Development in Children With Down Syndrome: facts,findings, the future

This broad overview of progress in our understanding of Down syndrome and of the problems it presents for children affected by it was prompted by the occasion of the 20th Anniversary of the Down Syndrome Research Program at the Fred and Eleanor Schonell Special Education Research Centre, The University of Queensland. This internationally‐acclaimed program has focused on many aspects of development in Down syndrome and on how Down syndrome impacts on the lives of children and their families. Some of the many contributions the Schonell team have made to our knowledge of Down syndrome are covered in other papers in this special issue and will also be mentioned below. In evaluating the role of this work, however, it is important to put it into context. This paper therefore provides a brief‐‐and necessarily selective‐‐ account of some past and present findings from research into Down syndrome and makes some tentative suggestions as to what may be important avenues of investigation for the next generation of researchers.     

Researching early intervention and young children's perspectives – developing and using a ‘listening to children approach’

This article, by Alice Paige‐Smith and Jonathan Rix, considers the current context of early intervention in England from the perspective and experiences of two families and in particular focuses on two young children identified as having Down syndrome. This case study research has emerged from previous research conducted by the authors, both of whom are Senior Lecturers at the Open University and have a wealth of experience across all phases of education. Their previous research involved interviews with parents of children diagnosed as having Down syndrome, which raised further questions about early intervention and the pedagogical relationship between the parent and the child, and recognised that ‘early intervention’ can be more than structured activities led by professionals. The research in this article, which has been funded by the British Academy, used ethnographic methodology to understand the process of early intervention with two young children with Down syndrome and their families. The methodology developed to include narrative first‐person observation of the child and photography. In addition to this a method of reflecting on the process of early intervention developed that included the researchers, the parent and the child. The development of this research methodology is considered in detail in this article.     

Verbal Short‐term Memory Performance in Pupils with Down Syndrome

Research has shown that verbal short‐term memory span is shorter in individuals with Down syndrome than in typically developing individuals of equivalent mental age, but little attention has been given to variations within or across groups. Differences in the environment and in particular educational experiences may play a part in the relative ease or difficulty with which children remember verbal material. This article explores the performance of 26 Egyptian pupils with Down syndrome and 26 Egyptian typically developing children on two verbal short‐term memory tests: digit recall and non‐word repetition tasks. The findings of the study revealed that typically developing children showed superior performance on these tasks to that of pupils with Down syndrome, whose performance was both lower and revealed a narrower range of attainment. Comparisons with the performance of children with Down syndrome in this study suggested that not only did the children with Down syndrome perform more poorly than the typically developing children, their profile also appeared worse than the results of studies of children with a similar mental age with Down syndrome carried out in western countries. The results from this study suggested that, while deficits in verbal short‐term memory in Down syndrome may well be universal, it is important to recognise that performances may vary as a consequence of culture and educational experiences. The significance of these findings is explored with reference to approaches to education and how these are conceptualised in relation to children with disabilities.     

Reading-related Literacy Learning of Young Adults with Down Syndrome: Findings from a three year teaching and research program

A number of researchers have argued that young adults with Down syndrome could benefit from continued literacy education beyond the years of compulsory education. Specifically, research has shown that, contrary to myths related to plateaux of learning, cognitive development in individuals with Down syndrome continues into adolescence and beyond. Further, it is also claimed that the young adult years may be the optimal time to focus on literacy development. Based on this research and the ongoing work of the Down Syndrome Research Project (DSRP) a literacy program for young adults with Down syndrome was established at The University of Queensland in 1998 (see Moni & Jobling, 2000). LATCH-ON (Literacy and Technology Hands-On) provides a two year program of teaching and learning activities based on socio-cultural models of literacy in which the explicit teaching of reading, writing, speaking, listening and viewing is integrated with the development of technological literacies. Assessments of reading were undertaken using the Neale Analysis of Reading Ability-Revised (Neale, 1988) and Concepts About Print (Clay, 1979) prior to students entering the program and on completion of the two year course. This paper reports three years of data about the reading-related literacy learning of 17 young adults who have participated in the program. These findings are discussed in terms of the diverse nature of the students' needs, the variability of their reading skills, and issues for educators.     

