Health information seeking in the information society

This article is the second student contribution to the Dissertations into Practice feature. It reports on a study that investigated the everyday health information-seeking practices of a small group of the 'general public' and the implications for information-seeking theory and health information provision. The first student article, about the implementation of radio frequency identification (RFID) in a hospital library, was very different, and the two articles illustrate the broad spectrum of possible subjects for the Dissertations into Practice feature. This study was conducted in summer 2011 by Abir Mukherjee for his MSc dissertation in the Library and Information Sciences programme at City University London. Further information and copies of the full dissertation may be obtained from Abir Mukherjee or David Bawden. AM.     

Consumer health information seeking in social media: a literature review

Objective

The objective of this literature review was to summarise current research regarding how consumers seek health‐related information from social media. Primarily, we hope to reveal characteristics of existing studies investigating the health topics that consumers have discussed in social media, ascertaining the roles social media have played in consumers’ information‐seeking processes and discussing the potential benefits and concerns of accessing consumer health information in social media.

Methods

The Web of Science Core Collection database was searched for existing literature on consumer health information seeking in social media. The search returned 214 articles, of which 21 met the eligibility criteria following review of full‐text documents.

Conclusion

Between 2011 and 2016, twenty‐one studies published explored various topics related to consumer information seeking in social media. These ranged from online discussions on specific diseases (e.g. diabetes) to public health concerns (e.g. pesticide residues). Consumers’ information needs vary depending on the health issues of interest. Benefits of health seeking on social media, in addition to filling a need for health information, include the social and emotional support health consumers gain from peer‐to‐peer interactions. These benefits, however, are tempered by concerns of information quality and authority and lead to decreased consumer engagement.     

HIV/AIDS‐related stigma and information behaviour: an ethnographic study in the UK

This feature explores the information behaviour of people infected with or affected by HIV/AIDS. It investigates specifically the difficult issue of stigma and how this shapes the ways in which people interact with vital information. The study adopted an ethnographic whereby the researcher worked as a part‐time volunteer at an HIV support centre in the North of England for over a year. This is the first time that such an approach has been reported in this feature and is interesting from this perspective alone. The very rich data which was gathered as a result of the approach is also instructive. The study formed part of a PhD thesis, which Robinah Kalemeera Namuleme completed at the University of Sheffield in March 2013.     

The information experience and learning needs of couples living with HIV in Malawi

In this feature, guest writer Kondwani Wella presents an overview of his PhD – a study which investigated the information experience of serodiscordant couples with HIV and AIDS in Malawi. In particular, for this article, he considers the information behaviour of people who need HIV‐ and AIDS‐specific information and the role of the librarian in helping to deliver what is needed to support engagement in relevant learning. H.S.     

Library tools at the nurses' station: exploring information-seeking behaviors and needs of nurses in a war veterans nursing home

Objectives:Analyze the information-seeking practices and identify the information and education needs of nurses in a war veterans nursing home. Develop an online toolkit for use at the nurses'' stations to meet nurses'' health information needs.Methods:Investigators employed mixed methods to determine the health information needs of the participating nurses at the skilled nursing facility using an online questionnaire and in-person observations. Resulting data was compared to determine how nurses'' self-reported data corresponded with investigator observations.Results:Twenty-seven out of a total of thirty-five nurses responded to the online questionnaire. The study principal investigator also observed a total of twelve nurses working across all shifts. The online questionnaire asked nurses to identify when they need health information for an acute clinical scenario. Nurses self-reported feeling most confident in assessing falls and pain, followed by medication adherence and skin integrity. Issues most frequently encountered during observation of nurses were falls, interventions surrounding cognitive ability or dementia, and use of antibiotics. Nurses reported and were observed to consult colleagues most frequently, followed by drug handbooks and relying on nursing experience.Conclusion:Nurses in skilled nursing facilities will benefit from ready online access to current drug handbooks as well as information resources surrounding commonly encountered clinical issues and stated needs. An outcome of this project is an online toolkit site using a LibGuide created specifically for this purpose. Researchers purchased laptop computers that were installed at each of the nurses'' stations to provide ready access to the toolkit site.     

Assessing internet access and use in a medically underserved population: implications for providing enhanced health information services

Background: The relationship between health information seeking, patient engagement and health literacy is not well understood. This is especially true in medically underserved populations, which are often viewed as having limited access to health information. Objective: To improve communication between an urban health centre and the community it serves, a team of library and information science researchers undertook an assessment of patients’ level and methods of access to and use of the Internet. Methods: Data were collected in 53 face‐to‐face anonymous interviews with patients at the centre. Interviews were tape‐recorded for referential accuracy, and data were analysed to identify patterns of access and use. Results: Seventy‐two percentage of study participants reported having access to the Internet through either computers or cell phones. Barriers to Internet access were predominantly lack of equipment or training rather than lack of interest. Only 21% of those with Internet access reported using the Internet to look for health information. Conclusion: The findings suggest that lack of access to the Internet in itself is not the primary barrier to seeking health information in this population and that the digital divide exists not at the level of information access but rather at the level of information use.