Reading-related Literacy Learning of Young Adults with Down Syndrome: Findings from a three year teaching and research program

A number of researchers have argued that young adults with Down syndrome could benefit from continued literacy education beyond the years of compulsory education. Specifically, research has shown that, contrary to myths related to plateaux of learning, cognitive development in individuals with Down syndrome continues into adolescence and beyond. Further, it is also claimed that the young adult years may be the optimal time to focus on literacy development. Based on this research and the ongoing work of the Down Syndrome Research Project (DSRP) a literacy program for young adults with Down syndrome was established at The University of Queensland in 1998 (see Moni & Jobling, 2000). LATCH-ON (Literacy and Technology Hands-On) provides a two year program of teaching and learning activities based on socio-cultural models of literacy in which the explicit teaching of reading, writing, speaking, listening and viewing is integrated with the development of technological literacies. Assessments of reading were undertaken using the Neale Analysis of Reading Ability-Revised (Neale, 1988) and Concepts About Print (Clay, 1979) prior to students entering the program and on completion of the two year course. This paper reports three years of data about the reading-related literacy learning of 17 young adults who have participated in the program. These findings are discussed in terms of the diverse nature of the students' needs, the variability of their reading skills, and issues for educators.     

Self‐awareness in Young Adults with Down Syndrome: I. Awareness of Down syndrome and disability

The limited literature on awareness of differences and stigma in people with intellectual disabilities is largely sociological, emphasises pathology, and has rarely used a developmental perspective with representative samples. Interviews, photographs and standardised tests were used to investigate such awareness with 77 young adults with Down syndrome and their parents. Awareness and social categorisation were significantly associated with verbal mental age, and closely approximated the typical social‐cognitive developmental sequence. No associations were found between awareness and chronological age, parent telling, gender, and mainstream experience. Only those with verbal mental ages from around 8 years were making relative social comparisons and beginning to form complex social categories of Down syndrome/disability. Around 13% were rated as showing a negative emotional reaction to Down syndrome/disability, and most of these were male. A similar percentage, mostly female and with higher verbal mental ages, discussed concerns and limitations. Even so, they all had high self‐esteem and awareness of Down syndrome and disability did not appear to be a major issue. A number of coping mechanisms to maintain a positive sense of self were suggested. It is argued that both sociological and developmental models are required to inform parent and professional attempts to facilitate self‐awareness.     

Self‐awareness in Young Adults with Down Syndrome: II. Self‐understanding

This study explored the self‐understanding of 77 young people with Down syndrome aged from 17 to 24 years, with verbal mental ages ranging from less than 2 years 6 months to 12 years 4 months. The aim was to determine whether the self‐understanding of these young people followed a typical developmental pathway, whether they were making social comparisons to others, and if these comparisons were downward, upward or lateral. The data came from interviews with the young people and with their parents. Results confirmed the typical developmental progression in so far as relative comparisons to others were only made by those with significantly higher mental ages. These young people made more downward than upward comparisons, whereas parents largely referred to lateral comparisons. This again is similar to findings with people in general who tend to maintain their self‐esteem by making downward comparisons. Aspirations were age appropriate, albeit with relatively low levels of cognitive understanding. Reference groups predominantly consisted of families and other young people with intellectual disabilities.     

Predictors of Handwriting in Adolescents and Adults with Down Syndrome

Handwriting is a skill that is constantly used in schools and in the workplace – two environments that are targeted in French legislation passed in 2005 on the integration of people with disabilities. The aim of the present study was to determine the predictive factors for handwriting speed and quality in adolescents and adults with Down syndrome (DS), looking at chronological and developmental age, pen grasp and perceptual-motor processing, which are known to contribute to both the speed and quality of handwriting. Results yielded by simple linear and curvilinear analyses revealed that handwriting speed and quality are related to chronological age, developmental age and perceptual-motor processing. Moreover, multiple linear regressions showed that handwriting quality can be predicted by fine motor coordination. We discuss the influence of different factors on handwriting acquisition in individuals with DS, and the implications in terms of intervention programmes.     

