Listening to young people with autism: learning from researcher experiences

This study explores the opportunities and dilemmas that have been encountered by researchers seeking the views of young people with autism. Twelve researchers were interviewed about their experiences in this field. Through exploration of the complex methodological and ethical issues that they encountered, this study aims to better understand how researchers can improve the way they listen to, and engage with, the views of children and young people with autism. This article discusses four themes that emerged from the interviews: power dynamics; building rapport; communication; and meaningful processes and outputs.     

Cyberbullying: through the eyes of children and young people

The topic of cyberbullying is raising international debate and concern. Through the development and dissemination of a questionnaire 12 student researchers were supported in surveying 325 UK students across Years 7, 8 and 9 to gain further knowledge of this area, in relation to children and young people. Results were analysed and comparisons made between gender and age, allowing conclusions to be drawn about the area of cyberbullying and its many elements. Conclusions acknowledge that bullying has entered a “digital era” and professionals and adults require the knowledge and skills to help young people to further understand the issues involved and to protect themselves in this area.     

Literacy skills in children and adolescents with Down syndrome

Research has found that many children andadolescents with Down syndrome acquire somelevel of reading ability. Studies to date havedocumented that cognition, language, andphonological awareness contribute tovariability observed in performance onconventional literacy measures for thispopulation, although the extent of relativecontributions varies among studies. Less isknown about the relationship of early literacyskills to conventional reading, or howrelationships among variables that supportliteracy acquisition are similar or differentfrom those observed in typically developingchildren. In this project, cognition,language, early literacy, phonologicalawareness and reading skills were examined in agroup of children and adolescents with Downsyndrome (aged 5;06 to 17;03) and a group oftypically developing children (aged 3;06 to5;03) matched for nonverbal cognition. Resultsrevealed broad variability in performance onearly literacy and reading measures in personswith Down syndrome. Comparisons with mental age-matchedchildren indicated differences in the relativecontribution of language and cognition toreading ability, with language being a strongerpredictor in the group with Down syndrome.     

Training reading and phoneme awareness skills in children with Down syndrome

The authors report a short-term reading intervention study involving 15 children with Down syndrome (DS) who attended mainstream schools. The intervention programme taught children phoneme segmentation and blending skills in the context of learning letter-sounds and working with words in books. The children were taught by their learning support assistants, who received special training for this purpose. Compared to a waiting group, a group of eight children with DS improved significantly on measures of early literacy skills (letter-sound knowledge, Early Word Recognition) following eight weeks of intervention. The waiting group started to make progress once they received the intervention. Both groups maintained progress on the literacy measures five months after the intervention had finished. The results suggest that children with DS can benefit from structured, phonics-based reading intervention.     

Gathering the views of children and young people to inform practice in a psychological service

This paper describes the process employed by a psychological service to gather the views of children and young people using guided discussion groups and questionnaires. Pupils in the guided discussion groups were asked to identify issues that affect them and how adults could help. This information was analysed using thematic analysis. Seven themes were identified as issues: managing feelings; friendships; behaviour; specific difficulties that can affect learning; not being accepted; bullying; and ‘other important issues’, including bereavement and family difficulties. In relation to each of these themed issues, several sub‐themes regarding how adults could help were collated. Questionnaire data was analysed using inferential statistics. The questionnaire rated the importance of help from adults in the areas of learning, friendships and feelings. Results suggested that these were equally important to primary‐aged pupils. Findings were used to contribute to the development plan and shape future practice.     

The rights of children and young people under special educational needs legislation in England: an inclusive agenda?

ABSTRACT

In this article we consider the rights of children and young people with special educational needs and disabilities in England, introduced under the Children and Families Act 2014, within the context of the wider reforms made by the Act. Drawing primarily on key informant interviews conducted as part of an ESRC project on Autonomy, Rights and Children with Special Needs: A New Paradigm? (ES/P002641/1), and making reference to the international framework of children’s and disabled persons’ rights, we present an analysis of the (mostly professional) viewpoints gathered and what they tell us about the progress towards the realisation of children and young people’s autonomy and agency in this field.     