The Effectiveness of Teaching Geometry to Enhance Mathematical Understanding in Children with Down Syndrome

ABSTRACT

It is widely known that people with Down syndrome have difficulties transitioning from a basic understanding of counting and cardinality to more advanced arithmetic skills. This is commonly addressed by resorting to the mechanical use of algorithms, which hinders the acquisition of mathematical concepts. For this reason some authors have recently proposed a shift in the focus of learning from arithmetic to more fertile fields, in terms of understanding. In this paper we claim geometry fits this profile, especially suited for initiating children with Down syndrome into mathematics. To support this we resort to historical, epistemological, and cognitive reasons: the work of Séguin and his intuition on the central role of geometry in the development of abstract thinking in the so-called idiot children, the ideas of René Thom about the role of continuum intuition in the emergence of conscious thinking, and finally the two strengths people with Down syndrome display: visual learning abilities and interest in abstract symbols. To support these ideas we present the main findings of qualitative research on elementary mathematics teaching to a group of seven children (3–8) with Down syndrome in Spain. The didactic method used, naturally enhance their naïve geometrical conceptions.     

Vignettes from Sesame Street: Preschooler's Ideas about Children with Down Syndrome and Physical Disability

The results of previous research suggest that while preschool children have a beginning understanding of disabilities that involve the use of adaptive equipment, they have little awareness of disabilities such as Down syndrome which have less overt distinguishing characteristics. In this study, videotaped segments from the children's television show, Sesame Street, were used to explore children's ideas about Down syndrome and physical disability. Participants included 41 preschool children. While a majority of participating children were aware that each child in the videotapes had some difficulties performing age-appropriate tasks, children had significantly fewer ideas about why the child with Down syndrome had this difficulty. Significantly more thought that the child with Down syndrome could do more “if he tried really hard” when compared with the child with a physical disability. These results are discussed in terms of children's developing understanding of disabilities and implications for using media to teach preschoolers about people with disabilities.     

Vignettes from Sesame Street: Preschooler's Ideas about Children with Down Syndrome and Physical Disability

The results of previous research suggest that while preschool children have a beginning understanding of disabilities that involve the use of adaptive equipment, they have little awareness of disabilities such as Down syndrome which have less overt distinguishing characteristics. In this study, videotaped segments from the children's television show, Sesame Street, were used to explore children's ideas about Down syndrome and physical disability. Participants included 41 preschool children. While a majority of participating children were aware that each child in the videotapes had some difficulties performing age-appropriate tasks, children had significantly fewer ideas about why the child with Down syndrome had this difficulty. Significantly more thought that the child with Down syndrome could do more "if he tried really hard" when compared with the child with a physical disability. These results are discussed in terms of children's developing understanding of disabilities and implications for using media to teach preschoolers about people with disabilities.     

Numbers in contextual frameworks

This contribution consists of a report on research into the use of the bus context (boarding and leaving the bus) for introducing addition and subtraction in the first grade. Other contexts are taken into account as well, such as skittles, magic number tricks, birthday candles, rides in a ‘cart’, distribution of passengers on a double-decker bus, number-cards, and ages. These contexts influence the use of numbers and operations, which implies that numbers used within the bus context, for instance, will have different properties from numbers used to describe skittles. Important questions treated in this article include: “What is the role of contexts in different periods of education? Which contexts can be considered as realistic for children? Does it matter whether we give children a verbal problem about bus passengers or the same problem about skittles?” Apart from the sound, bus-numbers are not the same thing as skittles-numbers. Therefore, it makes sense to speak of numbers in a contextual framework. It is suggested that these contexts first be offered to the children separately before making comparisons between them. Play-acting plays a large part in this type of education. Finally, misconceptions which can arise regarding the bus-numbers, or because of a lack of context, are outlined.     

Using Total Communication With Young Children With Down Syndrome: A Literature Review and Case Study

This paper presents a literature review regarding language abilities of children with Down syndrome and presents a case study concerning the effectiveness of using Total Communication with a young child with Down syndrome. The prevalence of expressive language delays in children with Down syndrome highlights the need to develop early interventions to promote language development. The existing literature on the usefulness of Total Communication as an intervention method with children and adults with special needs is documented and a rationale for the use of Total Communication with children with Down syndrome is presented. In the case study, a single subject simultaneous treatment design was used which involved introducing 20 words during free play (10 oral and 10 Total Communication), which were matched on phonetic complexity and reinforcement value. Results indicated that comprehension was not differentially affected by the type of communication approach used. However, expressively the child was able to use manual signs many months before any understandable words were produced. The use of manual signs did not inhibit use of speech. The results of this case study suggest that the early use of Total Communication can be an effective transitional mode of communication for at least some children with Down syndrome. Further research is needed to explore individual differences between children with Down syndrome and to identify factors that predict those children who benefit most from the use of Total Communication.     

