Living with a rare health condition: the influence of a support community and public stigma on communication,stress, and available support

People affected by rare diseases often have limited coping resources and sometimes face stigma. They build communities with others who share their conditions, but not all members may benefit from these communities. This study investigated how adults with a rare genetic health condition (Alpha-1 antitrypsin deficiency; AATD) think about both the Alpha-1 community and public stigma about AATD, and how these cognitions predict their communication responses and well-being. The results showed that people with AATD-encountered stigmatization from various sources. Stronger public stigma predicted more secrecy, more stress, and less available support. Stronger group identification with the Alpha-1 community predicted less secrecy; stronger group activism predicted more available support and more communication to challenge stigmatizers. Post hoc analyses showed significant interactions between public stigma and group cognitions on communication to challenge stigmatizers. Practical implications for bolstering communities to improve the well-being of people with rare diseases were discussed.     

PCARE @10: reflecting on a decade of prison communication,activism, research,and education,while looking ahead to new challenges and opportunities

Drafted a decade after the publication of our inaugural collectively authored essay, the members of the Prison Communication, Activism, Research, and Education collective (PCARE) reflect in this article on recent shifts in criminal justice policy and public discourse regarding the carceral state. Noting a growing consensus regarding the need to reduce national incarceration rates, as well as proliferating discussion regarding police brutality and other forms of state violence, the members of PCARE advocate an orientation of nonreformist reformism when addressing the current climate. Noting that many contemporary developments regarding prisons and policing are promising, we also argue that the prison–industrial complex remains a powerful and violent force in civil society. We begin by describing the complex coalitions that have emerged around prison reform in recent years, claiming that we should temper our enthusiasm for these developments with skepticism informed by a commitment to prison abolition. We then proceed to describe recent developments and tensions related to prison pedagogy, race, and the carceral state, and the gendered politics of policing and mass incarceration. We conclude with a call for critical communication scholars to engage in communication activism with a spirit of nonreformist reform and to humbly learn from the voices and experiences of those communities most directly impacted by the prison–industrial complex. We follow this essay with a response essay drafted by a collective of incarcerated individuals.     

Narrativizing trauma,activating awareness: Iris Chang’s The Rape of Nanking and its afterlives

ABSTRACT

When Iris Chang published The Rape of Nanking in 1997, exactly sixty years after the Nanjing Massacre, the subtitle The Forgotten Holocaust of World War II, called attention to one of the greatest human tragedies in the twentieth century. As a powerful historic reminder, The Rape of Nanking aims “to understand the event so that lessons can be learned and warnings sounded.” This paper focuses on Chang’s role as a writer/fighter who uses words to fight forgetfulness with a forceful narrative concerning one of the most dreadful traumas in the collective psyche of the Chinese people. It produces quite a number of “afterlives,” including different Chinese translations in Taiwan and mainland China, a nanking winter (2008), a play by the second-generation Chinese Canadian playwright Marjorie Chan, Nanjing Requiem (2011), a novel by the first-generation Chinese American novelist Ha Jin, and The Nanjing Massacre: Poems (2013), a collection of poems by the third-generation Chinese Hawaiian poet Wing Tek Lum. Furthermore, the docudrama Iris Chang: The Rape of Nanking (2007), directed by Bill Spahic and Anne Pick, presents a filmic representation of the short fascinating life of this passionate writer. This paper discusses how Chang, role as a writer and activist, fights against amnesia with remembrance as well as her rich legacy to the world across linguistic, generic, and semiotic boundaries. Chang’s text and its afterlives strive to give voice to those nameless war victims as a step towards truth, justice, reconciliation, and peace.     

Activism through attrition?: An exploration of viral resignation letters and the teachers who wrote them

In recent years, there has emerged a new phenomenon in response to contemporary educational policies: public teacher resignation letters. Through the theoretical frames of participatory democracy and identity, and analyzed in light of literature on teacher attrition and activism, we investigate the following questions with 8 teacher resigners: (1) What are the rationales of and implications for teachers to resign in public ways? (2) How are teachers' public resignation letters a reflection of their personal and professional identities?     

Liminoid space and place-fixing in urban activism

ABSTRACT

The past 10 years witnessed a resurgence of youth activism in East Asia. While some may consider it as simply reflecting a broader, general trend of young people reacting to the neoliberalizing world, this paper pays special attention to the changing cultural geographies of East Asia that underlie part of the picture. In 2014, the Sunflower movement in Taiwan was triggered by a group of young people who occupied the Legislative Yuan, paralyzed the establishment for 23 days, and brought about alternative politics, which soon was echoed by the Umbrella Movement in Hong Kong during 26 September to 15 December the same year. This paper is interested in understanding how young people, walking away from the aforementioned urban uprising with their memories of participating in a sort of exceptional city for short time, carried on their aspiration for alternatives in their everyday lives. Finding inspiration from Victor Turner's notion of liminoid and anti-structure, it attends to the activism embedded in everyday life. It also attends to the translocal, transnational interaction among young actors across cities in East Asia, with a focus on the act of place-fixing, which enables connection, collaboration, and circulation (of resources) through materialistic, transactive practices and can be compared to place-making.     