Evaluation of Self by Young People with Down Syndrome

There have been relatively few studies of self-esteem with young people with moderate and severe intellectual disability. One reason for this is likely to be measurement difficulties. The purpose of the present study was to assess the usefulness of three measures of self-esteem in 72 young people with Down syndrome aged from 17 to 24 years. Forty-five young people, mean VMA 5 years 10 months, were assessed on the Pictorial Scale of Perceived Competence and Social Acceptance for Young Children and the Joseph PreSchool and Primary Self-Concept Screening Test. Nineteen young people, mean VMA 8 years 9 months, completed the Self-Perception Profile for Learning Disabled Students. Validity was assessed by reading scores and by interviews with the young people and their parents. Eight young people with the most severe intellectual disability could not do any test; the remainder were able to respond to the format of the appropriate tests. On all measures they rated themselves positively. Internal consistency estimates were high, but validity was only demonstrated for the Self-Perception Profile for Learning Disabled Students, supporting its use with the young people who had VMAs of around 7 years. Evaluation of self also showed a standard developmental trend.     

Functional literacy of Young Guyanese Adults

Functional literacy is interpreted as the ability of the individual to apply skills in reading, writing, calculation and basic problem-solving in those activities in which literacy is required for effective functioning in his/her own group and community. The paper describes the rationale, development and administration of the test used for measuring levels (high, moderate, low) of achievement in functional literacy in three domains (document, prose and quantitative). An assumption of the study was that a high level of functional literacy was required for the individual to function effectively in his/her own group and community. The context of the study is Guyana the most underdeveloped and impoverished country in the English-speaking Caribbean. The subjects are out of school youth in Guyana aged 14–25.Amongst the main findings are: only approximately 11% of the young people show a high level of functional literacy; females tend to have a higher level of functional literacy than males: and most of those at the low level never went beyond primary and low status secondary schools and usually end up unemployed or in semi- or unskilled jobs.Attention is drawn to the difficulty of attracting funding for literacy programmes from international aid agencies, given the inflated adult literacy rate which is reported for Guyana in international statistics. While they credit Guyana with an adult literacy rate of 97.5%, the study suggests that a more realistic figure is in the 70s. The importance of adult and continuing education is underscored in view of the need to help those who are out of school to meet the ever-changing demands of society for improved skills in literacy and numeracy.     

Functional literacy of Young Guyanese Adults

Functional literacy is interpreted as the ability of the individual to apply skills in reading, writing, calculation and basic problem-solving in those activities in which literacy is required for effective functioning in his/her own group and community. The paper describes the rationale, development and administration of the test used for measuring levels (high, moderate, low) of achievement in functional literacy in three domains (document, prose and quantitative). An assumption of the study was that a high level of functional literacy was required for the individual to function effectively in his/her own group and community. The context of the study is Guyana the most underdeveloped and impoverished country in the English-speaking Caribbean. The subjects are out of school youth in Guyana aged 14–25.Amongst the main findings are: only approximately 11% of the young people show a high level of functional literacy; females tend to have a higher level of functional literacy than males: and most of those at the low level never went beyond primary and low status secondary schools and usually end up unemployed or in semi- or unskilled jobs.     

Developmental Attainment of Infants and Young Children with Down Syndrome

INFANTS and young children with Down syndrome who were living at home and attending exemplary early intervention programs were assessed by trained examiners in the five domains of the Battelle Developmental Inventory. Data was compared to the 50th percentile attainment and found that infants and young children with Down syndrome are more similar to other children in Personal Social and Adaptive Domains and less similar in Communication and Cognitive Domains. These differences begin to show more dramatically as the child reaches the age of 36 months. The older the child the greater the measured differences. Documenting and understanding this uneven developmental path is significant in program planning.     

Stress in Families of Young Children with Down Syndrome,Williams Syndrome,and Smith-Magenis Syndrome

This study examined whether stress levels differ in families of young children with three different genetic etiologies of mental retardation, and whether child characteristics associated with those genetic etiologies may help explain these differences. Participants were sixty families of young children with Down syndrome, Williams syndrome, and Smith-Magenis syndrome. All children were between the ages of 3 and 10 years. Parents completed Achenbach's Child Behavior Checklist, the Questionnaire on Resources and Stress-Friedrich edition, and a demographic questionnaire. Families of children with Down syndrome experienced significantly less Pessimism than the other two etiology groups and significantly less Parent and Family Problems than families of children with Smith-Magenis syndrome. The strongest predictor of Parent and Family Problems was maladaptive behavior in Smith-Magenis syndrome, younger age in Down syndrome, and both maladaptive behavior and younger age in Williams syndrome. Maladaptive behavior predicted Pessimism in families of children with Smith-Magenis syndrome, but none of the variables examined significantly predicted Pessimism in the other two syndromes. The importance of behavioral phenotype research is discussed for practitioners working with young children with mental retardation and their families.     