Using Total Communication With Young Children With Down Syndrome: A Literature Review and Case Study

This paper presents a literature review regarding language abilities of children with Down syndrome and presents a case study concerning the effectiveness of using Total Communication with a young child with Down syndrome. The prevalence of expressive language delays in children with Down syndrome highlights the need to develop early interventions to promote language development. The existing literature on the usefulness of Total Communication as an intervention method with children and adults with special needs is documented and a rationale for the use of Total Communication with children with Down syndrome is presented. In the case study, a single subject simultaneous treatment design was used which involved introducing 20 words during free play (10 oral and 10 Total Communication), which were matched on phonetic complexity and reinforcement value. Results indicated that comprehension was not differentially affected by the type of communication approach used. However, expressively the child was able to use manual signs many months before any understandable words were produced. The use of manual signs did not inhibit use of speech. The results of this case study suggest that the early use of Total Communication can be an effective transitional mode of communication for at least some children with Down syndrome. Further research is needed to explore individual differences between children with Down syndrome and to identify factors that predict those children who benefit most from the use of Total Communication.     

Understanding children's constructions of meanings about other children: implications for inclusive education

This paper explores the factors that influence the way children construct meanings about other children, and especially those who seem to experience marginalisation, within school contexts. The research involved an ethnographic study in a primary school in Cyprus over a period of 5 months. Qualitative methods were used, particularly participant observations and interviews with children. Interpretation of the data suggests that children's perceptions about other children, and especially those who come to experience marginalisation, are influenced by the following factors: other children and the interactions between them; adults' way of behaving in the school; the existing structures within the school; and the cultures of the school and the wider educational context. Even though the most powerful factor was viewed to be the adults' influence, it was rather the interweaving between different factors that seemed to lead to the creation of particular meanings for other children. In the end, it is argued that children's voices should be seen as an essential element within the process of developing inclusive practices.     

唐氏综合症儿童语言发展研究的现状分析

从前语言阶段、语音和词汇发展、形态句法习得和语用发展这四个方面对以英语为母语的唐氏儿童语言发展研究的现状和成果作了分析,并在此基础上提出今后的研究趋势以及在我国开展唐氏综合症儿童语言发展研究的意义和紧迫性。     

Emerging Trends in Mathematics Education for People with Down Syndrome: Current Research and Future Directions

ABSTRACT

In September 2017, a group of researchers met for the first conference devoted to the singular purpose of exploring a neglected field – the learning of mathematics by individuals with Down syndrome. This special issue is a result of that first meeting and identifies three emerging trends in the mathematics education of learners with Down syndrome: the goals, content, and pedagogy. Education is central to the goal of improving an individual’s quality of life and only recently has the impact of mathematics been fully comprehended. Many researchers continue to explore the development of the concept of number and there is still much to learn. As a new development, we see that interest is now expanding to explore other areas of mathematics. We still have a long way to go to understand how best to open the doors of mathematics to all learners with Down syndrome. We conclude by offering six areas requiring immediate future research in the field of mathematics and Down syndrome.     

A Mental Age-Matched Comparison Study of Delay of Gratification in Children with Down Syndrome

The performance of 25 children with Down syndrome on delay of gratification tasks was compared with that of a mental age-matched group of typically developing children. Delay tasks included both other- and self-imposed tasks. Children with Down syndrome were significantly less able to delay gratification than the comparison group on two of the three tasks. Receptive language was associated with delay on the self-imposed task for the typically developing group but not for children with Down syndrome. It is hypothesised that there may be a lag in the development of self-regulation that is greater than the lag between chronological and mental age for children with Down syndrome, with expressive language playing a role in this lag. The practice of using mental age as the method for matching groups of children with Down syndrome with typically developing children is called into question by the results of this study.     

Developmental Expectations,Personality Stereotypes,and Attitudes Towards Inclusive Education: Community and teacher views of Down syndrome

Knowledge about Down syndrome and attitudes towards the educational inclusion of children with Down syndrome were examined in a sample of 2,053 people from the community and a group of 538 experienced teachers. Although both groups displayed reasonably accurate knowledge about Down syndrome and its developmental consequences, they significantly underestimated the average life expectancy for a person with the syndrome. In both groups, a positive stereotype of children with Down syndrome as particularly affectionate and happy was evident. Despite recognising the educational, social, and emotional benefits of inclusive schooling, only around 20% of each group believed that the regular classroom was the best setting for children with Down syndrome. The findings suggest that accurate knowledge and positive, but realistic, expectations are important for enhancing the acceptance of individuals with disabilities within their schools and communities.     

