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Utilisation of an online forum to engage adolescents with autism in direct participation in qualitative research
Authors:Rebecca S Vine Foggo  Amanda A Webster  Roselyn Dixon
Abstract:Difficulties with social communication may present challenges in gathering data from individuals with autism in research. To encourage individuals with autism to participate directly in research, methods that allow for autistic symptomology should be considered. An online forum was developed to enable adolescents with autism to share their social experiences. Ten female adolescents with autism, aged 12 to 19, engaged with the forum over 12 weeks. Questions were posted weekly and data were collected on the frequency of participant responses, quality of responses, and participants' engagement with each other. Data indicated that the frequency and quality of participants' responses were high, and participants' engagement with each other facilitated the introduction of new topics. The online forum was an effective tool for adolescents with autism to have direct participation in research. It offers promise in future studies as a practical research tool that accommodates the social communication challenges of individuals with autism.
Keywords:autistic  inclusive research  online forum  direct participation  social communication
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