Stress in Families of Young Children with Down Syndrome, Williams Syndrome, and Smith-Magenis Syndrome

This study examined whether stress levels differ in families of young children with three different genetic etiologies of mental retardation, and whether child characteristics associated with those genetic etiologies may help explain these differences. Participants were sixty families of young children with Down syndrome, Williams syndrome, and Smith-Magenis syndrome. All children were between the ages of 3 and 10 years. Parents completed Achenbach's Child Behavior Checklist, the Questionnaire on Resources and Stress-Friedrich edition, and a demographic questionnaire. Families of children with Down syndrome experienced significantly less Pessimism than the other two etiology groups and significantly less Parent and Family Problems than families of children with Smith-Magenis syndrome. The strongest predictor of Parent and Family Problems was maladaptive behavior in Smith-Magenis syndrome, younger age in Down syndrome, and both maladaptive behavior and younger age in Williams syndrome. Maladaptive behavior predicted Pessimism in families of children with Smith-Magenis syndrome, but none of the variables examined significantly predicted Pessimism in the other two syndromes. The importance of behavioral phenotype research is discussed for practitioners working with young children with mental retardation and their families.     

Family Influences on Adaptive Development in Young Children with Down Syndrome

In this study we investigated the extent to which the family environment predicted differences in trajectories of adaptive development in young children with Down syndrome. The sample was comprised of 54 children with Down syndrome and their families who were studied from infancy through the age of 5 years as part of a longitudinal study of children with disabilities. Hierarchical linear modeling (HLM) was used to estimate the parameters of hierarchical growth models in domains of adaptive development. Results indicated that growth in communication, daily living skills, and socialization domains were predicted by measures of the family environment (i.e., family cohesion and mother-child interaction) above and beyond that predicted by maternal education. Further, Bayley MDI measures during infancy did not predict changes in adaptive development in any of the domains. The results are discussed in terms of implications for service provision and for expanding theoretical frameworks to include the development of children with disabilities.     

Name Writing: A Window into the Emergent Literacy Skills of Young Children

This article discusses the potential significance of name writing skills in addressing many important questions about the development of early literacy skills. Young children are inherently interested in producing their own names in print. Furthermore, young children appear to construct their understandings of name writing skills in a predictable, sequential pattern. Questions raised include whether the development of name writing skills mirrors the development of other important cognitive skills, the potential of name writing skills to offer insight as to how young children learn important literacy concepts, the use of name writing as a developmental indicator for children that may be at risk for reading difficulties, and the potential for structured activities using name writing to facilitate the development of emergent literacy skills.     

A Microcomputer Approach to Developing Functional Literacy Among Adolescents and Adults

No abstract available for this article.     

The Development of Research Skills in Young Adults with Intellectual Disability in Participatory Research

There is limited information about specific research constructs developed by adults with intellectual disability in undertaking research despite increasing involvement in research with rather than on these individuals. Participatory research was used with three young adults with intellectual disability to collaboratively develop a training programme and investigate the skills used and developed when undertaking the research project. Three research domains—Knowledge, Conceptual understandings and Skills, were identified, within which 18 subsets were categorised. Development in all domains and subsets occurred for all young adults, with variations in gains across subsets and participants. These young adults attained research knowledge, understanding and skills that enabled them to become collaborative researchers within this project.     

Using Total Communication With Young Children With Down Syndrome: A Literature Review and Case Study

This paper presents a literature review regarding language abilities of children with Down syndrome and presents a case study concerning the effectiveness of using Total Communication with a young child with Down syndrome. The prevalence of expressive language delays in children with Down syndrome highlights the need to develop early interventions to promote language development. The existing literature on the usefulness of Total Communication as an intervention method with children and adults with special needs is documented and a rationale for the use of Total Communication with children with Down syndrome is presented. In the case study, a single subject simultaneous treatment design was used which involved introducing 20 words during free play (10 oral and 10 Total Communication), which were matched on phonetic complexity and reinforcement value. Results indicated that comprehension was not differentially affected by the type of communication approach used. However, expressively the child was able to use manual signs many months before any understandable words were produced. The use of manual signs did not inhibit use of speech. The results of this case study suggest that the early use of Total Communication can be an effective transitional mode of communication for at least some children with Down syndrome. Further research is needed to explore individual differences between children with Down syndrome and to identify factors that predict those children who benefit most from the use of Total Communication.     

