Re-visiting the role of disability coordinators: the changing needs of disabled students and current support strategies from a UK university

Abstract

This study aimed to investigate the system designed to support disabled university students from the perspective of disability coordinators. The research on this topic specifically is limited. Disability coordinators from a particular UK university were interviewed to better understand the support system from their own perspective. Interpretative Phenomenological Analysis (IPA) was conducted to reveal themes related to supporting students. IPA is a tool to understand participants’ social and emotional world. The final themes were: interest in and internal motivation regarding disability issues; flexibility and disability; personal experiences of disability; good practices; and finally, time and disability. The theme time and disability appeared as a separate theme but also was embedded within the whole analysis. In addition, the results indicated that the support issue is dynamic in nature and that student needs continuously change as new needs emerge. The demographic characteristics of disabled university students have changed over time. Students are also increasingly more competent at using technology. Consequently, disability coordinators should be more active and provide faster solutions to meet higher expectations. The results and policy implications of this study are discussed with reference to the impact of time, change and context.     

Recognising the needs of gender-variant children and their parents

Gender variance confronts widely held assumptions that children born as males will act like ‘boys’ and children born as females will act like ‘girls’. This imposed binary has the effect of perpetuating negativity towards people who express themselves with gendered variations in attire, behaviour or preferences. Despite the existence of gender-variant individuals in every culture and throughout time, many people are unaware that diversity in gender expression and sexual formation is a naturally occurring phenomenon. This qualitative study aimed to establish the needs of gender-variant children and their parents in order to inform education programmes, policies and clinical approaches to gender variance. Three Internet surveys were conducted to explore the experiences of parents raising gender-variant children, the childhood experiences of transgender adults and the views of professionals who work with the transgender community. The needs of gender-variant children emerged in terms of the need for information, peer contact, personal gender expression, safety, and to be heard and accepted by their parents. The most common needs for parents were for information (stories from other parents, research and guidelines; peer support) and educational resources for schools, professionals and local communities. The paper provides comparisons between the three participant groups and recommendations for future research.     

The use and usefulness of a parent questionnaire to help schools identify disability

The Equality Act 2010 will be implemented in full in 2011, and schools in the UK will have to provide special aids or services for children with disabilities where this provision is considered reasonable. This paper reports on staff perspectives on the use and usefulness of a parental questionnaire on disability from a sample of 49 schools (mainstream and special) located in 12 local authorities. Most schools found the process of administering the parent questionnaire undemanding; just under half of the sample indicated that they would take some action as a result of the data collected from the parental questionnaire (e.g., to inform plans for targeting or monitoring support for children, and to contact parents and follow‐up issues they had mentioned); and about one‐third of schools recorded unanticipated findings from the parental questionnaire, that is, the identification of children whose disabilities were not previously known to the school. Implications for schools are discussed.     

Len Barton,inclusion and critical disability studies: theorising disabled childhoods

Len Barton has pioneered the sociological study of education in the areas of disability studies and inclusive education. This paper addresses an argument developed by Len Barton that social exclusion, of which disablism is one element, (1) has many compounding forms of differing exclusions, (2) is not a natural but a socially constructed process, (3) has no single factor that can remove it and (4) is in constant need of conceptual analysis. Our paper aims to address each of these four challenging themes in relation to the contemporary societal position of disabled children, their families and key professionals that work around them, with a specific focus on schools. First, we explore the ways in which disabled childhoods are imbricated with other forms of exclusion. Second, we consider the ways in which ‘disability’, ‘impairment’ and ‘child’ are consistently being reproduced in particular and often contradictory ways by disability discourses. Third, we consider the need to work with numerous forms of educational intervention that address the exclusion of disabled children. Fourth, we conclude with an appeal to develop disability studies in ways that build on the shoulders of (social model) greats – such as Len Barton – whilst being receptive to other transformative perspectives from queer, feminist and postcolonial studies.     

Critical psychologies of disability: boundaries,borders and bodies in the lives of disabled children

Attending to the ways in which bodies and subjectivities are constituted in social environments is not simply a concern of social geographers but an emerging interest in critical psychology, childhood and disability studies. Boundaries and borders are nothing if not the different relational and durational articulations of bodies and spaces. These entangled boundaries include borders between parent and child; culture and body; school, family and child. Through analysing the ways in which these borderlines are continually re-composed and re-constituted, we are able to reveal their relational and embodied articulations. In previous works, we have explored the ways in which disabled children disrupt normative orders associated with school, family and community. In this paper, we take up the concepts of boundaries and borders to explore their relational and embodied articulations with specific reference to stories collected as part of an ESRC project entitled ‘Does every child matter, Post-Blair: the interconnections of disabled childhoods’. We ask, how do disabled children negotiate space in their lives? In what ways do they challenge space through their borders and boundaries with others? How can we re-imagine, re-think and differently practice – that is revolutionise – key borders and boundaries of education in ways that affirm the lives of disabled children? We address these questions through reference to the narrative from the Derbyshire family, with particular focus on Hannah and her mother Linda, which we argue allow us to consider the ways in which disabled childhoods can be understood and reimagined. We explore two analytical considerations; ‘Being disabled: being mugged’ and ‘Becoming enabled: teacups, saucers and communities’.     

