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1.
Previous research and first-hand experience suggest that a child with a disability can have a profound effect on family life. Although the need for sibling support has been acknowledged in legislation, the implications for non-disabled siblings remain unclear. In this article, Angie Naylor, lecturer in psychology, and Phil Prescott, senior lecturer in childhood and youth studies, both based at Edge Hill, review a number of key themes emerging from the literature on sibling support. They go on to report the findings from an in-depth study of one sibling support group. The work was carried out in partnership with Barnardo's in the north-west of England and involved setting up a sibling support group, in response to an analysis of local need, and evaluating its impact. This research indicates a clear need for further service provision to meet the needs of the siblings of disabled children who attended the scheme. Angie Naylor and Phil Prescott argue for a reinvigorated debate about the needs of such children and champion the importance of listening to children and valuing what they have to say. The results of this small-scale evaluation project have clear implications for future research and, potentially, for policy and practice. 相似文献
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Elizabeth Bruce PhD, a psychologist in private practice, and Cynthia Schultz PhD, honorary associate at LaTrobe University, both live and work in Australia. Their work on supporting parents who have children with special needs, however, has been published around the world. In this article Bruce and Schultz explore the notion of 'non-finite loss', defined as the ongoing sense of grief experienced by parents caring for children with severe disabilities. The authors discuss the issues that professionals need to consider when working with parents in these circumstances. The article closes with a set of recommendations for promoting more effective partnerships between parents and professionals. 相似文献
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Elizabeth A. Geiser 《Publishing Research Quarterly》1997,13(3):110-117
This article is an overview of the development of education for publishing programs in the U.S. Information and addresses
for the main introductory summer programs, the continuing education programs, the degree-granting Masters Programs, and a
selection of organizations outside the United States offering courses in publishing are included in the article. 相似文献
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Analyzing 219 blog posts from 52 self-employed women lifestyle bloggers in North America, this study shows how these digital professionals navigate tensions and communicatively constitute work flexibility. In their narratives, women bloggers employed tension management approaches such as reframing, continual connections, and reflective practice in response to tensions in enacting temporal–spatial, identity, and financial flexibility. Specifically, women followed oxymoronic constructions – disciplined freedom, branded authenticity, and dependable independence – to embrace and transform competing poles of fluidity?structure, authenticity?marketability, and independence?interconnection. Expanding work–life research to the self-employed digital labor context, this study responds to recent calls to uncover more-than tension management strategies in empirical settings and contributes to a tension-centered, contextual, and processual analysis of workplace flexibility construction. 相似文献
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Communication quality between public service units in academic libraries can make the difference between mediocre and exceptional service. If units do not communicate well, patrons may receive inaccurate information and experience short-term frustration, leading to long-term damage to the library's reputation. Poor communication creates adverse effects on employees through decreased productivity, negative work culture, and low morale. This article explores the importance of quality communication through a review of the literature and a case study at one academic library. The authors share practical communication improvement strategies for libraries of every size and fiscal ability. 相似文献
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Eisenhauer ER Mosher EC Lamson KS Wolf HA Schwartz DG 《Health information and libraries journal》2012,29(2):152-161
Background: Somali Bantu refugees, with unique health information needs, created challenges for health and social service providers. Objectives: A service innovation was developed (i) to raise awareness, especially among local health and social service providers, about the Bantu refugees’ presence in the community, their culture, and their information needs and (ii) to deliver needed health information, emphasizing child health, to the Bantu mothers in their homes. Methods: The project consisted of: (i) a community conference targeting local health and social service providers, describing the refugees’ presence in the community, their culture, and information needs. (ii) Focus groups conducted with members of the Bantu population elicited additional information needs. (iii) Curriculum was developed based on identified needs, and (iv) the curriculum was delivered to the refugees in their homes. A clinical informationist and MP3 technology enhanced the project. Findings: Conference attendees’ evaluation responses indicated improved understanding of Bantu culture. Focus groups’ identification of health information needs provided a framework for the health education curriculum. A project website made educational materials available to other healthcare providers. Conclusions: The project raised awareness of the Bantus’ presence, culture, and information needs. Identification of other unmet needs demonstrated that additional support for refugees is required. 相似文献
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