Dinghaiqiao Mutual Aid Society: negotiating the common with/by/through the urban daily

ABSTRACT

This paper introduces Dinghaiqiao Mutual Aid Society (DMAS, dinghaiqiao huzhushe, its urban context, issues that it concerns and strategies that it uses by introducing three of its projects. As a group that locates itself in a historically working-class neighborhood under the pressures of urban renewal, it clarifies its vision by both embodying the participants to the projects, and extending knowledge production and imagination of the place into a more profound social and historical dimension. The “common” here, serves as the interactive element and mechanism in DMAS events, as well as in its operational logic. The strategies that it develops, based on this, is a reflection and transcendence of the social political atmosphere and questions the developmental ideology of the city.     

Political aesthetics: activism,everyday life,and art’s object in 1960s’ Japan

Abstract

Around 1960, revolutionary forms of activism and critique emerged to challenge administrative forms of politics and daily life. In Japan, despite massive strikes and widespread protest, the ruling party used a Diet majority and riot police to renew the USA–Japan Security Treaty. After this display of force, this party’s new administration sought a new legitimacy, and a means to assuage and co‐opt the defeated opposition, through promoting a depoliticized everyday world of high growth and consumption, and a dehistoricized national image in preparation for the 1964 Tokyo Olympics. Among those activists who emerged to contest this new cultural politics, a diverse group of young artists worked to repoliticize daily life through an interventionist art practice. Their practices arose out of a particular local, playful art practice, whose focus on the material debris and spaces of the economic expansion led to an engagement with the transformations of daily life. Focusing on the art practices connected with the yearly exhibition, the Yomiuri Indépendant, I examine the advent of a critical art examining the everyday world of Japan in the late 1950s and early 1960s, reflecting on its complex relation with an internationalized art world and domestic art scene, mass culture, and domestic protest movements. Examining the history of this art illuminates the state’s investments in a normative cultural order, and a particular configuration of the politics of culture in the early 1960s.     

Recognition,inclusion and democracy: learning from action research with young people

ABSTRACT

This paper draws upon learning from three action research projects conducted as part of a Europe-wide project exploring young people’s social and political participation. Challenging dominant discourses about what ‘counts’ as participation and what does not, the paper explores how, through the action research projects, young people engaged in knowledge democracy in ‘new democratic arenas’. Building upon experiential knowing and creating knowledge and learning through practice, the young people explored their own democratic knowledge production, communication and engagement within a context of shifting discourses of participation, democratic engagement and active citizenship. The increasing preference of young people for more informal forms of participation as lived practice reflects a shift to young people constructing their own modes of participation and ‘remaking democracy’ in their own vision and according to their own needs. By working outside of the confines of normative assumptions of democratic practice and participation, young people exercised their own ‘political’ agency in response to their own priorities, interests and concerns and, in doing so, illustrated that new forms, understandings and practices of knowledge democracy can emerge that reflect the promise of inclusive democratic societies more meaningfully.     

¡No cierren nuestra escuela! farm worker mothers as cultural citizens in an educational community mobilization effort

Mexican immigrant farm-worker mothers’ class, race, citizenship status, and jurisdictional status of their town in a Northern California community rendered them invisible. However, when the school board decided to close the elementary school the mothers mobilized. Drawing on these mothers’ fototestimonios we examine how they, as cultural citizens, resisted local practices of educational inequity. They wanted to ensure an education for their children. The fototestimonios reveal how farm-worker mothers: (1) negotiated as a collective with the school board; (2) sought negotiation and schooling alternatives; and (3) expressed cultural citizenship through collective efforts to be included within the US polity.     

Mexican Americans and the push for culturally relevant education: the bilingual education movement in Tucson, 1958–1969

This essay traces the bilingual education movement that began in Tucson through the efforts of local teachers, university faculty and educational leaders. It is argued that Mexican Americans and their allies played a crucial role in promoting the merits of bilingual education at the local, state and national levels. Their advocacy of Spanish-for-Spanish-speakers programmes as a culturally relevant means of improving educational outcomes for Mexican American students led to a push for bilingual education with the support of the National Education Association. The work that educators from Tucson accomplished focused national attention on the education of Mexican Americans and ultimately contributed to the passage of the Bilingual Education Act of 1968. This legislation sparked a national movement to expand bilingual education programmes throughout the Southwest and other parts of the nation.