HIV/AIDS media content was found to be associated most substantially with attitudes toward HIV testing, intention to be tested was found mainly to be influenced by normative beliefs, which suggests that there is a possible mismatch between mass media programming and the prevailing psychosocial processes within the study population. The relationship between exposure to HIV/AIDS-related media content and HIV testing intention was also found to be mediated differently across urban and rural groups. Thus, it appears that the two groups may require different types of intervention to promote the desired behavior.     

HIV/AIDS‐related stigma and information behaviour: an ethnographic study in the UK

This feature explores the information behaviour of people infected with or affected by HIV/AIDS. It investigates specifically the difficult issue of stigma and how this shapes the ways in which people interact with vital information. The study adopted an ethnographic whereby the researcher worked as a part‐time volunteer at an HIV support centre in the North of England for over a year. This is the first time that such an approach has been reported in this feature and is interesting from this perspective alone. The very rich data which was gathered as a result of the approach is also instructive. The study formed part of a PhD thesis, which Robinah Kalemeera Namuleme completed at the University of Sheffield in March 2013.     

Information and communication: a library’s local response to HIV/AIDS in Zambia

Objective: To document and describe the University of Zambia Medical library’s responses to the fight against HIV/AIDS in Zambia. Methods: The methodology adopted was a case study approach combined with an analysis of the literature such as annual reports and official documents. This was augmented by personal reflections of the author having worked at the Medical Library. Results: The University of Zambia Medical library has over the years instituted and implemented HIV/AIDS information provision programmes that include the provision of information in various formats ‐‐ print or electronic and, in addition, capacity building in HIV/AIDS information literacy skills. Conclusion: A library’s social responsibility calls for it to be part of national responses to crises that arise in society. As HIV/AIDS has affected every aspect of Zambian society prevention, treatment, care and support there is an understanding that the library’s role should be using the cri tical and strategic resource at its disposal – information ‐‐ as part of their contribution to the fight against HIV/AIDS. In this context, libraries should source, collect, organize and disseminate information on HIV/AIDS in a way that is easily accessible to researchers, HIV/AIDS programme implementation agencies and the ordinary public.     

HIV/AIDS reference questions in an AIDS service organization special library

Librarians in many venues may anticipate a wide range of reference questions related to HIV and AIDS. Information on HIV/ AIDS is now available in medical, academic, and public libraries and on the Internet, and ranges from the most complex science to the most private disclosures about personal behavior. In this article, the 913 reference questions asked between May 2002 and August 2004 in a special library in a mid-western community-based AIDS service organization are described and analyzed.     

Sex differences in communication and the construction of HIV/AIDS

This paper reports analyses of sex differences in knowledge, attitudes, and behavior related to HIV/AIDS and communication about HIV I'AIDS in the heterosexual college population. Men and women differed in their assessments of risk to HIV infection for various behaviors; in each case women perceived greater risk. Women were more favorable than men regarding talking about AIDS and attitudes about condom use. Men reported a greater number of sexual partners for the previous five years than did women. Men, more often than women, appear to have changed their behavior in a direction of greater risk. Only two sex differences were found for prevention‐related behaviors. First, men more often reported having purchased a condom. However, no sex differences were found for actual condom use. Second, as reported in previous studies, women were more likely to engage in AIDS‐related talk with a sexual partner. Because of their many differences, men and women need to be targeted as separate audiences for HIV/AIDS prevention. Further, because women have emerged as the most rapidly growing group at risk for HIV infection and because women appear to be more willing than men to implement HIV/AIDS prevention in their relationships, they should be considered a primary audience for HIV/AIDS‐prevention programs designed for influencing the behavior of heterosexual couples.     