Studying the effects of early child care experiences on the development of children of color in the United States: toward a more inclusive research agenda

Evidence is presented of the different cultural and ecological contexts affecting early child care for families of color. It is argued that improvements on previous research require a fundamental shift in how race, ethnicity, and culture as psychological variables are examined. Furthermore, to avoid the pitfalls and failures of previous research, new research must incorporate expanded models of child care and development in childhood. The integrative model of development for children of color proposed by Garcia Coll et al. (1996) is presented as a basis for developing more specific ecological models relevant to addressing child care issues in ethnic minority families. Finally, priority areas for future research are recommended to stimulate and enable child care researchers to adopt a more inclusive view of child care and its effects.     

An exploration of primary to secondary school transition planning for children with Down’s syndrome

This study explores factors that influence decisions about transition and what works for children with Down’s syndrome transferring from primary to secondary school. Qualitative data were collected using semi-structured interviews to gain the views of support staff and parents of two children with Down’s syndrome. One parent had chosen mainstream secondary school and was negotiating the transition, whilst the other was making decisions around future placement. The Voice of the Child (VoC) was elicited using rating scales. Thematic analysis revealed practical and ideological insights into transition, highlighting the need for parental involvement, planned transition and recognition of the individual needs of the child. The educational and social implications of these findings are considered along with directions for future research.     

The development of competence and its social context

Several recent interpretations of the nature and development of competence are discussed, focusing on Gelman's proposal to view the development of concepts as the product of the interaction of conceptual, procedural, and utilization competences. In so doing, she proposes a solution to the dilemma (which many other theories could not avoid) of emphasizing either the construction of knowledge or the influence of experience in the development of understanding. However, Gelman does not consider the basically social nature of the development of competence. In this essay, it is argued that adults transmit perspectives on reality to children and in this way introduce them to what is considered worth knowing in the culture. Because a child's present abilities are integrated into such perspectives, these abilities are, at the same time, both utilized and modified. It is, therefore, implausible to ascribe the availability of general principles to very young children, as Gelman does in her theory of numerical competence. Two rival experiments on the development of numerical concepts are discussed. It is argued that the solution the children construct in these experiments is dependent on the perspective transmitted to them by the experimenter. Some educational consequences of a social context view on competence are presented.     

The Importance of Self‐Regulation in Young Children With Down Syndrome

Adulthood brings with it responsibilities for making choices and decisions about one's own life. Individuals with Down syndrome, their parents and communities, have begun to expect that at least some of these responsibilities will be met by the person with Down syndrome. This will require a range of skills in managing one's own behaviour and these skills will need to be acquired in childhood. The Down Syndrome Research Program has begun a number of investigations into two important aspects of self‐regulation‐the capacity to delay gratification and mastery motivation. This paper describes the importance of these skills and habits of behaviour to those with Down syndrome and discusses the research to date.     

Online engineering education for manufacturing technology: Is a remote experiment a suitable tool to teach competences for “Working 4.0”?

The demands of modern industry contexts (so‐called Industry 4.0) are going to reshape the working world of future engineers. It seems obvious that these technological developments will affect higher education institutions with increasing intensity. For years, there has been a vivid discussion on the IT competences, which need to be developed by students in order to face emerging technology changes. To tackle the question regarding industry expectations towards future engineers, in this article a remote laboratory at a German university is analysed to identify potentials for future‐oriented teaching and learning in the light of the required competences for “Working 4.0”. Current scientific studies and industry agendas about Working 4.0 competences are identified, connected learning objectives are derived and the focused remote laboratory is linked to these objectives. As a result, it can be shown that this educational setting has the potential to reflect the complexity of Working 4.0. However, the results also show that the examined laboratory addresses only some of the competences in the context of Industry 4.0. Furthermore, it is argued in how far industry demands serve as the only basis for educational development efforts. The scientific studies and the industry agenda offer a limited and more political perspective on educational development. Nevertheless, based on the research in this article, it can be argued that remote labs (and online labs in general) have the potential to lift traditional laboratory‐based engineering education to a modern engineering education 4.0.