The DisHuman child

ABSTRACT

In this paper, we consider the relationship between the human and disability; with specific focus on the lives of disabled children and young people. We begin with an analysis of the close relationship between ‘the disabled’ and ‘the freak’. We demonstrate that the historical markings of disability as object of curiosity and register of fear serve to render disabled children as non-human and monstrous. We then consider how the human has been constituted, particularly in the periods of modernity and the rise of capitalism, reliant upon the naming of disability as antithetical to all that counts as human. In order to find a place for disabled children in a social and cultural context that has historically denied their humanity and cast them as monstrous others, we develop the theoretical notion of the DisHuman: a bifurcated complex that allows us recognise their humanity whilst also celebrating the ways in which disabled children reframe what it means to be human. We suggest that the lives of disabled children and young people demand us to think in ways that affirm the inherent humanness in their lives but also allow us to consider their disruptive potential: this is our DisHuman child. We draw on our research projects to explore three sites where the DisHuman child emerges in moments where sameness and difference, monstrosity/disability and humanity are invoked simultaneously. We explore three locations – (i) DisDevelopment; (ii) DisFamily and (iii) DisSexuality – illuminating the ways in which the DisHuman child seeks nuanced, politicized and complicating forms of humanity.     

Critical psychologies of disability: boundaries,borders and bodies in the lives of disabled children

Attending to the ways in which bodies and subjectivities are constituted in social environments is not simply a concern of social geographers but an emerging interest in critical psychology, childhood and disability studies. Boundaries and borders are nothing if not the different relational and durational articulations of bodies and spaces. These entangled boundaries include borders between parent and child; culture and body; school, family and child. Through analysing the ways in which these borderlines are continually re-composed and re-constituted, we are able to reveal their relational and embodied articulations. In previous works, we have explored the ways in which disabled children disrupt normative orders associated with school, family and community. In this paper, we take up the concepts of boundaries and borders to explore their relational and embodied articulations with specific reference to stories collected as part of an ESRC project entitled ‘Does every child matter, Post-Blair: the interconnections of disabled childhoods’. We ask, how do disabled children negotiate space in their lives? In what ways do they challenge space through their borders and boundaries with others? How can we re-imagine, re-think and differently practice – that is revolutionise – key borders and boundaries of education in ways that affirm the lives of disabled children? We address these questions through reference to the narrative from the Derbyshire family, with particular focus on Hannah and her mother Linda, which we argue allow us to consider the ways in which disabled childhoods can be understood and reimagined. We explore two analytical considerations; ‘Being disabled: being mugged’ and ‘Becoming enabled: teacups, saucers and communities’.     

Len Barton,critical education and the problem of ‘decentered unities’

In the process of discussing the significant contributions that Len Barton has made to the sociology of education and to disability studies, I argue that a good deal of critical analyses of power and inequality in education are impoverished by some of their essentialist and reductive tendencies. I use an example taken from disability rights to show how parts of these tendencies can be overcome. I suggest that disability rights movements provide powerful possibilities for the interruption of capitalist ideological forms and their attendant ways of organising and controlling labour. They do this by challenging some of the most fundamental assumptions that underpin capitalist economies and ways of life. By strongly resisting the ways in which paid work and paid workers are treated, new relations are made possible. I connect this example to some of the insightful analyses of the place of affective equality in the struggle for social justice in both a politics of redistribution and a politics of recognition. Building on these arguments, I then argue for a broadened conception of critical research and critical action. I describe nine tasks in which the critical scholar/activists should engage if they are to be true to an enlarged conception of the ‘public intellectual’ and ‘public sociologist’.     

Teaching through an ethics of belonging,care and obligation as a critical approach to transforming education

This paper considers the experiences of a New Zealand family and their ‘disabled’ daughter Clare’s ‘inclusion’ and ‘exclusion’ in her early childhood centre and the implications of these experiences for shifting from a discourse of ‘inclusion’ to ‘belonging’ based on ‘an ethics of care and obligation to others’. I argue that the meanings and understandings of ‘inclusion’ for disabled children in education are variable and that they often default to dominant deficit discourses whilst believing themselves to be ‘inclusive’. I also argue that we must consciously develop a critical awareness of how exclusionary power operates in society and in our own settings. In this paper, I present ideas drawn from a ‘pedagogy of listening’ and Te Whaariki – The New Zealand Early Childhood Curriculum to critically reflect on some of the early childhood education experiences of Clare and her family. I suggest that teachers’ use of critical reflective ‘child’s questions’ can be used as tools for educational transformation towards the full and meaningful participation of disabled children in education.     

