Living with a rare health condition: the influence of a support community and public stigma on communication,stress, and available support

People affected by rare diseases often have limited coping resources and sometimes face stigma. They build communities with others who share their conditions, but not all members may benefit from these communities. This study investigated how adults with a rare genetic health condition (Alpha-1 antitrypsin deficiency; AATD) think about both the Alpha-1 community and public stigma about AATD, and how these cognitions predict their communication responses and well-being. The results showed that people with AATD-encountered stigmatization from various sources. Stronger public stigma predicted more secrecy, more stress, and less available support. Stronger group identification with the Alpha-1 community predicted less secrecy; stronger group activism predicted more available support and more communication to challenge stigmatizers. Post hoc analyses showed significant interactions between public stigma and group cognitions on communication to challenge stigmatizers. Practical implications for bolstering communities to improve the well-being of people with rare diseases were discussed.     

Insights into stigma management communication theory: considering stigmatization as interpersonal influence

ABSTRACT

The theory of stigma management communication has helped identify and categorize the tactics people use to manage stigmatization, but tactics' predictors remain unknown. To address this gap, we considered stigmatization through the lens of interpersonal influence: as an act in which stigmatizers attempt to persuade their targets to accept categorization and de-individualization into a social group with a marginalized social status. Obstacle hypothesis, a theory of resistance to interpersonal influence, was used to derive predictors. Participants (N = 124) facing possible stigmatization due to their genetic risk for a chronic health condition completed a survey and shared memories of their initial test disclosures. The empirical tests showed that having a stronger sense of meaning in life, more unsafe experiences, and a broader information network predicted resisting stigmatization. The practical implications of bolstering one's sense of meaning in life and argumentation skills and their connections to resilience research are discussed.     

Political Participation,Efficacy and the 2008 Minnesota Presidential Caucuses

The purpose of this study was to learn why Minnesota residents participated in the presidential caucus on Super Tuesday, February 5, 2008. The research team interviewed a total of 37 registered Republican (n = 15) and Democrat (n = 22) Minnesota voters from a mid-sized Midwestern community on caucus night. Open-ended, semi-structured interviews elicited the reasons voters said they participated in the caucus. Using grounded theory, several categories of responses emerged from data including duty and responsibility, making a difference, special election, participation, supporting a candidate, and concern for the country. The results show the majority of participants were motivated to take part because they viewed it as a duty and a responsibility as citizens of a democracy. Participants did not use the caucus as a forum for discussion and dialogue surrounding the election, but as an outlet to achieve political efficacy.     

A Test of the Relationship Between Argumentativeness and Individualism/Collectivism in the United States and Finland

This study explored relationships between argumentativeness and collectivism/individualism in Finland and the United States. Data were gathered in the United States (n = 412) and Finland (n = 261). The analysis suggested: (a) collectivism was negatively correlated with argumentativeness, (b) individualism was positively correlated with argumentativeness, and (c) Finnish participants reported lower levels of argumentativeness than Americans. Cultural differences between the United States and Finland are discussed as reasons for the differences between the nations on argumentativeness.     

When Instructors Self-Disclose but Misbehave: Conditional Effects on Student Engagement and Interest

This study examined the conditional influence of relevant instructor self-disclosure on student interest (cognitive, emotional) and engagement (silent-in-class, oral-in-class, thinking about course content, out-of-class). College student participants (N = 169) completed a questionnaire on their instructor’s disclosures and misbehaviors in class, and their own interest and engagement in a college course. The positive associations between relevant instructor self-disclosure with student interest and engagement were conditional; they were moderated by perceived instructor misbehaviors (antagonism, lectures). Overall, the positive associations were diminished for cognitive and emotional interest when instructors were antagonistic; these associations became nonsignificant, and then negative at higher levels of antagonism. Similarly, the positive associations were diminished for all four types of student engagement when instructors delivered boring and confusing lectures; these associations became nonsignificant at higher levels of lecture misbehaviors, and the associations for silent in-class and out-of-class engagement became negative at very high levels of lecture misbehaviors.     

The Effects of “Friend” Characteristics on Evaluations of an Activist Group in a Social Networking Context

Research suggests that individuals use cues about the popularity of a cause or group to make judgments. This bandwagon phenomenon has found particular support in online contexts. However, perceptions regarding the group may also depend on the identity of those supporters. We employed a 2 × 2 × 2 experiment to test the effect of number of affiliates and affiliate race and age on feelings toward the group, its page, and intended support. Results suggest that feelings are not subject to a consistent bandwagon effect but rather are moderated by race, with White participants exhibiting more positive feelings when seeing a page with few Black affiliates or many White affiliates. This result contrasts with findings for age, which serves to moderate only intended page use.     