A deficit in rime awareness in children with Down syndrome

This paper reports 3 studies comparing thereading and phonological skills of childrenwith Down syndrome (DS) and younger normallydeveloping children of similar reading level.In Study 1, the two groups did not differ insight word or nonword reading, but the childrenwith DS did marginally less well on syllablesegmentation, rhyme and phoneme detectiontasks. Group differences in syllable andphoneme awareness appeared attributable todifferences in verbal ability (BPVS, vocabularyknowledge); however, a significant impairmentin rhyme detection remained in an analysis ofsub-groups equated in vocabulary knowledge. Thedeficit in rhyme observed in DS was replicatedin Studies 2 and 3 using simplified tests ofrhyme judgement, with the majority of childrenwith DS performing at chance on the rhymemeasures. In contrast, the two groups did notdiffer in their ability to detect phonemes inany of the 3 studies and performed above chancein initial phoneme detection and alliterationjudgement tasks, although the identification offinal phonemes was at a much lower level. Correlational analyses indicated a relationshipbetween phonological skills and reading inboth groups. However, for children with DS,letter-sound knowledge did not predict readingwhereas it did for normal controls. It issuggested that children with DS do not possessfull phoneme awareness; although they canidentify initial phonemes in words, they do notunderstand phoneme invariance and may rely lesson phonological skills for reading thancontrols.     

The consequences of being labelled ‘looked‐after’: Exploring the educational experiences of looked‐after children and young people in Wales

The educational experiences and attainment of looked‐after children and young people (LACYP) remains an issue of widespread international concern. Within the UK, children and young people in care achieve poorer educational outcomes compared to individuals not in care. Despite proliferation of research documenting the reasons for educational disadvantage amongst this population, there remains limited empirical consideration of the lived experiences of the educational system, as perceived by LACYP themselves. This paper draws upon qualitative research with 67 care‐experienced children and young people in Wales. The sample was aged 6–27 years, and comprised 27 females and 40 males. Participants had experienced a range of care placements. Findings focus on how educational policies and practices alienate LACYP from dominant discourses of educational achievement through assignment of the ‘supported’ subject position, where children and young people are permitted and even encouraged not to succeed academically due to their complex and disrupted home circumstances. However, such diminished expectations are rejected by LACYP, who want to be pushed and challenged in the realisation of their potential. The paper argues that more differentiated understandings of LACYP's aspirations and capabilities need to be embedded into everyday practices, to ensure that effective educational support systems are developed.     

Visions for literacy: parents’ aspirations for reading in children with Down syndrome

Although children with Down syndrome (DS) can learn to read, few studies have explored parental perspectives on the reading development of this group of children. This article, written by Leila Ricci and Anna Osipova, from California State University, explores visions and expectations regarding reading held by parents of children with Down syndrome in the US. Parents of 50 children with DS (aged three to 13 years) completed a survey about their children's interest in reading and responded to open‐ended questions inquiring about their views on their children's reading development. A majority of parents in this study described their children's positive attitude toward reading, stated their reading‐related goals for their children, defined their children's relative strengths in reading, and shared strategies used in the home to promote literacy in this population. Parents pay close attention to and have high expectations for their children's reading achievement, and thereby would benefit from partnerships with informed educators willing and capable of teaching reading to children with DS.     

Teacher perceptions of facilitators and barriers to implementing classroom physical activity breaks

Abstract

Physical activity plays an important role in childhood development and is associated with positive health, social, emotional, and academic benefits. Despite this, children are often sedentary for most of their school day and fail to meet daily activity recommendations. Incorporating physical activity breaks into the classroom can achieve many positive outcomes, however has not been widely adopted. This study used the diffusion of innovation theory as a framework to examine teacher perceptions of barriers and facilitators to incorporating physical activity breaks into their elementary classrooms. Teachers perceived compatibility with teaching philosophy and observability of benefits to most students as strong facilitators. They struggled to reconcile relative advantage and trailability, primarily due to classroom management issues associated with just a few students. Lack of complexity facilitated implementation, however upper grade teachers felt a strong need to connect activity to academics which threatened complexity. The authors conclude with recommendations to increase adoption.     

