A model for understanding and affecting cancer genetics information seeking

Health-related topics are relevant to a diverse array of people, which makes health information seeking a rich area in which to study how people look for information and to create interventions to aid in their searches. Cancer genetics is an important health context because information acquisition can positively impact an individual's morbidity and mortality while also affecting an individual's family network. However, this new field of research has created a complex information environment that is constantly evolving. Traditional methods of providing content through mass communication campaigns cannot keep pace. What is needed is a strategy that does not rely on perishable content, but instead helps people gain lifelong skills to find and assess cancer genetic information on their own. This article reviews the tenets of cancer information seeking—highlighting the growing public interest in genetics—and discusses how the burden of seeking health information has shifted to the patient. The authors introduce GENIS² (Genetic Information-Seeking Skills), which is an intervention framework for helping people build cancer genetic information-seeking skills that will be useful throughout their lives. GENIS² is based on the Comprehensive Model of Information Seeking (CMIS), which explores people's information-seeking actions by looking at the role played by demographics, experience, salience, and beliefs, as well as the information fields in which people exist. The CMIS is outlined and its stages are used to elucidate what kinds of cancer genetic information people are looking for in different situational contexts. The CMIS is also used as the framework for creating intervention strategies that information professionals can use to help coach people toward being more self-efficacious information seekers.     

Health information professionals: delivering core services and value in extraordinary times

The 2020 virtual issue of the Health Information and Libraries Journal (HILJ) is published to link to the CILIP Health Libraries Group Conference which was to take place in Scotland 22–25th July. Whilst the conference was postponed in light of the coronavirus (COVID‐19) pandemic, its themes of (i) Working in Partnership; (ii) Resilience and Well‐being; (iii) Public and Patient involvement; (iv) Quality Impact and Metrics; and (v) Improvement and Innovation have nevertheless provided the basis on which to compile this virtual issue. Overarching these themes is a core value of the HIL profession, to provide relevant, timely and sustainable information services, and the articles selected from HILJ (2018 through to March 2020) contribute to the aim of meeting and going beyond these goals under the conference banner of ‘not your average day in the office’. The virtual issue mirrors the format of a regular issue of HILJ, a review article, four original articles and three from our regular features: ‘Dissertations into Practice’, ‘International Perspectives and Initiatives’ and ‘Teaching and Learning in Action’. The authors come from Canada, China, Croatia, Sweden and the UK. All articles included in this issue are available online.     

Interdependence, Garbage Dumping, and Feral Dogs: Exploring Three Lifeworld Resources of Young Children in a Rural School

In this article, we concentrate upon the lifeworld resources that comprise the funds of knowledge for children living in a rural community in the southeastern United States. Through interview conversations with a group of third grade children, we identified three lifeworld resources—interdependence, garbage dumping, and feral dogs—that rural teachers might draw on to generate curriculum that is connected to the community in which they teach. Through such connections rural teachers may increase the likelihood that they will remain teaching in rural schools.

Exploring literacy teachers’ self-efficacy beliefs: Potential sources at play

This study explored the antecedents of self-efficacy beliefs for literacy instruction and the relationship of these beliefs to self-efficacy for teaching in general. Factor analysis demonstrated construct validity of the measure of TSELI developed. Moderate correlations between TSELI and the more general TSES suggest that while there is some overlap, they are not the same thing. In a regression analysis, the quality of university preparation, highest level of education, participation in a book club, school level, resources available for classroom books, teachers’ sense of efficacy for instructional strategies and for student engagement all explain variance in TSELI.     

Return of the Hacker as Hero: Fictions and Realities of Teenage Technological Experts

When critics consider young people’s practices within cyberspace, the focus is often on negative aspects, namely cyber-bullying, obsessive behaviour, and the lack of a balanced life. Such analyses, however, may miss the agency and empowerment young people experience not only to make decisions but to have some degree of control over their lives through their engagement with and use of technology, which often includes sharing it with others in cyberspace. This was a finding of research conducted by Nicola Johnson, which also informs the two novels considered in this article, Cory Doctorow’s Little Brother and Brian Falkner’s Brainjack. The article draws on Pierre Bourdieu’s theory of acts of resistance (Acts of Resistance: Against the New Myths of our Time, 1998) to demonstrate how these fictional representations of hacker heroes make a direct address to their readers to use their technological expertise to achieve social justice. Rather than hacking primarily to “see if they can do it,” the protagonists of these novels acknowledge the moral ambiguity of hacking and encourage its responsible use.     

The validity and utility of the California Family Risk Assessment under practice conditions in the field: A prospective study

Objective

Analysis of the validity and implementation of a child maltreatment actuarial risk assessment model, the California Family Risk Assessment (CFRA).

Questions addressed

(1) Is there evidence of the validity of the CFRA under field operating conditions? (2) Do actuarial risk assessment results influence child welfare workers’ service delivery decisions? (3) How frequently are CFRA risk scores overridden by child welfare workers? (4) Is there any difference in the predictive validity of CFRA risk assessments and clinical risk assessments by child welfare workers?

Method

The study analyzes 7,685 child abuse/neglect reports originating in 5 California counties followed prospectively for 2 years to identify further substantiated child abuse/neglect. Measures of model calibration and discrimination were used to assess CFRA validity and compare its accuracy with the accuracy of clinical predictions made by child welfare workers. The extent of use of an override feature of the CFRA and child welfare worker reliance on CFRA risk scores for making service decisions were analyzed.

Results

Imperfect but better-than-chance predictive validity was found for the CFRA on a range of measures in a large temporal validation sample (n = 6,543). For 114 cases where both CFRA risk assessments and child welfare worker clinical risk assessments were available, the CFRA exhibited evidence of imperfect but better-than-chance predictive validity, while child welfare worker risk assessments were found to be invalid. Child welfare workers overrode CFRA risk assessments in only 114 (1.5%) of 7,685 cases and provided in-home services in statistically significantly larger proportions of higher- versus lower-risk cases, consistent with heavy reliance on the CFRA.

Conclusions/practice implications

Until research identifies actuarial models exhibiting superior predictive validity when applied in every-day practice, the CFRA is, and will be a valuable tool for assessing risk in order to make in-home service-provision decisions.