公共健康信息的公共获取问题研究

全球公共健康危机的加剧引起公众对健康信息公共获取的普遍关注，从我国公共健康信息公共获取的现状出发，分析我国公共获取健康信息的障碍与问题，提出实现健康信息零障碍获取的建议。     

Creating information resources and trainings for farmworker-serving community health workers

Background:Farmworker-serving community health workers have limited access to farmworker health research findings, training, and education resources. With funding from the National Library of Medicine, we are working to improve the health information literacy of both community health workers and farmworkers. We conducted focus group discussions with community health workers to explore their experiences providing health education and information to farmworkers, their information-seeking behaviors, and their technology and information needs. Data from the focus groups provided insights into the main areas in which community health workers would like to receive professional development.Case Presentation:Our team, which includes health sciences librarians, developed a resource list of educational materials for farmworker health, videos to increase community health workers'' skills finding health information online, and webinars to introduce these resources to community health workers. Videos, available in Spanish and English, included instruction on finding and evaluating online health information, accessing reputable online consumer health information sources, and advanced searching tips for Google and PubMed. Through three webinars, we introduced the resource list, videos, and design software for creating handouts and infographics to community health workers.Conclusions:Community health workers have a critical role in providing health education and information to farmworkers, and our efforts represent a first step in addressing community health workers'' limited access to professional development. Health sciences librarians are well positioned to partner with interdisciplinary teams working to reduce health disparities and provide resources and training to community health workers, farmworkers, and other underserved communities.     

Health Information and Health Literacy: Public Library Practices,Challenges, and Opportunities

This study investigated 18 libraries in two public library systems in Oklahoma to find out how they are addressing health literacy and facilitating access to consumer health information; how library staff members view their roles and responsibilities relative to health information and health literacy; what challenges libraries face; and what strategies are being used. Staff members recognized several challenges to providing health information and to developing programs, including staff and patron difficulties with reference interviews, and patron lack of awareness of library resources. Staff members often had only a partial understanding of health literacy, and were unaware of system strategies to address health literacy or provision of health information.     

Assessing internet access and use in a medically underserved population: implications for providing enhanced health information services

Background: The relationship between health information seeking, patient engagement and health literacy is not well understood. This is especially true in medically underserved populations, which are often viewed as having limited access to health information. Objective: To improve communication between an urban health centre and the community it serves, a team of library and information science researchers undertook an assessment of patients’ level and methods of access to and use of the Internet. Methods: Data were collected in 53 face‐to‐face anonymous interviews with patients at the centre. Interviews were tape‐recorded for referential accuracy, and data were analysed to identify patterns of access and use. Results: Seventy‐two percentage of study participants reported having access to the Internet through either computers or cell phones. Barriers to Internet access were predominantly lack of equipment or training rather than lack of interest. Only 21% of those with Internet access reported using the Internet to look for health information. Conclusion: The findings suggest that lack of access to the Internet in itself is not the primary barrier to seeking health information in this population and that the digital divide exists not at the level of information access but rather at the level of information use.     

Creating an Evidence-Based Culture Within the Schools of Public Health and Medicine

Information technology is having a huge influence on health care. With ease of access and an abundance of information, today's health care personnel are expected to practice and develop policies or programs based upon evidence in order to avoid inefficiency and ineffectiveness. Our library has the responsibility to serve the needs of students, faculty, and practitioners of medicine and public health and strives to create an information literate workforce. In this article, the authors reflect on the library's instruction program and evaluate and plan for the future order to determine if the library's instruction program is properly developing an evidence-based medical and public health workforce.     

Sharing MedlinePlus®/MEDLINE® for Information Literacy Education (SMILE): A Dental Public Health Information Project

The SMILE project represented a partnership among the University of Texas Health Science Center at San Antonio Libraries, the Gateway Clinic in Laredo, and the San Antonio Metropolitan Health District. The project focused on improving dental practitioners' access to reliable information resources and integrating the best evidence into public health dental practice. Through its training program, SMILE cultivated a set of “power information users” among the dentists, dental hygienists, and community health workers (promotores) who provided public health preventive care and oral health education. The dental public health practitioners gained information literacy skills and increased their knowledge about reliable sites such as blogs, PubMed®, and MedlinePlus®. This project fostered opportunities for expanded partnerships with public health personnel.     