Systematic review of the evidence to support expert practice in the education and care of children and young people with special educational needs and disability in the UK

Scopus, EBSCO, ERIC and British Education Index were interrogated in a systematic review of primary research since 2014 addressing expert practice and outcomes in education and care for young people with special educational needs and disability in the UK. Grey literature and studies of medical settings, preschool children, mainstream education or professional education were excluded. Quality was gauged by effect sizes, risk of bias and the Critical Appraisal Skills Programme. The search identified 7058 items. Twenty-eight studies were included, with 1839 participants of 4–22 years. Risk of bias was low, with effect sizes from small to extremely large. The qualitative studies were rigorous. Expert practice with positive outcomes was evidenced in comprehensive assessment, enhancing engagement and personalised interventions. Correction of visual problems, use of humanoid robots, and tested models were generally effective. There was rigorous evidence for efficacy of frameworks and reasonable evidence for creative approaches to physical activity. Drama lessons were valued. Standing frame use improved peer interaction or caused segregation. Disparity between problem identification and planned support in education health and care plans, and addressing personal and physical health factors were problematic. The voice of young people was lacking. More training was required in augmented and alternative communication.     

Play to learn: a case-study of parent/carer and child engagement with a physical activity website resource

In 2007, Sport Wales produced guidance for practitioners delivering the new Foundation Phase curriculum for children aged three to seven years. A focus was on physical development and in 2009 a resource entitled Play to Learn was developed supported by a website launched in 2011. The present study addresses (non-)engagement with the website. Based on a qualitative study (interviews and focus groups) with a small cohort of parents from a primary school in South Wales, the findings revealed some of the reasons for only low levels of engagement from parents/carers. ‘Hard copy’ resource materials were considered more useful than electronic media.     

Writing readiness and children with Down Syndrome in an Irish context

There is a dearth of studies investigating writing readiness in children with Down Syndrome (DS) and limited information on appropriate interventions. This article reports on a study conducted in the Republic of Ireland. An uncontrolled pretest‐posttest design was implemented using writing readiness measures specifically adapted/developed from the literature to collect data on the writing readiness skills of 28 school‐aged children with DS attending mainstream schools in the Republic of Ireland. Teacher/parent perspectives were also gathered during focus groups. The children presented with complex needs in relation to posture, pencil grasp, copying basic shapes, name/letter copying. Teacher and parent reports highlighted the need for collaborative intervention with occupational therapy. Findings from the study support the need for targeted early collaborative syndrome‐specific intervention to support the development of writing readiness in children with DS as an important part of school readiness. Intervention should include adopting a broader emergent literacy approach, teacher education regarding writing readiness and parental involvement in intervention.     

Fundamental movement skills and their relationship with measures of health-related physical fitness of primary school children prior to secondary school transition: a Welsh perspective

ABSTRACT

The aims of this study were to investigate levels of fundamental movement skills (FMS) proficiency and their relationship with measures of health-related physical fitness of primary school children prior to their transition to high school in Wales. The results demonstrated that overall levels of FMS proficiency with these children were low with significant differences existing between the genders. In addition, the measures of health-related physical fitness significantly correlated with FMS proficiency in both genders. In summary, these findings suggest that primary school children lack the foundational elements to support their transition to high school physical education.     

Relationships between reading,phonological skills and language development in individuals with Down syndrome: A five year follow-up study

This article is based on language, memory andreading information gathered for a five yearfollow-up study of 30 children and adolescentswith Down syndrome, aged from 10 to 24 years atthe end of the study. At Time 1, 10individuals were classified as readers but byTime 2 this number had risen to 16. Readers significantly outperformed non-readerson tests of nonverbal ability, languagecomprehension and production, phonologicalmemory and phonological awarenesss. However,some of these differences could be accountedfor by readers' significantly lower hearingthresholds. Phonological memory and earlyletter knowledge at Time 1 were significantpredictors of reading scores for Time 2readers, after controlling for age, nonverbalability and corresponding Time 1 readingscores. There was no evidence that learning toread had a significant impact on later languagecomprehension, but early reading skills may besignificant predictors of MLU five years later,after controlling for age, nonverbal abilityand hearing.     

The mental health and psychological well-being of refugee children and young people: an exploration of risk,resilience and protective factors

This research investigates the perceptions of refugee children, refugee parents and school staff regarding the positive adaptation of refugee children in a new social context and the effects on mental health and psychological well-being. This included an exploration of resilience and the role of risk and protective factors. Few studies have focused on views from a resilience perspective, and these have tended to use quantitative rather than qualitative measures. This mixed methods piece of “real world” research adopted a “what’s working well” perspective and explored the important voices of these children, parents and school staff. Staff, parent and child responses were triangulated to provide a rich picture of the potential protective factors operating within the school and family environment. Implications for practice are discussed.     