The (be)comings and goings of ‘developmental disabilities’: the cultural politics of ‘impairment’

Disability should be a concern for those interested in analysing and subverting the cultural politics of education. In this paper we address this concern through connecting critical analyses of ‘developmental disabilities’ (formerly ‘mental retardation’), disability studies and poststructuralism. We target normative constructions of ‘developmental disabilities’ – and we propose alternative dynamic possibilities – through reference to narratives from our political and personal work with people with the label of ‘developmental disabilities’. Our aim is to unveil the ways in which we might understand the cultural formations of ‘impairment’ – as they relate to ‘developmental disabilities’ – in order to propel scholars, activists and practitioners towards a cultural politics of inclusion. First, we summarise some key debates from disability studies that have engaged with ‘impairment’: social model, relational and psychosocial models. We suggest that these debates benefit from a more grounded engagement with poststructuralist ideas. Second, we bring in the work of the poststructuralist thinkers Gilles Deleuze and Félix Guattari and the poststructuralist feminist Rosi Braidotti to tackle the social, historical, cultural and political conditions of ‘developmental disabilities’ through experimentation with rhizomes and nomads. In conclusion, we appeal for the development of a cultural politics of ‘impairment’ and ‘developmental disabilities’ that draws upon a vocabulary applicable to the post-modern subject of the contemporary world: as uncertain, productive and moveable.     

Technology for people,not disabilities: ensuring access and inclusion

The potential of technology to connect people and provide access to education, commerce, employment and entertainment has never been greater or more rapidly changing. Communication technologies and new media promise to ‘revolutionize our lives’ by breaking down barriers and expanding access for disabled people. Yet, it is also true that technology can create unexpected and under‐critiqued forms of social exclusion for disabled people. In addition to exploring some of the ways that even (or especially) assistive technology can result in new forms of social exclusion, we also propose alternative ways of thinking about inclusive and accessible (as opposed to assistive) technology and provide some very practical ways that accessible technologies would promote greater access and flexibility for disabled students and adults. We contend that technology should be conceived of as a global, accessible and inclusive concept, not one that requires a qualifier based on who it is for.     

Developments in special education in Ireland: deep structures and policy making

Clinical discourses from the domains of medicine and psychology exert a powerful influence on theory and practice in special education. These discourses first define disability as ‘an individual human condition’ and locate ‘the problem’ in the physiological and psychological characteristics of the individual. Second, they privilege the role of experts and exclude the perspectives of disabled people themselves. In spite of considerable criticism, psycho-medical definitions of and responses to disability have been incorporated into educational legislation in Ireland and continue to dominate policy development in special education. The real danger of failing to address these deep structures in special education is that exclusion and marginalization will be reproduced even in well-intentioned and well-supported programmes.     

Inclusive Education: Teachers and the Changing Culture of Schooling

Anastasia Vlachou and Proffessor Len Barton (Head of the Department of Education, University of Sheffield) focus on some of the issues concerning the work context of teachers in a rapidly changing environment and ways in which these affect attitudes to the education of children with special educational needs.     

Dis(en)abled: legitimating discriminatory practice in the name of inclusion?

This article explores tensions between the policies and practice of inclusion and the lived experiences of disabled young people in education. Drawing on the narratives of two young men who participated in a small pilot study, it utilises theoretical concepts related to disability, structure and agency, and power and control, as it explores the ways in which inclusion can create subtle (and sometimes not so subtle) forms of exclusion. Focusing on the young men's experiences of further and higher education, it is argued that inclusive practices and policies, however well intentioned, can create new and subtle forms of marginalisation through the structures and discourse intended to address exclusion. I conclude by questioning whether, in a diverse and disparate society, in which all our lives are defined by the extent to which we are more or less equal than others, inclusion can ever be anything other than an illusory concept.     

Promoting access to education for disabled children in low-income countries: Do we need to know how many disabled children there are?

Poor people are most likely to be disabled, and the exclusion of disabled people from education means that they are also more likely to remain poor. Despite calls for better data to inform the extension of education for disabled children, data in this field remain weak. This paper asks whether a national survey of disability prevalence is the best starting point when promoting the educational inclusion of disabled children in low and middle-income countries. The paper analyses what information is needed about disability in education systems, and also analyses difficulties with measuring childhood disability. The paper concludes that the most pragmatic and ethical way forward is to make the most of knowledge we already have to develop and continue learning from existing provision.     