What Your Patient Reads: Creating a Value-Added Tool for Physicians

Through a number of media sources, today's consumers have unprecedented access to health information of varying reliability and authority. Empowered by this information, patients are more involved in their health care decisions and more willing to question physicians' advice. This poses a challenge for physicians who must now find time to read mass media health reports in addition to medical research. In order to help physicians with this task, librarians at the University of Manitoba Health Sciences Libraries created What Your Patient Reads – one-page summaries of health-related media reports supplemented with references to evidence-based medical literature.     

Creating a Consumer Health Outreach Program for Western New York Senior Citizens: Continuing a Library School Project

ABSTRACT

The Internet has made accessing information a simple task. Each day millions of Americans log on to the Web in search of information on a variety of subjects. One of the most sought after type of information is medical information. Individuals are taking a more proactive role in their personal health care and the health care of their friends and families. Attempting to locate and evaluate quality health care information can pose a variety of problems for the consumer. Academic libraries have an opportunity to play a crucial role in facilitating the consumer's access to quality, reliable health information by developing and implementing consumer health outreach programs designed to address search problems and information interpretation difficulties. The benefits for both the community and the library are numerous when a consumer health information outreach program is successfully employed. This article will chronicle the creation of a Consumer Health Outreach program, entitled “WNY Consumer Health,” intended for senior citizens in Western New York. This program was designed to satisfy the requirements of a graduate special project for the completion of the authors' MLS degree.     

The Growing Crisis: Scholarly Publishing Pressures Facing Health Sciences Libraries

ABSTRACT

Health sciences librarians work within a complex environment, one that quickly adopted access to electronic resources. The open access movement evolved as an alternative to traditional publishing as prices for STM e-journals steadily increased, but it also raised issues and concerns for authors within the more traditional biomedical culture. The National Institutes of Health (NIH) Public Access policy provided an opportunity to support researchers’ compliance with the policy, while advocating for open access and author rights. As an outgrowth of the NIH policy, health sciences libraries have promoted open access through a variety of activities within their academic health centers.     

Health Information Outreach: Experiences from the University of Zambia Medical Library

ABSTRACT

Access to health information for health workers in Zambia is limited and inadequate, especially to those health workers that are not affiliated with institutions such as the University of Zambia. In order to meet their information needs, it is important to devise and implement appropriate health information access methods. One such method is an Outreach Program. This article is an audit and a review of the health information outreach programs that the University of Zambia Medical Library has implemented over many years.     

The health information seeking behaviour and needs of community health workers in Chandigarh in Northern India

This article represents two‐firsts for the feature – it is the first to report on a study outside the UK and the first to examine the health information needs of community health workers. Sonika Raj is pursuing PhD at the Centre for Public Health, Panjab University, Chandigarh, in India and she conducted her research in Chandigarh. The article outlines the important role that health workers at community level play in determining health outcomes in the developing world, including Chandigarh. It demonstrates that while those workers recognise their information needs, there are many issues affecting their ability to access health information effectively, not least their limited access to appropriate technology and training. AM     

国内外消费者健康信息学研究进展

[目的/意义] 旨在梳理医学信息学的分支——消费者健康信息学（CHI）领域的研究文献和研究进展,发现该领域的研究弱点与空白点。[方法/过程] 采用文本编码的方式,从CHI的范畴界定、健康信息生命周期中的典型阶段考察文献中的研究问题、变量关系等。[结果/结论] 从研究对象涉及到的技术、消费者、使命、目标、任务、学科属性等角度分别综述其界定,并提炼出一个较有解释力的内涵;依据文章界定的CHI内涵,依次梳理消费者健康信息需求、搜寻、获取、接受、利用和评价的具体表现和影响因素等。     

Patient information comes of age

This virtual issue (VI) has been assembled to coincide with the 8th Annual Patient Information Conference 2013 organised by the UK Patient Information Forum (PiF). The conference theme ‘Information and support – a service in its own right’ is a response to policy documents and initiatives in both Scotland and England which signal the coming of age of patient/consumer information. The VI consists of a collection of open access articles and addresses the question ‘What can health science librarians do to ensure that the public are able to find, appraise and use health information?’ This material provides research evidence, and examples of the types of initiatives librarians have undertaken to make information a health and care service in its own right. Two recurrent messages are that health science librarians need to form partnerships with healthcare providers and they have a role to play in improving health literacy skills.     

Health sciences libraries in Germany: new directions

This feature is part of a series about medical library services in various countries. It gives an overview of the state of and selected current developments of medical library services to support research, education and clinical practice in Germany. Findings from an online survey and issues of access to health information are discussed in relation to the German health care system.J.M.     