A Normative Approach to Shaping College Students' Attitudes Toward Organ Donation

This study tested the effects of normative influence on increasing college students' attitudes, intentions, and willingness to communicate about organ and tissue donation (OTD). It was hypothesized that students would look to their peers (referent group) in forming their own attitudes about organ donation. Three hundred thirty-nine (N = 339) participants were randomly assigned to one of five experimental conditions: (1) control group; (2) general referent/normative message group; (3) specific referent/normative message group; (4) general referent/counternormative message group; and (5) specific referent/counternormative message group. An interaction effect was predicted between message type (normative > counternormative) and attributed message source (specific referent > general referent). Students reported highly favorable attitudes toward OTD, moderate-to-high levels of intentions to become organ donors and willingness to communicate about OTD. The hypothesis that participants within the normative message condition would report more favorable attitudes, intentions, and willingness to communicate about OTD compared to participants within the counternormative message condition was supported for participants' willingness to communicate about OTD. The second hypothesis that participants within the specific referent condition would express more favorable attitudes, intentions, and willingness to communicate was rejected.     

Golden Handcuffs in the Fortune 1000? An Employee-Organization Relationship Survey of Public Relations Executives and Practitioners in the Largest Companies

This study delivered an employee-organization relationship survey to public relations executives and practitioners in Fortune 1000 companies. Almost two-thirds (64.3%) were the top-ranking public relations executives in their organizations, and most (79.2%) were paid $100,000 or more. Respondents had significantly higher scores on a majority (66.7%) of relationship outcome measures than did Millennials who worked for public relations agencies. The researcher found a statistically significant difference between salary categories at or above $100,000 and those below $100,000 on the combined dependent variables of trust, control mutuality, commitment, and satisfaction using a one-way between-groups multivariate analysis of variance: F(1, 50) = 4.586, p = .003; Wilks’ Lambda = .71; partial η² = .29. Results may be explained by age and workplace variables and/or the higher compensation and benefits embodied in the concept of the Golden Handcuffs. Results also suggest that relationship-type scales are not reliable.     

Topic Avoidance,Everyday Talk,and Stress in Romantic Military and Non-Military Couples

Relationships are increasingly impacted by military involvement, necessitating a deeper understanding of communication within these couples. This study examined perceptions of everyday talk, topic avoidance, and stress of participants romantically involved with (a) a military partner (n = 118) or (b) a non-military partner (n = 94). Couple types avoided similar topics, but non-military partners avoided these topics more frequently than military partners. Both couple types engaged in everyday talk, but military partners found this communicative exchange to be more important. Non-military partners experienced greater stress than military partners, and communication was predictive of the stress experienced. The results of this study highlight similarities and differences in romantic couples and reveal areas in which relationship education can address these communicative nuances of military couples.     

How Movies Can Ease the Fear of Death: The Survival or Death of the Protagonists in Meaningful Movies

Many media entertainment products address the fragility of life by portraying the severe illness or death of the protagonist. According to terror management theory, people need to create meaning in their lives when they are reminded of their own mortality, for instance, by engaging in close relationships with others. Meaningful films may provide recipients with an anxiety buffer that helps them to cope with existential fear. The results of an experimental study (N = 130) demonstrated that participants who had been reminded of their mortality appreciated a meaningful movie more and liked the protagonist better when he survived than when he died. Further, participants who viewed the movie in which the protagonist survived did not activate their self-esteem-based anxiety buffer. The results point toward the potential of entertainment to provide internal anxiety buffers and thereby help in coping with self-threatening situations. The findings are discussed in terms of the connections between meaningful media entertainment, coping mechanisms, and viewers’ terror management.     

Attribution Theory in the College Classroom: Examining the Relationship of Student Attributions and Instructional Dissent

This study sought to expand knowledge on instructional dissent by establishing the relationship between student attributions of instructor behavior (attribution theory) and their own communicative behavior following a difference of opinion with an instructor. Student participants (N = 244) completed survey questionnaires regarding their perceptions of instructor's internality for a perceived disagreement and their own communicative behavior following the incident (i.e., expressive, rhetorical, or vengeful dissent). Results indicate that students’ attributions of internality are positively related to all three forms of dissent.     

Attributional support: Targeting attributions underlying recipient emotions

The attribution theory of emotion (Weiner, 1986) is presented as a common example of a naïve theory finding that people expect attributions of personal control and other control to underlie feelings of guilt and anger respectively. The study predicts that supporters use this implicit knowledge to focus their supportive messages on the attributions corresponding to their recipients’ reported emotions. It is also possible that supporters are influenced by their own attributions about support recipients’ problems. The data from 84 college students indicate that the supporters’ intended and actual messages tended to follow their own attributions about their recipients’ situation rather than the attributions implied by the emotions reported by their recipients. It is suggested that some supporters fail to be comforting to their recipients because they do not perceive the situation in the same way as their recipients, and may therefore try to change their recipients ‘ perceptions of their problems.     