Using Total Communication With Young Children With Down Syndrome: A Literature Review and Case Study

This paper presents a literature review regarding language abilities of children with Down syndrome and presents a case study concerning the effectiveness of using Total Communication with a young child with Down syndrome. The prevalence of expressive language delays in children with Down syndrome highlights the need to develop early interventions to promote language development. The existing literature on the usefulness of Total Communication as an intervention method with children and adults with special needs is documented and a rationale for the use of Total Communication with children with Down syndrome is presented. In the case study, a single subject simultaneous treatment design was used which involved introducing 20 words during free play (10 oral and 10 Total Communication), which were matched on phonetic complexity and reinforcement value. Results indicated that comprehension was not differentially affected by the type of communication approach used. However, expressively the child was able to use manual signs many months before any understandable words were produced. The use of manual signs did not inhibit use of speech. The results of this case study suggest that the early use of Total Communication can be an effective transitional mode of communication for at least some children with Down syndrome. Further research is needed to explore individual differences between children with Down syndrome and to identify factors that predict those children who benefit most from the use of Total Communication.     

一例唐氏综合症儿童语言能力的个案研究

通过对一例14岁唐氏综合症儿童的汉语词类、句长、句法结构等方面在校的自发性语言的研究,结果发现1.个案使用的实词数大于虚词数;2.个案语言中7种基本的句子结构均已出现;3.个案已经出现结构复杂、逻辑性强的单句,并开始有意识地运用偏正关系的复句;4.在运用基本汉语语法的能力方面,个案语言发展水平大致相当于正常儿童3～6岁水平。     

Verbal Fluency and Verbal Short-Term Memory in Adults with Down Syndrome and Unspecified Intellectual Disability

The purpose of this study was to examine verbal fluency and verbal short-term memory in 12 adults with Down syndrome (DS) and 12 adults with Intellectual Disability (ID) of unspecified origin, matched for receptive vocabulary and chronological age. Participants’ performance was assessed on two conditions of a verbal fluency test, namely, semantic and phonemic fluency. In addition to the total number of correct words produced, the use of clustering and switching strategies was also evaluated. In order to investigate the likely relations of verbal short-term memory with the test variables, a digit span task was administered. According to the results of the study, the two groups differed significantly on the average phonemic cluster size, with the ID group outperforming the DS group. Regarding the within-group comparisons, a relatively similar pattern of results was found for the two groups, indicating higher scores on all the measures involved in the semantic test than the phonemic one. The examination of the relation of verbal short-term memory with the verbal fluency test measures revealed that, in the DS group, only the total words produced in the semantic and the phonemic test and the number of phonemic switches were significantly associated with verbal short-term memory. Additionally, in both groups, word productivity in the semantic and the phonemic test was positively associated with the number of switches. The observed similarities and differences in the performance of the two groups, as well as the associations that emerged among the test variables in each group, are discussed.     

A Mental Age-Matched Comparison Study of Delay of Gratification in Children with Down Syndrome

The performance of 25 children with Down syndrome on delay of gratification tasks was compared with that of a mental age-matched group of typically developing children. Delay tasks included both other- and self-imposed tasks. Children with Down syndrome were significantly less able to delay gratification than the comparison group on two of the three tasks. Receptive language was associated with delay on the self-imposed task for the typically developing group but not for children with Down syndrome. It is hypothesised that there may be a lag in the development of self-regulation that is greater than the lag between chronological and mental age for children with Down syndrome, with expressive language playing a role in this lag. The practice of using mental age as the method for matching groups of children with Down syndrome with typically developing children is called into question by the results of this study.     

21世纪学习技能:新媒体素养初探

以社会性、个性化和主体性为特征的Web2.0构建了一个全新的生态环境,要融入和适应这种新环境,必然要求用户具有新的媒体素养.通过Web1.0与Web2.0的对比分析,文章认为"参与"是Web2.0媒体的本质体现和要求,在这种媒体环境中,要着力建设参与性文化,培养以参与素养为核心的新媒体素养.