From here to there and back again: the story of a mother,her son,disability, and school choice

Nelly and her children live in Queensland, Australia. When it came time for her second youngest son to start school, Nelly was not prepared for the difficulty that she had enrolling him at the school of her choice. In spite of her son's disability, Nelly thought that it was natural that he would go to his local school with his sister. It is not surprising that she expected this, given the legal and policy endorsement of inclusive education that exists in the Queensland education system. What unfolded in Nelly's life as she pursued this enrolment is the subject of this article. This is the story of a mother who believed in and hoped for inclusive schooling for her son but who found herself caught in a series of events and experiences which ultimately led to the decision to transfer him into a special school. This is also the story of how, disillusioned and regretful, she went on to undo that decision. Told primarily in Nelly's own words, this narrative provides a deep insight into one mother's efforts to exercise her parental authority, the difficulties she encountered in trying to do so, and the consequences for her son.     

Competence is in the Eye of the Beholder: Perceptions of intellectually disabled child witnesses

This study examines mock jurors’ perceptions of a young witness according to whether or not he was described as having an intellectual disability. Our study examined perceptions of a child witness younger (five or seven years) than previously studied. Mock jurors (n = 71) viewed a short video excerpt of a boy recalling a personally experienced event, and then rated him across nine domains of eyewitness ability. The boy was described as either having an intellectual disability or typically developing. Participants rated the child more negatively on dimensions relating to cognitive competence, but not trustworthiness, when he was presented as having an intellectual disability. Participants also watched the child answer a series of suggestive questions; when described as having an intellectual disability he was rated as less accurate in responding to these. The findings have implications for the involvement of children with intellectual disabilities within the legal system.     

Defining the family: towards a critical framework for families of children with disabilities

ABSTRACT

Family‐centred approaches are widely recognized internationally as the most ecologically appropriate way of working with families of children with disabilities. Pivotal in this approach is its focus upon the needs of the whole family, rather than only the needs of the child (with a disability). It places a significant emphasis on flexible and responsive transdisciplinary service delivery and upon parent choice and decision‐making. For the family‐centred approach to become truly effective, then, we must define what constitutes a family. Or rather ask families how they define themselves. Alongside an exploration of traditional and non‐traditional family roles, this paper challenges stereotypical notions of the family, and seeks to establish the family as the core element in any service team.     

Exploring British Pakistani mothers’ perception of their child with disability: insights from a UK context

This research lends insight into disabling discourses on South Asian families of children with disabilities. It explores immigrant Pakistani maternal understanding of their children's disability, uniquely through an educational perspective, highlighting maternal roles which schools must acknowledge to improve outcomes for children. The findings of this research, supported by a literature review, highlight various ideological threads shaping maternal understanding of disability and their children's schooling experiences. Data were collected through multiple case studies of immigrant Pakistani mothers of disabled children at Westchester School, incorporating semi‐structured interviews and reviewing pupils’ school files. After a process of open coding, the main themes emerging from interviews suggested maternal perceptions of disability evolved from a medicalised lens, onto identifying with structural barriers to children's progress, and a gendered lens. Both maternal perceptions and their professional interactions determined maternal accounts of their children's schooling experiences. This research highlights positive familial factors shaping maternal understanding of disability, supporting further studies into maternal advocacy and empowerment within UK special education.     

Recognising fathers: the needs of fathers of children with disabilities

In this article, the authors aim to develop a better understanding among practitioners of the issues faced by fathers of children with a learning disability, and suggest how schools can involve the parents who are regarded by many as ‘hard to reach’. They recontextualize the roles and perceptions of fathers in the light of outcomes from the recent ‘Recognising Fathers’ report published by the Foundation for People with Learning Disabilities. Following an introduction to Government policy and literature relating to fathers, the outcomes of semi‐structured interviews conducted with 21 fathers in the course of the ‘Recognising Fathers’ study are summarized in terms of the emotional impact, the roles and responsibilities, the impact on fathers’ paid employment, support and father–practitioner interaction. The article concludes with practical suggestions for how practitioners might meet the needs of fathers in their own schools and provide them with an effective support network.     

Special educational needs: a public issue

This article explores the contribution of sociological scholarship to understanding and analysing the notions of ‘special educational needs’ and ‘disability’ and the ways in which the two notions have been reconfigured and theorised as ‘public issues’ rather than ‘personal troubles’. Barton's contribution is signified both in terms of his contribution to the evolution of the ‘sociological imagination’ – as a powerful theoretical tool for unravelling the highly political and contested nature of disability and special educational needs – and also in terms of his analysis of the emergence and development of sociological theorising in the field. The parochial obsession with deficit and medical‐oriented approaches to dealing with ‘difference’ and ‘need’ have been significantly challenged through the ‘sociological imagination’ aimed at pointing up the highly political and complex nature of disability and ‘special educational needs’. Times have changed and sociological theorising has evolved, but presumed ‘personal troubles’ are still not unequivocally conceptualised as being intertwined with, resting upon and emanating from ‘public issues’ embedded in the social, cultural and political edifice of educational, social and national communities. The ‘sociological imagination’ should be constantly invoked and deployed in order to expose and challenge the sophisticated ways in which individual pathology accounts and special educational imperatives re‐invent themselves through more inclusive linguistic veneers.     

