Parental concerns regarding a centre-based early intervention programme for Down syndrome in Malaysia: a case study |
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Authors: | Nagasangari Kunagaratnam and Sau Cheong Loh |
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Institution: | (1) Department of Educational Psychology and Counseling, Faculty of Education, University of Malaya, 50603 Kuala Lumpur, Malaysia; |
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Abstract: | This qualitative study provides information on the concerns faced by parents having children with Down syndrome in a centre-based
Early Intervention Programme in Malaysia and how they coped with these concerns. Semi-structured interviews were conducted
with a total of five parents and two special educators. The interview and observation findings indicate that there are numerous
concerns faced by parents, such as the child’s uncertain future, teacher training, family involvement, expansion of services,
support services, lack of information and resources, inconsistency of language used, increase in fees, and changes in lifestyle.
The study has also revealed unmet needs of special children, for example, time duration, music therapy and the facilities
provided. Recommendations have also been suggested for further needed improvement in the Early Intervention Programme. |
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Keywords: | |
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