Social support within an on-line cancer community: an assessment of emotional support,perceptions of advantages and disadvantages,and motives for using the community from a communication perspective

This study investigated an on-line cancer support community emphasizing communication concerns important to the community administrators. The researcher conducted an on-line survey of participants (N v = v 103) focused on their on-line communication activities and social support. The results indicate a modest negative correlation between emotional support received on-line and perceived stress, differences in emotional support scores based on perceptions of disadvantages of on-line support groups, and different motives for using the community between people with cancer and family members. The study also describes suggestions based on the results that were made to community administrators and which could be used by other on-line support communities.     

Exploring Survivor Experiences and Emotions Expressed about Loss and Responsibility Following a Thrombosis Event

We explored the experiences and emotions women expressed about having a blood clot, including revelations about family members' decision to avoid disclosing inherited risk for clotting. We do this through analysis of in-depth life reflection interviews (N = 20) of women who experienced a first venous blood clot between the ages of 18 and 50 years. Selective coding reduced the data to an overarching story associated with thrombosis survivorship and loss across multiple life domains. The themes identified include participant revelations about living in the shadow of genetic susceptibility for thrombosis. Participants manage changes associated with lingering health effects, and daily routines for work and life, adapting their lives to manage coagulability. A second theme reveals the fallout linked to the severity of thrombosis encompassed in haunting psychological scenarios, persistent emotional concerns, and social discrimination. Participants assumed responsibility to disclose inherited risk, with the women expressing empowerment in knowing risks and acknowledging possible genetic testing mistakes. The overarching perspective was one of hope through proactive actions in occupational, recreational, and relational realms. We offer our findings as a theoretical depiction of thrombosis survivor identity and the need for public health and clinical communication to support disclosing family history for clotting.