Meeting health information needs of people with HIV/AIDS: sources and means of collaboration

Background: Internet‐based applications, in particular those that allow communication, have great potential to meet information needs. Limited research has indicated that people with human immunodeficiency virus/acquired immune deficiency syndrome (HIV/AIDS; PHAs) use these technologies, but it has not yet been examined how resources are used collaboratively and in conjunction with offline sources. Objectives: The purpose of this study was to determine in what ways PHAs collaborate to meet treatment information needs and what role Internet‐based computer‐mediated communication (CMC) played in meeting this goal. Methods: This exploratory study was implemented using surveys and focus groups with 23 participants in Toronto, Canada. The purposive sample included men and women. Results: A variety of both off‐ and online resources were used to learn about HIV/AIDS treatment information, including web‐based and print. All participants were communicating with others, primarily in person, and most desired anecdotal treatment information. However, few reported using CMC to accomplish this goal. Harris and Dewdney's Principles of Information Seeking was used to frame the findings. Conclusions: Despite technical proficiency with CMC, few participants in this study reported use of this communication tool. Information professionals need to ensure access to HIV health information including those in remote areas who have fewer resources.     

Evolution in the body of HIV nursing knowledge

The role nurses occupy in the care of the HIV/AIDS affected has evolved over time. This evolution is exhibited in the body of nursing knowledge and is recorded in the published literature. The purpose of this study was to describe landmarks in the evolution of nursing's involvement in the provision of care to HIV/AIDS patients and to examine the body of nursing knowledge relative to HIV/AIDS, employing bibliometric analytic techniques. It was expected that the literature would grow in both breadth and depth concurrent with nursing's increased role in caring for those infected, or at risk for infection, with HIV.     

Malevolence,stigma, and social distance: Maximizing intergroup differences in HIV/AIDS discourse

This study examined the intergroup language used by young heterosexual Australians in conversations about HIV/AIDS and safe sex. Sixty male and 72 female heterosexuals participated in four‐person facilitated conversations (same‐sex or mixed‐sex) about HIV/AIDS and safe sex, which were recorded and transcribed. We focused on extracts concerning strangers or malevolent individuals who appear to be group members, along with extracts involving foreign national groups. Discourse analysis showed that groups at lower levels of social distance were constructed mainly in terms of individual responsibility. At moderate social distance, stereotypes were more negative, but sub‐typing was common, whereas at the highest levels, people were constructed entirely in intergroup terms. The findings of this study suggest that HTV prevention programs should make reference to all salient outgroups, so as to neutralize communicative strategies that strengthen intergroup boundaries as a means of reducing perceived personal threat of HIV infection.     

HIV/AIDS and Subaltern Autonomous Rationality: A Call to Recenter Health Communication in Marginalized Sex Worker Spaces

Sex workers in India constitute a marginalized population. They are considered at high risk of HIV/AIDS and are stigmatized for “selling sex” in a culture that generally censures sex outside marriage. HIV/AIDS initiatives targeted at this population have mostly adhered to promoting condom use, increasing awareness, and encouraging blood tests to screen for HIV/AIDS. Missing from this discourse are voices of sex workers and their autonomous consciousness. Based on an analysis of interview data from an eight-week field project, this paper seeks to centralize sex worker subaltern rationality in a call to reframe expert-led HIV/AIDS communication efforts that cater to sex worker communities.     

A Communicative Analysis of a Sexual Health Screening Intervention Conducted in a Low-Income Housing Complex

Providing free HIV screening within public housing sites offers the potential for increased participation of at-risk populations. Residential-based screening, however, raises concerns about privacy because of the stigma attached to HIV/AIDS and even to the testing for HIV. This study examined the effectiveness of offering HIV screening within a public housing high-rise in upstate New York. Through interviews with both women who obtained testing and those who did not, this study explored the tension between convenience and privacy concerns. The findings suggest that offering HIV screening where people live could encourage participation in the screenings, as well as lead to a destigmatization of HIV testing over time. Some women chose to eschew the convenience of on-site testing in favor of a more private venue for screening, whereas some women responded positively to the accessibility of on-site testing, using communicative strategies to manage privacy concerns.     

Information needs and information-seeking behaviors of HIV positive men and women

Although a portion of the HIV/AIDS population has long been active in seeking out information in support of self-care, little work has been done to examine closely the information needs and information-seeking behaviors of this community relative to the provision of medical reference. This exploratory study provides insight into the types of information HIV positive individuals seek and the resources they consult in gathering information to bolster health and well-being. Having a better understanding of the information needs and information-seeking behaviors of individuals with HIV/AIDS will facilitate information intervention for this community.