Parenting a Child with a Learning Disability: A Qualitative Approach

The present study describes experiences associated with parenting children diagnosed with learning disabilities. Parents whose children were diagnosed with Attention Deficit Hyperactivity Disorder, dyslexia/language problems, and Asperger syndrome, related to poor performance at school, took part in the study. A qualitative study design was implemented, using three focus groups. The data obtained were analysed following an inductive thematic approach. Five major themes were identified: parenting emotions, diagnosis and cause, daily experiences, social relationships and concerns about the future. The parents in this study experienced a range of emotions, and assigned different explanations to the learning disability, depending on the diagnosis (attention, verbal or non-verbal). Daily experience, both at home and at school, was influenced by the child’s specific impairment. All parents, independently of the diagnosis, believe a central role is played by social relationships and expressed concerns about their child’s future development. Emotional interventions targeting these parents should take these considerations into account and address the specific type of learning disability.     

Introduction to the development of the ISPCAN child abuse screening tools

The World Report on Children and Violence, (Pinheiro, 2006) was produced at the request of the UN Secretary General and the UN General Assembly. This report recommended improvement in research on child abuse. ISPCAN representatives took this charge and developed 3 new instruments. We describe this background and introduce three new measures designed to assess the incidence and prevalence of child abuse and neglect.     

Walking the talk: towards a more inclusive field of disability studies

This paper is a conversation about growing an inclusive field of disability studies. The paper draws on data collected through an analysis of existing disability studies programmes in selected Canadian universities. The paper makes a case for including diverse perspectives, experiences, viewpoints, and voices in these programmes. In this work, I call for an interrogation of the normativity in the field of disability studies and for critical reflections and discussions about growing a diverse and inclusive field that pays attention to marginalised populations. There is a need to rethink the exclusionary nature of knowledge, space, bodies, and pedagogy in the field, which perpetuates Eurocentric culture, thoughts, and practices.     

Validity of school history as a diagnostic criterion for reading disability

In order to assess the validity of school history information as a diagnostic criterion for reading disability, reading performance data from 304 children with a positive history for reading problems were compared to those from 319 children with a negative school history. These children are members of twin pairs who are participants in the Colorado Reading Project (DeFries 1985). A multivariate analysis of variance of Reading Recognition, Reading Comprehension, and Spelling subtest scores from the Peabody Individual Achievement Test (Dunn and Markwardt 1970) yielded a highly significant (p <0.001) difference between groups for both the multivariate and univariate comparisons. The difference between the unweighted mean scores of the school-history positive and negative groups for Reading Recognition was 2.1 standard deviations. Moreover, when discriminant weights estimated from an independent sample of 140 reading-disabled and 140 control nontwin children were used to reclassify the sample of twins, 75% of those with a positive history for reading problems were classified as being reading disabled and 95% of those with a negative history were classified as unaffected. Thus, results of this study establish the validity of school history information and suggest that such information may have considerable utility for ascertaining samples of reading-disabled children.     

Aiming high: the educational and occupational aspirations and of young disabled people

This article provides an overview of the aspirations and expectations disabled teenagers form for their future education and employment and the factors which are associated with positive aspirations. After reviewing what is already known about the formation of aspirations in general, and among young disabled people in particular, Tania Burchardt presents preliminary analysis from original research using two large‐scale representative surveys: the Youth Cohort Study (YCS) and the 1970 British Cohort Study (BCS70). The results indicate that young disabled people have similar aspirations to their non‐disabled counterparts, although tempered in some cases with a recognition that there are likely to be obstacles in the world of work. There is also some–tentative–evidence that young disabled people feel less well served by advice and support services. SEN coordinators in secondary schools and further education, and Connexions advisors, need to ensure that they encourage positive aspirations, especially among young people from disadvantaged backgrounds, while offering practical support in overcoming disabling barriers.     

University teaching with a disability: student learnings beyond the curriculum

This research examines the learning experience of university students who were tutored by a teacher with quadriplegia mixed type cerebral palsy. It was inspired by Pritchard's [2010. “Disabled People as Culturally Relevant Teachers.” Journal of Social Inclusion 1 (1): 43–51] argument that the presence of people with a disability in the classroom is important as these teachers deliver both content and generate ‘other’ learnings. This study examines what was different about the learning experience and what additional learnings may have occurred because of the students' interaction with a tutor with a disability. It begins to explore what educational scaffolding may be needed to facilitate and maximise student learning in this scenario both in the classroom and online learning environment with a tutor with a disability affecting physical movement and verbal communication. It seeks to advocate for the potential role of people with a disability in academia.