Talking relationships,babies and bodies with young children: the experiences of parents in England

Parents often find themselves ill-prepared for the moment at which questions of a sexual nature arise, or when children display signs of playful behaviour that can be interpreted as sexual. How these behaviours and questions are dealt with establishes the foundations on which children begin to interpret relationships, their bodies, those of others and the sexual world in which they live. In this study, the views and experiences of dealing with early childhood sexuality education, along with the ways in which communication had occurred, were collected from 110 parents in London and southern England during focus group discussions and analysed using thematic analysis. Parents who had chosen to communicate with their children reported a range of justifications as to why childhood sexuality communication was considered necessary and had, indeed, occurred. Six key themes were identified: communication prompts, the need for truth, the threat of ignorance, exposure, healthy and positive relationships and openness. Findings reveal that many parents are making strategic decisions about how to discuss relationships and sexuality with their young children. By highlighting the central trigger points for early parent-child sexuality communication, findings can be used to aid the development of relevant practice responses to support less confident parents to communicate effectively.     

Transition scenarios for young people with learning disabilities in Spain. Relationships and discrepancies

This paper examines transition scenarios to adult and active life in Spain from an inclusive viewpoint. For people with learning disabilities, the transition to adult life is a particularly complex process worldwide, and this is especially true in Spain. The multitude of services and professionals involved, the diversity of views regarding what represents integration, the difficult coordination between school and post-school services, these are just some of the situations that pose obstacles in constructing paths towards transition. An overall understanding of the relationships existing between the different scenarios in which these processes take place is fundamental if the necessary actions for improvement are to be established. This article aims to analyse this situation, presenting the main discrepancies observed in and between Spanish schools and the post-school services that condition the fulfilment of objectives relating to inclusion in society and the workplace. The article concludes by proposing actions for fostering the transition to adult life from an inclusive perspective.     

Educating children and young people with fetal alcohol spectrum disorders: constructing personalised pathways to learning

This paper reports findings from a study about young people’s preferences for social interaction with similar and different others, in terms of a tension between social inclusion and homophily – the concept that similarity breeds connection. The issue was explored empirically using moral dilemmas scenarios to conduct in-depth semi-structured interviews with young people with Asperger syndrome, visual impairment and without disabilities. The data indicates that homophily and inclusion can come into a tension with an ethical dimension, since they represent, respectively, a personal preference to be among similar others and the moral imperative of including all people. The paper argues that this tension is constructive as it can challenge our understanding of what the ethical obligation to inclusion entails, and what treating the students respectfully means. Respect is often seen as an attempt to avoid the humiliation that any kind of recognition of difference can bring, and has tended to be translated into a demand for inclusion for all. However, the recognition of difference is an acknowledgement of young people’s right to make their own decisions, and can be reflected in provision and translated into educational and life opportunities; as such, it is also an expression of respect. Negotiating a way between the two understandings through dialogue can ensure that inclusion would be a shared value.     

Changes on quality of life,self-efficacy and social support for activities and physical fitness in people with intellectual disabilities through multimodal intervention

Background: People with intellectual disability have poor levels of physical activity, quality of life, fitness condition and self-efficacy and social support when they want to undertake physical activity so it is very important to improve these parameters in this population.

Method: A prospective study was conducted. Data were measured before and after the multimodal intervention. Participants were 40 people with mild intellectual disability. The intervention was carried out over 8 weeks (2 h weekly).

Results: The results of this study show that after the multimodal intervention, there was significant improvement: quality of life, professional and peers’ support for activity, abdominal strength and walking METS (Metabolic equivalent of tasks). Conclusions: There are few studies that have carried out an intervention that combines physical activity and education in people with intellectual disability; these interventions are very important because they can improve some parameters that are difficult to improve with only a single intervention.

Conclusions: There are few studies that have carried out an intervention that combines physical activity and education in people with intellectual disability; these interventions are very important because they can improve some parameters that are difficult to improve with only a single intervention.