Victor C. Strasburger and Barbara Jan Wilson. Children,Adolescents, & the Media. Thousand Oaks,CA: Sage, 2002, 560 pp., ISBN 9780761921257 (paperback)

Recent research shows parents manifest parental third-person perceptions on behalf of their children; that is, they believe their children are less affected by media sex and violence than other children. This study (N = 171) found parental third-person perceptions for materialism effects of television and parental first-person perceptions for advanced educational effects of public television. Perceptions of materialism effects on one's own and other children predicted parental mediation, whereas perceptions of education effects predicted support for regulations requiring more educational television.     

Processing of Sexual Media Messages Improves Due to Media Literacy Effects on Perceived Message Desirability

This study tested the double-edged desirability hypothesis to investigate whether a lack of reduction in desirability perceptions signified failure of a media literacy intervention to reduce the appeal of sexual portrayals or whether it instead represented an improved awareness of message-design techniques and, therefore, a successful intervention. Data from two media literacy curriculum evaluations, both pretest–posttest quasi-experiments with control groups (N₁ = 922, M = 14.13, SD = 1.07; N₂ = 1,098, M = 14.26, SD = 1.06) showed that the media literacy treatment in both studies eliminated the effect of desirability on participants’ attitudes, reduced the effect of message desirability on participants’ expectancies, and reduced the effect of message desirability on participants’ efficacy in one of the evaluations. The results supported the double-edged desirability hypothesis, which holds that media literacy education can diminish the influence of desirable but unrealistic sexual media messages on adolescents’ decision making concerning sex, regardless of whether it decreases their affinity for the messages. This approach appears to represent a more effective alternative to demonizing media messages teens find desirable.     

Shared Entertainment,Shared Opinions: The Influence of Social TV Comments on the Evaluation of Talent Shows

The present research investigated whether co-viewer comments in social TV interactions are able to enhance or weaken media effects. With the example of talent shows, the valence of co-viewer comments (pro/contra/none) as well as the type of content (antisocial behavior vs. conventional performance) were varied in an experiment (N = 117). Results showed that participants’ own comments and their private attitudes about the judges varied in line with comment valence. Findings suggest that social TV viewers are prone to social influence of their co-viewers, which might amplify problems regarding the portrayal of antisocial behavior in reality TV.     

Does E-mail Facilitate Negative Performance Feedback Giving?: Supervisor and Subordinate Responses Compared via the Concept of Social Accountability

With full- or part-time employees in Hong Kong as subjects, two studies examined how supervisors (n = 113) and subordinates (n = 145) reacted to a feedback scenario under the social accountability conditions depicted by a 2 (Valence: Positive or Negative) × 2 (Medium: FTF or e-mail) factorial design. Message valence explained greater variance than did medium, and e-mail was viable in mitigating both accountability-related reactions. Negative feedback, compared to positive feedback, created higher accountability that led participants in the role of a manager to feel greater anxiety and pressure, to perceive less effective message delivery and image and relationship management, and more likely to anticipate accountable behaviors. The perceptions by subordinate-subjects largely mirrored those by supervisor-subjects.     

Religious Pluralistic Language in a Computer-Mediated Context: Effects of Intergroup Salience and Religious Orientation

This study investigated the degree to which religious pluralistic language varies as a function of the intergroup salience of a context and religious orientation. Based on a 2 (Religious Salience of Context) × 3 (Religious Salience of Topic) experimental design, participants (N = 239) were instructed to compose an e-mail to an interactional partner based on the randomly assigned condition. Messages were coded for religious pluralistic language, and participants completed measures of religious orientation and evaluations of the conversational partner. Modest effects were found for both intergroup salience of the context and topic as well as religious orientation.     

Online Environmental Engagement Among Youth: Influence of Parents,Attitudes and Demographics

Although young citizens may not always politically engage in the same fashion as their elders, research suggests they are using Facebook, Twitter, and other newer communication systems to mobilize politically both generally and around environmental issues. Given the declining environmental conditions facing young citizens, a national stratified quota sample of 1,096 U.S. parents and their children between the ages of 12 and 17 was conducted to investigate the factors potentially related to their efforts to persuade members of their online social networks to be more environmental. We believe that online peer persuasion is an important concept to investigate because peer persuasion can create subjective norms that ultimately may influence behavior. Hierarchical regression analysis revealed that, although parents influence youth behavior (Adj. R ² = .11), the greatest variance in behavior was explained by the youth's own environmental self-efficacy, environmental news consumption, political interest, time spent online, gender, and environmental consumerism (ΔR ² = .29). Youth political interest and environmental consumerism were especially important variables in the final model. Structural equation modeling reinforced that parental influence is primarily indirect. This study appears to be among the first to link environmental consumerism with youth online peer persuasion.