Disabling discourses and some implications for parent leadership in special education policy and practice

The paper aims to explore ways in which mothers of children with cerebral palsy (CP) attempt to voice their concerns about current discourses and power imbalances enshrined in special education policy and provision. Mothers’ narratives are important in making transparent the multiple forms of ‘disablism’ experienced by them in their attempts to negotiate and counteract on behalf of their children deficit-based and discriminatory discourses and professional practices that violate their children’s rights, notwithstanding international and national legal mandates promoting a rights-based approach to disability. Their narrated subjugated agency in disability politics highlights the imperative to introduce new forms of advocacy through parent leadership in order to enable parents to have a more active and strategic role in challenging disabling discourses and practices that undermine their children’s rights and entitlements.     

Higher education experiences of elite student-para-athletes in the UK

This article presents the narrative accounts of six elite student-para-athletes attending higher education full time in the UK. Whilst literature concerning the student-athlete population in the UK is growing, there is no research at present that brings to the fore the voices of student-athletes who represent their country in Paralympic sports. In addition, research concerning the experiences of higher education students with disabilities in the UK is heavily concerned with the experience of learning as opposed to the more nuanced experiences of ‘being’ a university student. Accounts concerning the lived experience of higher education were gathered via semi-structured interviews and analysed through a process of interpretative phenomenological analysis producing an intricate, intimate and personal theme for each participant. Analysed and presented as individual case studies, the research demonstrates the uniqueness of experience despite the existence of common and shared life environments. The accounts explore three life-worlds – university, elite sport and disability – and expose the difference in meaning-making by each participant to the identities of ‘athlete’, ‘student’ and ‘disabled’, specifically within the context of higher education. The accounts are presented as three themes that illuminate the contrast in experience: (1) university as a normative and positive experience; (2) university as a disappointing and hindering experience; and (3) university as an experience of personal salvation and purpose. Findings are mapped to the social-relational model of disability to better understand the relationship between individual perception, impairment and environment.     

The force of habit: channelling young bodies at alternative education spaces

This article develops a novel conceptual framework for examining the (re)formulation of habits in education spaces. It is based on the premise that education spaces are key sites for channelling and intervening in children’s habits, to various ends. The article focuses on the ways educators at alternative education spaces in the United Kingdom seek to (re)formulate children’s habits. In some cases, they do so to combat social exclusion, dealing with some of the most vulnerable children in the UK’s educational system. Drawing on the habit-theories of Ravaisson and Dewey, and commensurate post-human, more-than-social approaches to childhood, the article proposes a two-fold conceptualisation of habit: as ‘(re)calibration’ and as ‘contagion’. The article draws on empirical examples taken from 10 years’ research across 59 alternative education spaces in the United Kingdom. Developing recent educational scholarship on bodies, emotions and affects, it develops an expanded, post-human notion of ‘collective’ habits that might offer a conceptual language for challenging and imagining alternatives to the perceived problems of the neoliberal educational mainstream. However, the article closes by posing some critical questions for further scholarship about why educators might specifically choose to intervene into children’s habits – not least in terms of inclusion and social justice.     

Revealing the research ‘hole’ of early childhood education for sustainability: a preliminary survey of the literature

In 2007, Environmental Education Research dedicated a special issue to childhood and environmental education. This paper makes a case for ‘early childhood’ to also be in the discussions. Here, I am referring to early childhood as the before‐school years, focusing on educational settings such as childcare centres and kindergartens. This sector is one of the research ‘holes’ that Reid and Scott ask the environmental education community to have the ‘courage to discuss’. This paper draws on a survey of Australian and international research journals in environmental education and early childhood education seeking studies at their intersection. Few were found. Some studies explored young children’s relationships with nature (education in the environment). A smaller number discussed young children’s understandings of environmental topics (education about the environment). Hardly any centred on young children as agents of change (education for the environment). At a time when there is a growing literature showing that early investments in human capital offer substantial returns to individuals and communities and have a far‐reaching effect – and when early childhood educators are beginning to engage with sustainability – it is vital that our field responds. This paper calls for urgent action – especially for research – to address the gap.     

More policies,greater inclusion? Exploring the contradictions of New Labour inclusive education policy

The era of New Labour government has witnessed unprecedented growth in inclusive education policies. There is, however, limited evidence that policies have increased disabled children’s inclusion. This article explores reasons for this contradiction. Drawing on sociological insights, it is argued that New Labour policies on inclusive education take their cues from wider neo‐liberal constructions of social exclusion; ideas that point to the personal deficits of the excluded rather than social barriers and inequalities that systematically exclude. Increasingly narrow definitions of educational success are likely to add to this exclusion. This mirrors New Labour’s broader social inclusion agenda in emphasising ‘conditional’ inclusion and an increasingly utilitarian approach to social policy. New Labour, it is argued, needs to review the lessons of history in reducing disabled children’s educational exclusion if real progress is to be made. Warnock’s recent attack on the principle of inclusive education makes this review all the more urgent.     