The Librarian's Role in Linking Patients to Their Personal Health Data and Contextual Information

The objective of this project was to make an institution's patients aware of a new patient portal with contextual links to MedlinePlus. Through partnerships with information technology personnel and LSU Health Shreveport clinics, the Health Sciences Library created and distributed promotional and educational materials and instructed patients on how to use MyChart and access reliable consumer health information via MedlinePlus Connect. Although most patients were not interested in coming to the library for demonstrations, many of them expressed interest in using MyChart. The contextual information in MedlinePlus Connect worked well for most topics. The institutional team leader for MyChart expressed gratitude for librarian involvement.     

Finding and Evaluating Health Sources on the Internet

Summary

Librarians and patrons searching for reliable health information are fortunate in that this subject area is one for which many reliable, in-depth sites exist. Government, education, and organization sites are, in particular, good sources of information and provide links to other Web pages. It is important, however, for both librarians and their clients to know how to access this information and, especially, how to evaluate the worthiness and usefulness of the information contained therein.     

OTseeker helps library and allied health professionals to find quality evidence efficiently

Background: Research is essential for evidence‐based practice yet many health professionals do not have enough time to find research. Studies relevant to occupational therapists can be particularly difficult to find. Most search engines are broad and return a large number of irrelevant articles. Occupational Therapy Systematic Evaluation of Evidence (OTseeker) is an occupational therapy database available at http://www.otseeker.com . Developed by Australian occupational therapists, the resource aims to increase access to research and support clinical decision making. This discipline‐specific database contains pre‐appraised information from a variety of sources and decreases the time required to locate best evidence. Objectives: The aims of this paper are to: (i) describe how health librarians can use OTseeker to help allied health students, researchers and practitioners, particularly in occupational therapy, to find quality evidence; (ii) provide a teaching resource for health librarians based around the OTseeker evidence database; and (iii) highlight new features contained on the OTseeker database. Methods: A case study is provided which focuses on searching for evidence on the effectiveness of upper limb rehabilitation after stroke using OTseeker. Conclusion: This paper may increase the knowledge, skills and competencies of health librarians, helping them to access evidence‐based databases, and educate other professionals.     

Blogging in Support of Health Information Outreach

Social media technologies are transforming the way librarians are collaborating, creating, and disseminating information. This article discusses how librarians at the University of Texas Health Science Center at San Antonio created a blog to support their health information outreach activities. Launched in 2007, the Staying Well Connected blog was established with the goal of promoting access to biomedical and health information for consumers and health professionals in the South Texas region. Postings highlight relevant health news, conferences, funding opportunities, and outreach events.     

Exploring digital health care: eHealth,mHealth, and librarian opportunities

Technology advances in eHealth and mHealth are changing the way that health care consumers and providers communicate, receive and deliver care, and access health information. As electronic health records and smartphones have become ubiquitous in the United States, opportunities and applications for the integration of eHealth and mHealth have increased. In addition to technology advances, the changing health care model is simultaneously adapting to and driving initiatives in digital health care. With these digital initiatives have come challenges, including data overload, security and privacy concerns, deficits in technological and health literacy skills, and sorting through the vast number of choices of digital applications. Navigating this changing landscape can be overwhelming and time consuming for both health care providers and consumers. Librarians are uniquely positioned to assist providers and consumers to break down barriers within the digital health care landscape through data management initiatives, technology and health literacy instruction, and finding and evaluating health information and digital health technologies.     

数字环境下城乡青年健康信息搜寻行为研究

[目的/意义] 从信息行为视角阐释城乡青年在健康信息领域的表征与原由,为相关管理部门制定政策与措施、医疗与网站等健康服务教育机构提升健康信息服务提供参考。[方法/过程] 采用半结构化访谈收集24位20-29岁河南省城乡青年的健康信息搜寻行为数据,考察数字环境下城乡青年健康信息需求动机、信息搜寻行为特点及异同,借助Nvivo对数据进行整理、编码和内容分析。从网络获取方式、手机与电脑使用体验差异、健康信息需求类别、搜寻途径、检索方式及平台选择等方面对城乡青年健康信息搜寻行为的共性与差异予以分析。[结果/结论] 与农村青年相比,城市青年健康信息需求范围更广泛、检索策略与平台选择多样化。论文提出城乡青年间“数字鸿沟”的存在可能引发“健康信息鸿沟”的风险,根源在于收入水平、受教育程度、信息技术使用能力等因素直接影响数字环境下网络接入、使用及信息化水平。