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北京地区发展性障碍儿童家庭生活质量的研究
引用本文:胡晓毅,王勉. 北京地区发展性障碍儿童家庭生活质量的研究[J]. 中国特殊教育, 2012, 0(7): 3-10,29
作者姓名:胡晓毅  王勉
作者单位:1. 北京师范大学教育学部,北京,100875
2. 美国加州大学圣巴巴拉分校,加州,93106
摘    要:残疾人家庭生活质量的研究在国际上非常受重视,已经成为评估残疾人家庭支持成效的重要参考因素。本研究采用中文版《家庭生活质量评估量表》,对北京442个发展性障碍儿童的家庭进行问卷调查,探究了北京发展性障碍儿童家庭生活的客观生活质量状况,分析家庭主观生活质量的现状和家长对家庭生活质量的满意度,以及发展性障碍儿童家庭生活质量结构特征。研究为进一步提升家庭生活质量的实践和研究提出了建议。

关 键 词:家庭生活质量  发展性障碍  家庭

On the Life Quality of Families with Children with Developmental Disabilities in Beijing
HU Xiaoyi , WANG Mian. On the Life Quality of Families with Children with Developmental Disabilities in Beijing[J]. Chinese Journal of Special Education, 2012, 0(7): 3-10,29
Authors:HU Xiaoyi    WANG Mian
Affiliation:1.Institute of Special Education,Department of Education,Beijing Normal University,100875;2.Gevirtz Education Graduate School,University of California at Santa Barbara,USA)
Abstract:The research into the family quality of life(FQOL) in families with children with disabilities has attracted wide attention internationally,and has become a key indicator for assessing the outcomes of the family support of children with disabilities.This study,by using the Chinese Version of the Family Quality of Life Scale to survey a total of 442 families with children with developmental disabilities in Beijing,aims to explore the objective FQOL,the subjective FQOL,the satisfaction with the FQOL,and the structural characteristics of the FQOL in Beijing.In conclusion,the article gives suggestions on the improvement of the research into and the practice of the FQOL.
Keywords:family quality of life children with developmental disabilities family
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