Teacher counternarratives: transgressing and ‘restorying’ disability in education

This inquiry aims to explore the disconnect between the disability studies in education (DSE) perspectives on inclusive schooling held by a group of dually certified inclusive educators and the everyday, lived experiences of these same teachers who find themselves teaching students with labelled disabilities within the confines of the special education bureaucracy. Through a collaborative inquiry circle (with a teacher educator who is a faculty member in a dual-certification programme informed by a DSE perspective and seven teachers who are graduates of this teacher education programme), this study aims to: (1) articulate the dominant narratives or storylines about disability in education that may ‘discipline’ teachers' practice within the special education bureaucracy; (2) illustrate some of the ways in which teachers do resist and transgress the discursive structures of schooling in ways that enable them to ‘restory’ disability in education; and (3) explore the implications of this work for preparing teachers to be dually certified, inclusive educators of all children in public schools.     

The Social Status of Children with Disabilities and Their Families as Determined by Census Data

Russia’s ratification of the UN Convention on the Rights of Persons with Disabilities (CRPD) has necessitated that regular monitoring studies of the social situation of people with disabilities and families with disabled members be conducted. These studies have exacerbated the issue of obtaining accessible data that is suitable for these purposes. The article investigates specific concerns related to Russian disability statistics and the place of census data in compiling these statistics. The latter are of interest to the study of the social position of disabled persons in Russia. However, they have never been used for these purposes before. This article focuses on the analysis of the socioeconomic situation of families with disabled children as one of the most vulnerable groups in the population. We analyze the accuracy of the census estimates of the contingent of children with disabilities as compared against administrative data, and discover that the number of disabled children has been underreported, due to the inaccuracy of the disability criterion. We have assessed the composition of families with disabled children, the level of education and employment of parents, the livelihoods of these families, and the level of access of children to education on the basis of the recently released microdata from the 2002 and 2010 Russian Censuses. In light of these characteristics, we are able to demonstrate existing inequalities in the social status of families with disabled children in comparison with other families with children without disabilities. In conclusion, having determined the scope of the problem, we demonstrate the possibility for developing disability statistics as the foundation for implementing the principles of the CRPD. In particular, we propose methods for providing a social definition of disability by assessing functional status through continuous and sample surveys of the population. The use of standard international practices would allow assessing the social status of families with disabled children in a comparative perspective.     

Rethinking the Boundaries: Response

In his Keynote address, Dr. Kretchmar suggests that children who demonstrate an inability or unwillingness to play may have a ‘play disability,’ and thus offers interventions for remediation. In response, Oslin and Collier argue that due to cultural influences, it is more likely that physical educators are play disabled. Oslin and Collier share Kretchmar's sentiment that playing and valuing play is essential to becoming physically educated and living a fulfilling life. Recommendations are offered as a means of infusing play into PETE and physical education curriculums.     

Plans that work: improving employment outcomes for young people with learning disabilities

This article offers a critical reflection on the function of education, health and care plans (EHCPs) in pathways to employment for disabled young people. We consider ‘the education plan’ as an artefact of special educational needs systems. We problematise the often taken‐for‐granted assumption that such plans are always and only a ‘good’ thing in the lives of disabled young people seeking pathways to employment. At the same time, we consider the rise in demand for plans that are understood by many as a crucial mechanism for achieving support. Following the recent policy reforms in England, we describe a context in which the funding of education is shrinking and in which the promise of employment for disabled young people has yet to be delivered. We conclude by proposing some changes to policy and practice to enhance employment opportunities for disabled young people.     

‘Diff‐ability’ not ‘disability’: right‐brained thinkers in a left‐brained education system

This article draws on critical disability studies, challenging the exclusion of right‐brained thinkers from an education system designed to privilege left‐brained thinkers. It focuses on individuals who are labelled dyspraxic, providing data from qualitative interviews with adults about childhood experiences in school and the impact on their emotional well‐being and peer relationships. Utilising Ornstein's pioneering research on the bilateral specialisation of the brain and hemispheric dominance in addition to a critical disability studies theoretical framework, this article innovatively argues that the fact that education in England continues to be delivered in a logical sequential form, even 40 years after Ornstein's work, is systemic discrimination in which dyspraxic children are constructed as ‘deviant’. The article concludes by arguing that individuals with dyspraxia should be seen as having a ‘diff‐ability’ in thinking style rather than a disability and therefore recommends both change and awareness‐raising at institutional level in the education system.